Managing endometriosis: a cross-sectional survey of women in Australia

Rebecca O’Hara, Heather Rowe, Rowe H, Jane Fisher
Journal of psychosomatic obstetrics and gynaecology · 2020 · vol. 43(3) , pp. 265–272 · doi:10.1080/0167482x.2020.1825374 · PMID:33050751 · W3092305737
article OA: green CC0 ⤵ 64 in-corpus citations
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⚙ AI-generated summary by gemini-2.5-flash-lite, 2026-06-08 ⓘ

This cross-sectional survey of 620 Australian women found long delays to diagnosis and persistent pain despite treatment, with many consulting multiple health specialties.

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Abstract

PURPOSE: Endometriosis is a chronic, inflammatory condition. The aim was to describe the self-reported disease characteristics and factors associated with the use of different treatment modalities among women with surgically diagnosed endometriosis. METHOD: A cross-sectional online survey featuring 58 fixed-response items measuring disease characteristics, self-efficacy, health service usage, and treatment approaches was conducted. Logistic regression was used to explore the factors associated with different treatment modalities. RESULTS: Complete data were available from 620 respondents. Average delay to diagnosis was 6.4 years. Despite medical and surgical intervention, 65.8% reported dysmenorrhea and 61.1% reported dyspareunia, and 82.7% reported chronic pelvic pain in the last 3 months. Respondents had consulted an average of three different health practitioner specialties in the previous 12 months for their endometriosis. DISCUSSION: A chronic disease management plan (CDMP) may be a useful mechanism to coordinate multidisciplinary care among women who experience ongoing symptoms.

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Condition tags

dysmenorrheadyspareuniaendometriosischronic_pelvic_pain

MeSH descriptors

Dyspareunia Dyspareunia Dyspareunia Dyspareunia Endometriosis Endometriosis Endometriosis Chronic Disease Cross-Sectional Studies Dysmenorrhea Dysmenorrhea Dysmenorrhea Female Humans Pelvic Pain Pelvic Pain Pelvic Pain

Citation neighborhood (2-hop)

Papers in the corpus that this work cites (lower rings, blue) and that cite this one (upper rings, green). Dot size scales with the paper's in-corpus citation count — bigger dot = more influential within the endo/adeno field. Click a dot to open that paper. Outer rings show 2-hop neighbours — papers reached through the immediate citers/citees. [ collapse to 1-hop ]

References (26)

Cited by (50)

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