Development of an endometriosis self-assessment tool for patient

Hyun-Hee Cho, Hyun‐Hee Cho, Young-Sub Yoon
Obstetrics & gynecology science · 2022 · vol. 65(3) , pp. 256–265 · doi:10.5468/ogs.21252 · PMID:35381626 · PMC9119729 · W4226109491
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⚙ AI-generated summary by claude@2026-06, 2026-06-08 ⓘ

A 21-item endometriosis self-assessment tool was developed and validated, demonstrating good reliability and ability to differentiate endometriosis from non-endometriosis.

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⚙ AI-generated deep summary by claude@2026-06, 2026-06-10 ⓘ

This study developed and evaluated an endometriosis self-assessment tool (ESAT) using items derived from in-depth interviews with 14 laparoscopically diagnosed endometriosis patients and an integrative literature review of endometriosis symptom experiences. In a descriptive, correlational non-experimental design, 142 participants (117 with endometriosis and 25 without) completed the ESAT, and the authors assessed content/construct validity and reliability, including nomological validity via correlations with quality-of-life scores; they also used exploratory factor analysis and receiver operator characteristic analyses. The ESAT yielded 21 items with four symptom components (gastrointestinal symptoms, dysmenorrhea, usual symptoms, and menstrual bleeding amount/characteristics), supported construct validity, and differentiated endometriosis from non-endometriosis with fair discrimination (cut-off 50; sensitivity 0.76, specificity 0.72, AUC >0.75). The paper notes that the ESAT is intended as a self-assessment rather than a hospital diagnostic test, with symptom evaluation framed around menstrual cycle phases; applicability beyond this design and sampling frame is not explicitly quantified. This paper is centrally about endometriosis — it focuses on developing and validating a patient-facing endometriosis self-assessment tool (ESAT).

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Abstract

OBJECTIVE: This study aimed to develop and verify an endometriosis self-assessment tool (ESAT). METHODS: A non-experimental, descriptive, correlational study design was used. Candidate items were developed based on a conceptual framework constructed using the results of in-depth interviews and an integrative literature review. The construct validity of the developed tool was also examined. One-hundred and forty-two participants (117 patients with endometriosis and 25 patients without endometriosis) were included in the validity and reliability tests. The data were collected between August and December 2018. Nomological validity was verified based on significant correlations between the ESAT and the quality-of-life scores. RESULTS: A 21-item ESAT was developed, and its construct validity was supported. Exploratory factor analysis indicated that the tool consisted of four components (gastrointestinal symptoms, dysmenorrhea, usual symptoms, and the amount and characteristics of menstrual bleeding) with a variance of 61.6%. The variance in quality-of-life scores, as explained by the ESAT scores, was relatively high. Receiver operator characteristics curve analysis indicated that ESAT scores significantly differentiated endometriosis from non-endometriosis with fair discriminatory power at a cut-off score of 50 (sensitivity, 0.76; specificity, 0.72; area under the curve, >0.75; P50 points were more likely to have endometriosis. Thus, the reliability of the ESAT was confirmed. CONCLUSION: The devised tool appears valid and reliable. This tool may allow women to determine their risk of endometriosis by distinguishing between normal and pathological menstruation-related symptoms.

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Condition tags

endometriosisdysmenorrhea

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