The social media effect: the impact of fake news on women affected by endometriosis. A prospective observational study
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This study prospectively observed how fake news on social media impacted women diagnosed with endometriosis.
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Abstract
OBJECTIVES: Our purpose was to evaluate women's awareness of endometriosis and their ability to identify fake news about endometriosis on the internet. The second outcome was to identify those characteristics which make women more likely to believe in fake news.
STUDY DESIGN: This prospective observational study was conducted at our academic outpatient clinic for endometriosis and pelvic pain. We enrolled 172 patients referred to our Center due to the suspicion of endometriosis, who were asked to fill in a two-part questionnaire. The first part included socio-demographic information, the evaluation of anxiety status (STAI Y6 and GAD-7), and endometriosis related-symptoms (EHP-5). The second part of the questionnaire was about fake news: women were asked whether they had encountered six different statings when searching the Internet, and to judge the likelihood that those 6 topics were true.
RESULTS: 76.3% of patients found fake news about endometriosis online. Higher STAI-Y6 scores were associated with a higher risk of finding fake news about endometriosis (OR 1.05, 95% C.I. 1.01-1.09, p = 0.013). More than half of patients who came across the news regarding the impossibility of obtaining pregnancy for women affected by endometriosis considered this news moderately or highly credible, 6% of them even considered it completely plausible. No demographic characteristics were associated with thehigher perceived plausibility of the fake news.
CONCLUSION: Gynecologists should be aware that some hot topics concerning endometriosis are widely talked about on the web and that many statements found online have no scientific base. Through this knowledge physicians could more easily engage patients by acquiring important insight into their main concerns and doubts, and could provide women with reliable and correct information regarding their disease, dissipating doubts and misconceptions.
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Cited by (14)
- 'Not Just Bad Periods': Survey of Aotearoa New Zealand Endometriosis Patients on Their Perspectives on the Impact of Endometriosis Awareness 2026
- The role of social media in endometriosis: a systematic review of users, content, information quality, and content creators 2026
- The mental health burden of endometriosis: a narrative review 2026
- Assessing healthcare needs in endometriosis: a scoping review 2025
- Exploring the Nutrition-Related Healthcare Experiences of Individuals With Endometriosis: Qualitative Interviews With Consumers and Dietitians 2025
- Welcome to the EndoHood: A Scoping Review of Social Media Spaces for those with Endometriosis 2025
- Social media activism and women's health: Endometriosis awareness and support 2025
- Endometriosis Influencers on Instagram: Who Are They and What Are They Posting? 2025
- Evaluation of dietary behaviours and physical activity of Polish women with endometriosis 2024
- The Language of Endometriosis Prevalence: How Can Gender Inclusivity and Accuracy Coexist? 2024
- Not “just a bad period”— The impact of a co-created endometriosis social media health campaign: a mixed methods study 2023
- Endometriosis in the time of internet: how web navigation affects women with endometriosis 2023
- The use of infodemiology in the development of targeted public health actions on endometriosis in France: a mixed & patient-centric methodology (Preprint) 2023
- Users’ Concerns About Endometriosis on Social Media: Sentiment Analysis and Topic Modeling Study (Preprint) 2022
Source provenance
- europepmc
- last seen: 2026-07-29T06:27:48.050232+00:00
- openalex
- last seen: 2026-06-10T17:14:06.276822+00:00
- pubmed
- last seen: 2026-06-26T06:14:19.508207+00:00
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