Understanding endometriosis underfunding and its detrimental impact on awareness and research

In: npj Women's Health · 2024 · vol. 2(1) · doi:10.1038/s44294-024-00048-6 · W4405625988
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This study analyzed funding for endometriosis from top foundations in Denmark, finding it remains significantly underfunded compared to diabetes and inflammatory bowel disease.

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This paper examines how much research and awareness support endometriosis receives, analyzing funding from the top 100 Danish grant-awarding foundations up to 2023 and comparing endometriosis with diabetes and inflammatory bowel disease. The authors report that endometriosis received far less grant support than diabetes and inflammatory bowel disease, and they also assess media coverage in Denmark (1992–2023) using Infomedia, finding that “diabetes” was mentioned far more often than “endometriosis,” with “inflammatory bowel disease” somewhat higher than “endometriosis.” A key limitation the authors flag is that their socioeconomic burden comparisons have been criticized as possibly conservative, which may affect how large the funding disparity appears. Relevance to endometriosis: the paper is centrally about endometriosis underfunding and links this to deficits in awareness, research progress, and delayed diagnosis.

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Abstract

Endometriosis affects approximately 190 million women globally. Many individuals with endometriosis face complex journeys through the healthcare system, set against a backdrop of historically underfunded research into women’s health. This study investigates the funding allocated to endometriosis up to 2023 by analysing the top 100 granting foundations in Denmark and comparing it to diabetes and inflammatory bowel disease, with similar prevalence and impact. We found that endometriosis remains significantly underfunded.
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Conclusion

In this article, we investigated the funding of endometriosis compared to irritable bowel syndrome and diabetes in a Danish setting, similar to a previous comparison conducted in the US 18.T h es i g n ificant underfunding of endometriosis perpetuates a cycle of knowledge gaps, suffering, and missed opportunities for scientific advancement. To address this urgent issue, we must prioritise endometrio sis research and advocacy efforts, allocating resources commensurate with the disease ’s prevalence and impact. By raising awareness, fostering interdisciplinary collaboration, and investing in innovative research initiatives, we can pave the way for a brighter future for those affected by endometriosis. It is time to recognise endometriosis as a global health priority and take decisive action to drive positive change. Only through collective effort and investment can we unravel the enigma of endometriosis and improve the lives of millions worldwide. Data availability No datasets were generated or analysed during the current study. Ulrik Bak Kirk1,5 ,A n n eS ofie Bank-Mikkelsen1,5,D o r t eR y t t e r1, Dorthe Hartwell2,H e n r i kM a r s c h a l l1, Mette Nyegaard3,M i k k e lS e y e r - Hansen4 & Karina Ejgaard Hansen1 1Department of Public Health, Aarhus University, Aarhus, Denmark. 2Department of Gynaecology, Fertility and Obstetrics, Copenhagen University Hospital, Copenhagen, Denmark. 3Department of Health Science and Technology, Aalborg University, Aalborg, Denmark. 4Department of Gynecology and Obstetrics, Aarhus University Hospital, Aarhus, Denmark. 5These authors contributed equally: Ulrik Bak Kirk, Anne Sofie Bank-Mikkelsen. e-mail: [email protected] Received: 20 September 2024; Accepted: 17 December 2024;

References

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Acknowledgements

FEMaLe Project has received funding from the European Union's Horizon 2020 research and innovation program (ID: 101017562). The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript. Author contributions U.K. generated the initial idea, design, and methodology, performed the analyses, wrote thefirst draft of the paper, and reviewed the manuscript drafts. A.M. contributed to the initial idea, design, and methodology, reached out to the foundations, performed the analyses, and reviewed the manuscript drafts. D.R., D.H., H.M., M.N. and M.H. reviewed the manuscript drafts. K.H. contributed to the initial idea and reviewed the manuscript drafts. All authors have read and agreed to the published version of the manuscript. Competing interests The authors declare no competing interests. Additional information Correspondence and requests for materials should be addressed to Ulrik Bak Kirk. Reprints and permissions informationis available at http://www.nature.com/reprints Publisher’sn o t eSpringer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations. Open Access This article is licensed under a Creative Commons Attribution-NonCommercial- NoDerivatives 4.0 International License, which permits any non-commercial use, sharing, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if you modified the licensed material. You do not have permission under this licence to share adapted

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