Satisfaction with medical support in women with endometriosis

Ilona Lukas, Alexandra Kohl-Schwartz, Alexandra Kohl Schwartz, Kirsten Geraedts, Martina Rauchfuß, Martina Rauchfuss, Monika Wölfler, Monika M Wölfler, Felix Häberlin, Stephanie von Orelli, Markus Eberhard, Bruno Imthurn, Patrick Imesch, Brigitte Leeners
PloS one · 2018 · vol. 13(11) , pp. e0208023 · doi:10.1371/journal.pone.0208023 · PMID:30496315 · PMC6264517 · W2902688734
article OA: gold CC0 ⤵ 46 in-corpus citations
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⚙ AI-generated summary by claude@2026-06, 2026-06-07 ⓘ

This study found that feeling adequately informed, having mental health concerns taken seriously, and receiving pain management support were significantly associated with satisfaction with medical support in women with endometriosis.

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⚙ AI-generated deep summary by claude@2026-06, 2026-06-07 ⓘ

This multi-centre retrospective cohort study of 498 histologically confirmed endometriosis patients (2010–2016) assessed predictors of patient satisfaction with medical support using a standardized questionnaire and comparisons between satisfied and dissatisfied women. Overall, 54.6% of participants reported being satisfied, and feeling adequately informed by the time of diagnosis, taking women’s mental troubles seriously, and supporting women in handling their pain were each significantly associated with satisfaction. The authors note limitations including exclusions due to incompletely filled questionnaires (73 women) and that the satisfaction measures were developed for this study because no validated tools existed for evaluating endometriosis-related medical support. This paper is centrally about endometriosis — predictors of patient satisfaction with medical support among women with endometriosis.

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Abstract

Endometriosis affects various aspects of women's lives. We searched for predictors for patient satisfaction with medical support (PSwMS) in women with endometriosis. The study was designed as a multi-centre retrospective cohort study. We approached women with histologically confirmed endometriosis from 2010 until 2016, comparing women satisfied to women dissatisfied with medical support. We analysed data on characteristics of endometriosis, PSwMS and the influence of disease characteristics on PSwMS. Information on satisfaction with medical support was collected through a standardized questionnaire. After exclusion of 73 women because of inchoately filled in questionnaires, data from 498 women was evaluated. Altogether, it was observed that 54.6% (n = 272) of the study participants were satisfied with medical support and 45.4% (n = 226) were not. Feeling adequately informed by the time of diagnosis (p < 0.001), taking women's mental troubles seriously (p < 0.001) and supporting women in handling their pain (p < 0.001) were significantly associated with satisfaction. We found adequate information to be the most distinctive indicator for PSwMS. Further, acknowledging psychological distress and supporting women in handling their symptoms rather than to alleviate them, positively affect PSwMS. To achieve PSwMS, healthcare providers have to give adequate information on endometriosis and its management.

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Condition tags

endometriosis

MeSH descriptors

Endometriosis Patient Satisfaction Adult Emotions Endometriosis Female Forecasting Health Knowledge, Attitudes, Practice Health Knowledge, Attitudes, Practice Humans Middle Aged Patient Medication Knowledge Patient Medication Knowledge Patient Satisfaction Personal Satisfaction Quality of Life Retrospective Studies Stress, Psychological Surveys and Questionnaires

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