Development of the Short Form Endometriosis Health Profile Questionnaire: The EHP-5

Georgina Jones, Crispin Jenkinson, Jenkinson C, Kennedy S, Stephen Kennedy
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2004 · vol. 13(3) , pp. 695–704 · doi:10.1023/b:qure.0000021321.48041.0e · PMID:15130031 · W2015901402
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A 5-item core questionnaire and a 6-item modular questionnaire were developed and validated to create the Endometriosis Health Profile-5, a reliable and valid short form measure.

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This study developed and validated a short-form version of the Endometriosis Health Profile-30 by conducting three studies: creating a shortened core (EHP-5 Study 1), verifying its results in a new dataset (Study 2), and producing a short-form version of the 23-item modular questionnaire (Study 3). The final EHP-5 consisted of 11 items—five core items plus six modular items—and the 95% confidence intervals for scale scores overlapped with item scores in Study 1 and were confirmed in Study 2; each item correlated most strongly with its parent scale, with all correlations significant at the 0.01 level (two-tailed). The paper frames the modular component as optional for dimensions not applicable to every woman, supplementing the core when required. This paper is centrally about endometriosis — it develops and validates the Endometriosis Health Profile-5 questionnaire for endometriosis health status measurement.

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Abstract

ObjectiveTo develop and validate a short form version of the Endometriosis Health Profile-30 questionnaire which consists of a 30-item core questionnaire and a 23 item modular questionnaire.MethodsThree studies were carried out to develop the Endometriosis Health Profile-5. Study 1: a short form version of the Endometriosis Health Profile-30 core questionnaire was developed. Study 2: the results were verified in a new data set. Study 3: a short form version of the 23 item modular questionnaire was produced. The modular questionnaire contains six dimensions which may not be applicable to every woman with endometriosis and is used to supplement the five scales on the core questionnaire when required.ResultsThe final instrument contained 11 items: five items from the core questionnaire and six items from the modular questionnaire. The 95% confidence intervals for Study 1 indicated that the scale scores overlapped with each item score and were confirmed in the second analysis (study 2). Each item was most highly correlated to its parent scale and less with the remaining four core questionnaire scales which was verified in study 2. In both studies all correlations were significant at the 0.01 level (two tailed test).ConclusionThe Endometriosis Health Profile-5 is a reliable and valid short form questionnaire which can also be supplemented with a short form version of the modular questionnaire when required. It will be especially useful in clinical settings where a short and economical endometriosis health status measure is required.
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Abstract

Objective: To develop and validate a short form version of the Endometriosis Health Profile-30 questionnaire which consists of a 30-item core questionnaire and a 23 item modular questionnaire. Methods: Three studies were carried out to develop the Endometriosis Health Profile-5. Study 1: a short form version of the Endometriosis Health Profile-30 core questionnaire was developed. Study 2: the results were verified in a new data set. Study 3: a short form version of the 23 item modular questionnaire was produced. The modular questionnaire contains six dimensions which may not be applicable to every woman with endometriosis and is used to supplement the five scales on the core questionnaire when required. Results: The final instrument contained 11 items: five items from the core questionnaire and six items from the modular questionnaire. The 95% confidence intervals for Study 1 indicated that the scale scores overlapped with each item score and were confirmed in the second analysis (study 2). Each item was most highly correlated to its parent scale and less with the remaining four core questionnaire scales which was verified in study 2. In both studies all correlations were significant at the 0.01 level (two tailed test). Conclusion: The Endometriosis Health Profile-5 is a reliable and valid short form questionnaire which can also be supplemented with a short form version of the modular questionnaire when required. It will be especially useful in clinical settings where a short and economical endometriosis health status measure is required. Similar content being viewed by others

References

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endometriosis

MeSH descriptors

Endometriosis Psychometrics Quality of Life Sickness Impact Profile Surveys and Questionnaires Adolescent Adult Endometriosis Endometriosis Female Humans Middle Aged Pain Pain Pain Psychometrics Quality of Life Surveys and Questionnaires United Kingdom

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