Endometriosis Cost Assessment (the EndoCost Study): A Cost-of-Illness Study Protocol

Steven Simoens, Lone Hummelshoj, Lone Hummelshøj, Gerard A.J. Dunselman, Gerard Dunselman, Iris Brandes, Carmen D. Dirksen, Carmen Dirksen, Thomas D'Hooghe, Thomas D’Hooghe, EndoCost Consortium
Gynecologic and obstetric investigation · 2010 · vol. 71(3) , pp. 170–176 · doi:10.1159/000316055 · PMID:21160141 · W2076562680
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The EndoCost study protocol outlines a multicenter, prevalence-based cost-of-illness analysis to determine the societal costs of endometriosis across 10 countries, measuring direct and indirect expenses and quality of life.

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Abstract

AIMS: The EndoCost study aims to calculate the costs of endometriosis from a societal perspective. METHODS: This multicentre, prevalence-based cost-of-illness analysis aggregates data on endometriosis costs and quality of life from a prospective hospital questionnaire and from both retrospective and prospective patient questionnaires. The EndoCost study comprises 12 representative tertiary care centres involved in the care of women with endometriosis in 10 countries. The sample includes patients with a laparoscopic and/or histological diagnosis of endometriosis and with at least 1 patient contact related to endometriosis during 2008. The EndoCost study measures direct healthcare costs (e.g. costs of medication, physician visits), direct non-healthcare costs (e.g. transportation costs), and indirect costs of productivity loss. Cost questions are developed specifically for the purpose of the EndoCost study. Quality of life is measured using the EuroQol-5D and relevant parts of the Global Study of Women's Health instruments. Both aggregate analyses and country-specific analyses are planned for total costs per patient. Costs are broken down into cost drivers and into the various payers that incur costs. CONCLUSIONS: The cost estimates provided by the EndoCost cost-of-illness analysis may be used to justify the prioritisation of future research in endometriosis.

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Condition tags

endometriosis

MeSH descriptors

Cost of Illness Endometriosis Health Care Costs Endometriosis Female Health Care Surveys Humans Prospective Studies Quality of Life Retrospective Studies Surveys and Questionnaires

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