Incidence, treatment and recurrence of endometriosis in a UK-based population analysis using data from The Health Improvement Network and the Hospital Episode Statistics database

Lucia Cea Soriano, Lucía Cea Soriano, Esther López-Garcia, Esther López‐García, Renate Schulze‐Rath, Renate Schulze-Rath, Luis A Garcia Rodríguez, Luis A. Garcı́a Rodrı́guez
The European journal of contraception & reproductive health care : the official journal of the European Society of Contraception · 2017 · vol. 22(5) , pp. 334–343 · doi:10.1080/13625187.2017.1374362 · W2759309033
article OA: closed CC0 ⤵ 28 in-corpus citations
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⚙ AI-generated summary by claude@2026-06, 2026-06-09 ⓘ

This study analyzed UK medical records to find an endometriosis incidence of 1.46 per 1000 person-years, with over half of diagnosed women receiving medical therapy and one-fifth requiring repeat invasive procedures.

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Abstract

Purpose: This retrospective study used medical records from The Health Improvement Network (THIN) and Hospital Episode Statistics (HES) database to evaluate endometriosis (incidence, treatment and need for recurrent invasive procedures) in the general UK population.Materials and methods: Women aged 12–54 years between January 2000 and December 2010, with a Read code for endometriosis, were identified in THIN. Cases were validated by manual review of free-text comments in medical records and responses to physician questionnaires. False-negative cases were identified among women with Read codes for hysterectomy or dysmenorrhea. Prescriptions of medical therapies for endometriosis were identified in THIN. Cases of single and recurrent invasive procedures were identified in women with medical records in both THIN and HES.Results: Overall, 5087 women had a Read code for endometriosis, corresponding to an incidence of 1.02 (95% confidence interval [CI]: 0.99–1.05) per 1000 person-years. After case validation, the estimate was 1.46 (95% CI: 1.43–1.50) per 1000 person-years. Medical therapy was prescribed to 55.5% of women with endometriosis in the first year after diagnosis. In total, 48.3% of women received invasive treatment during the study period; approximately one-fifth of these women required further invasive treatment, mainly in the 3 years after the index procedure.Conclusions: Using Read codes as the only method to identify women with endometriosis underestimates incidence. Over half of women with recorded endometriosis are prescribed medical therapy in the first year after diagnosis. Women with diagnosed endometriosis are at risk of requiring recurrent invasive procedures.

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Condition tags

mesh:D004715endometriosisdysmenorrhea

MeSH descriptors

Endometriosis Gynecologic Surgical Procedures Medical Records Adolescent Adult Child Databases, Factual Endometriosis Endometriosis Female Gynecologic Surgical Procedures Humans Incidence Medical Records Middle Aged Recurrence Retrospective Studies Surveys and Questionnaires United Kingdom United Kingdom

Citation neighborhood

Papers in the corpus that this work cites (lower rings, blue) and that cite this one (upper rings, green). Dot size scales with the paper's in-corpus citation count — bigger dot = more influential within the endo/adeno field. Click a dot to open that paper. [ expand to 2 hops ] — adds papers reached through this work's immediate citers/citees. Heavier; up to 60 extra dots.

References (38)

Cited by (28)

Source provenance

europepmc
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License: CC0 · commercial use OK