Exploring women's experiences of informational support provided by gynaecologists in endometriosis care: a qualitative study

Deniz Senyel, Boyd JH, James H Boyd, Graham M, Melissa Graham
BMJ open · 2026 · vol. 16(9) , pp. e121990 · doi:10.1136/bmjopen-2026-121990 · PMID:42692504 · PMC13548267 · W7207717211
article OA: gold public-domain-us
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A qualitative study of Australian women with endometriosis found that gynaecologists provide essential informational support across the diagnostic and post-diagnostic journey, though significant gaps remain in communication regarding surgical preparation and long-term management.

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Abstract

BACKGROUND: Endometriosis affects approximately one in seven women in Australia and is associated with substantial physical, psychological and social impacts. Informational support is critical for enabling informed decision-making and fostering women's agency in care. While healthcare providers play a central role in delivering such information, existing research has predominantly focused on General Practitioners, despite the pivotal role of gynaecologists in endometriosis management. OBJECTIVES: This study aimed to explore Australian women's experiences of endometriosis informational support from gynaecologists. DESIGN/SETTING: A descriptive qualitative study was conducted using semi-structured online interviews. PARTICIPANTS: 16 women over 18 years old living in Australia with suspected or confirmed endometriosis. RESULTS: Three main themes were generated: Finding a gynaecologist who felt right: navigating a complex care pathway; Variance in informational support before diagnostic surgery and the uncertainty of recovery time; and Understanding what comes next: informational support and its gaps after diagnosis. The women emphasised the importance of finding not just any gynaecologist, but one with specific expertise in endometriosis. Factors such as geographical location, health insurance and referral pathways shaped this process. Once laparoscopic surgery was scheduled, informational support became particularly important in preparing women for the procedure, with surgical techniques and recovery expectations identified as key areas of informational need. Following diagnosis, the women highlighted the importance of clear communication regarding the nature of endometriosis, available treatment options and fertility considerations. CONCLUSION: Informational support was found to be essential across all stages of the diagnostic and post-diagnostic journey. However, the women identified ongoing gaps, suggesting that the provision of information by gynaecologists could be further strengthened to better meet women's needs.

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MeSH descriptors

Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Adult Adult Adult Adult Adult Adult Australia Australia Australia Australia Australia

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