{"paper_id":"334fcaa2-c114-43d2-9c72-5896fbaa147a","body_text":"Abstract\nObjective: To develop and validate a short form version of the Endometriosis Health Profile-30 questionnaire which consists of a 30-item core questionnaire and a 23 item modular questionnaire. Methods: Three studies were carried out to develop the Endometriosis Health Profile-5. Study 1: a short form version of the Endometriosis Health Profile-30 core questionnaire was developed. Study 2: the results were verified in a new data set. Study 3: a short form version of the 23 item modular questionnaire was produced. The modular questionnaire contains six dimensions which may not be applicable to every woman with endometriosis and is used to supplement the five scales on the core questionnaire when required. Results: The final instrument contained 11 items: five items from the core questionnaire and six items from the modular questionnaire. The 95% confidence intervals for Study 1 indicated that the scale scores overlapped with each item score and were confirmed in the second analysis (study 2). Each item was most highly correlated to its parent scale and less with the remaining four core questionnaire scales which was verified in study 2. In both studies all correlations were significant at the 0.01 level (two tailed test). Conclusion: The Endometriosis Health Profile-5 is a reliable and valid short form questionnaire which can also be supplemented with a short form version of the modular questionnaire when required. It will be especially useful in clinical settings where a short and economical endometriosis health status measure is required.\nSimilar content being viewed by others\nReferences\nColwell H, Mathias SD, Pasta DJ, Henning JM, Steege JF. A health-related quality of life instrument for symptomatic patients with endometriosis: A validation study. Am J Obstet Gynaecol 1998; 179: 47-55.\nJones G, Kennedy S, Barnard A, Wong J, Jenkinson C. Development of an Endometriosis Quality of life Instrument: The Endometriosis Health Pro.le-30. Obstet Gynecol 2001; 98: 258-264.\nWasson J, Keller A, Rubenstein L, Hays R, Nelson E, Johnson D, and the Dartmouth Primary care COOP Project. Benefits and obstacles of health status assessment in ambulatory settings: The clinicians point of view. Med Care 1992; 30: MS42-MS49.\nCoste J, Guillemin F, Pouchet J, Fermanian J. Methodological approaches to shortening composite measurement scales. J Clin Epidemiol 1997; 50: 247-252.\nPocock SJ. Clinical Trials: A Practical Approach. Chichester: John Wiley and Sons, 1983.\nWare J, Kosinski M, Keller SD. A 12 item short-form health survey. SF-12: Construction of scales and preliminary tests of reliability and validity. Med Care 1996; 34: 220-233.\nWare JE, Nelson EC, Sherbourne CD, Stewart AL. Preliminary tests of a 6-item general health survey: A patient application. In: Stewart AL, Ware JE (eds), Measuring Functioning and Wellbeing: The Medical Outcomes Study Approach, London: Duke University Press, 1992.\nStreiner DL, Norman G. Health Measurement Scales: A Practical Guide to Their Development and Use. 2nd ed. Oxford: Oxford University Press, 1995.\nGandek B, Ware JE, Aaronson NK, et al. Tests of data quality, scaling assumptions, and reliability of the SF-36 in eleven countries: Results from the IQOLA Project. International Quality of Life Assessment. J Clin Epidemiol 1998; 51: 1149-1158.\nCronbach L. Coefficent alpha and the internal structure of tests. Psychometrika 1951; 16: 297-334.\nKennedy S. Is there a genetic basis to endometriosis? Semin Reprod Endocrinol 1997; 15: 309-318.\nJones G, Kennedy S, Jenkinson C. Health-related quality of life measurement in women with common benign gynecological conditions: A systematic review. Am J Obstet Gynecol 2001; 187: 501-511.\nFitzpatrick R. Applications of health status measures. In: Jenkinson C, (ed.), Measuring Health and Medical Outcomes, London: UCL Press, 1994: 27-41.\nJenkinson C, Fitzpatrick R, Jenkinson C. Health Status Measurement in Neurological Disorders. Oxford: Radcliffe Medical Press, 2000.\nBowling A. Measuring Health: A Review of Quality of Life Measurement Scales. Buckingham: Open University Press, 1997.\nKatz JN, Larson MG, Phillips C, Fossel A, Liang MH. Comparative measurement sensitivity of short and longer health status instruments. Med Care 1992; 30: 917-925.\nde Vaus DA. Surveys in Social Research. London: UCL Press, 1991.\nOppenheim AN. Questionnaire Design, Interviewing and Attitude Measurement. London: Continuum, 1992.\nAuthor information\nAuthors and Affiliations\nRights and permissions\nAbout this article\nCite this article\nJones, G., Jenkinson, C. & Kennedy, S. Development of the Short Form Endometriosis Health Profile Questionnaire: The EHP-5. Qual Life Res 13, 695–704 (2004). https://doi.org/10.1023/B:QURE.0000021321.48041.0e\nIssue date:\nDOI: https://doi.org/10.1023/B:QURE.0000021321.48041.0e","source_license":"CC0","license_restricted":false}