Surgical Decision Regret in Women Pursuing Surgery for Endometriosis or Chronic Pelvic Pain
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This study investigated surgical decision regret in women undergoing procedures for endometriosis or chronic pelvic pain.
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Abstract
Study objectiveTo identify incidence of decision regret associated with surgery for endometriosis or chronic pelvic pain (CPP).DesignSurvey study.SettingAcademic medical center.PatientsAll patients undergoing excisional surgery for endometriosis or CPP between January 2016 and June 2019.InterventionsThe women were contacted to complete 2 validated questionnaires: the Decision Regret and Patient Global Impression of Improvement scales.Measurements and main resultsA total of 253 patients were contacted, and 154 patients responded (60.8% response rate) to the survey. A total of 137 women (90%) agreed or strongly agreed that having excisional surgery was the right decision; 134 women (87%) indicated that they would choose to have surgery again. The survey responders did not differ from nonresponders in age (years, 33.9 vs 35; p = .25), robotic route of surgery (83.1% vs 78.8%; p = .66), or performance of hysterectomy (27.3% vs 26.3%; p = .85). The responders were more likely to have stage III/IV endometriosis (50.6% vs 29.3%; p <.01), more previous surgeries for endometriosis (median surgeries, 1 vs 0; p = .01), higher complication rate (8.4% vs 2.0%; p = .03), and pathology test results more frequently positive for endometriosis (87.7% vs 77.8%; p = .03). Overall, 25 patients (16.3%) reported some level of regret after excisional surgery for endometriosis or CPP. Regret was not associated with a lower Patient Global Impression of Improvement score (odds ratio [OR] 4.37; 95% confidence interval [CI], 0.81-23.7), age (OR 0.98; 95% CI, 0.93-1.04), time since surgery (OR 1; 95% CI, 0.97-1.04), number of previous surgeries (OR 1.08; 95% CI, 0.9-1.31), negative pathology test results (OR 2.82; 95% CI, 0.95-8.32), hysterectomy (OR 1.23; 95% CI, 0.45-3.32), or complications (OR 1.07; 95% CI, 0.22-5.16).ConclusionMost women who pursue excisional surgery for endometriosis or CPP are satisfied with their decision. Regret was not associated with patient-reported lack of improvement, negative pathology test results, hysterectomy, or complications. Gynecologic surgeons should engage in shared decision-making with patients and feel comfortable offering surgical evaluation and management to patients with endometriosis or CPP when clinically indicated.
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Cited by (6)
- Chronic Pelvic Pain: A Clinical Perspective 2026
- High prevalence of irritable bowel syndrome in women with chronic pelvic pain and discerning features relevant to deep endometriosis 2025
- Health-related decision-making experiences of people with endometriosis: a qualitative analysis 2025
- Neuroimmunology of Endometriosis-Associated Pain and Its Psychological Aspects 2024
- Total or Subtotal Hysterectomy for the Treatment of Endometriosis: A Review 2023
- The placebo and nocebo effects in the treatment of endometriosis: a commentary 2021
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