“How Much Pain Do I Really Have to be in Before I’m Taken Seriously?” Participants’ Experiences of Diagnosis and Management of Endometriosis and/or Chronic Pelvic Pain in Australian Primary Care

S. Chakraborty, S. B. Crawford, M. Moradi, A. Hui, C. Rowe, D. Mazza
In: Women's Reproductive Health · 2026 · vol. 13(2) , pp. 483–504 · doi:10.1080/23293691.2025.2601061 · W7127050515
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This qualitative study explored Australian women's experiences of seeking diagnosis and management for endometriosis and/or chronic pelvic pain within primary healthcare settings.

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Abstract

One in seven Australian women is diagnosed with endometriosis by age 44–49. This qualitative study, involving two focus group discussions with 17 participants diagnosed with endometriosis and/or chronic pelvic pain (CPP), explored their perspectives and experiences in primary care. Inductive reflexive thematic analysis highlighted the significant challenges participants faced accessing diagnosis and management. Seven themes emerged, including substantial impacts on quality of life, barriers related to healthcare access and affordability, perceived inadequate skills amongst general practitioners and lack of community awareness regarding these conditions. Findings highlight the need for enhanced support for participants with endometriosis and CPP attending primary care.

Acknowledgements

The authors would like to acknowledge and thank the participants in the focus groups for this research. Disclosure Statement No potential conflict of interest was reported by the author(s). Data Availability Statement Data available on request from the authors: The data that support the findings of this study are available from the corresponding author, [SCh], upon reasonable request. Additional information Funding Notes on contributors S. Chakraborty Sangita Chakraborty, MPH, is a Research Officer and PhD candidate at SPHERE Center of Research Excellence in Women’s Sexual and Reproductive Health in Primary Care. S. B. Crawford Dr Sharinne Crawford, PhD, is a Senior Research Fellow and Project Manager at SPHERE Center of Research Excellence in Women’s Sexual and Reproductive Health in Primary Care. M. Moradi Dr Maryam Moradi, PhD, is an Academic Midwife and women’s sexual and reproductive health researcher. A. Hui Dr Alissia Hui, MPH, is an Academic General Practitioner and Research Fellow at SPHERE Center of Research Excellence in Women’s Sexual and Reproductive Health in Primary Care. C. Rowe Catriona Rowe, BPubHlth, is a Registered Nurse and was a Senior Research Officer at SPHERE Center of Research Excellence in Women’s Sexual and Reproductive Health in Primary Care during the time this study was conducted. D. Mazza Professor Danielle Mazza AM, PhD, is the Head of the Department of General Practice at Monash University and Director at SPHERE Center of Research Excellence in Women’s Sexual and Reproductive Health in Primary Care.

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Condition tags

endometriosischronic_pelvic_pain

Citation neighborhood

Papers in the corpus that this work cites (lower rings, blue) and that cite this one (upper rings, green). Dot size scales with the paper's in-corpus citation count — bigger dot = more influential within the endo/adeno field. Click a dot to open that paper. [ expand to 2 hops ] — adds papers reached through this work's immediate citers/citees. Heavier; up to 60 extra dots.

References (47)

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