Managing endometriosis: a cross-sectional survey of women in Australia

Rebecca O’Hara, Heather Rowe, Jane Fisher
Journal of psychosomatic obstetrics and gynaecology · 2020 · vol. 43(3) , pp. 265–272 · doi:10.1080/0167482x.2020.1825374 · PMID:33050751 · W3092305737
article OA: green CC0 ⤵ 64 in-corpus citations
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⚙ AI-generated summary by claude@2026-06, 2026-06-08 ⓘ

This cross-sectional survey of 620 Australian women found long delays to diagnosis and persistent pain despite treatment, with many consulting multiple health specialties.

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Abstract

PURPOSE: Endometriosis is a chronic, inflammatory condition. The aim was to describe the self-reported disease characteristics and factors associated with the use of different treatment modalities among women with surgically diagnosed endometriosis. METHOD: A cross-sectional online survey featuring 58 fixed-response items measuring disease characteristics, self-efficacy, health service usage, and treatment approaches was conducted. Logistic regression was used to explore the factors associated with different treatment modalities. RESULTS: Complete data were available from 620 respondents. Average delay to diagnosis was 6.4 years. Despite medical and surgical intervention, 65.8% reported dysmenorrhea and 61.1% reported dyspareunia, and 82.7% reported chronic pelvic pain in the last 3 months. Respondents had consulted an average of three different health practitioner specialties in the previous 12 months for their endometriosis. DISCUSSION: A chronic disease management plan (CDMP) may be a useful mechanism to coordinate multidisciplinary care among women who experience ongoing symptoms.

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Condition tags

mesh:D004412mesh:D004414mesh:D004715mesh:D017699endometriosischronic_pelvic_paindysmenorrheadyspareunia

MeSH descriptors

Dyspareunia Dyspareunia Dyspareunia Dyspareunia Endometriosis Endometriosis Endometriosis Chronic Disease Cross-Sectional Studies Dysmenorrhea Dysmenorrhea Dysmenorrhea Female Humans Pelvic Pain Pelvic Pain Pelvic Pain

Citation neighborhood

Papers in the corpus that this work cites (lower rings, blue) and that cite this one (upper rings, green). Dot size scales with the paper's in-corpus citation count — bigger dot = more influential within the endo/adeno field. Click a dot to open that paper. [ expand to 2 hops ] — adds papers reached through this work's immediate citers/citees. Heavier; up to 60 extra dots.

References (26)

Cited by (50)

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