Co-developing a digital mindfulness- and acceptance-based intervention for endometriosis management and care: a qualitative feasibility study

Nina Maindal, Kirk, Ulrik Bak, Ulrik Bak Kirk, Karina Ejgaard Hansen
BMC women's health · 2025 · vol. 25(1) , pp. 187 · doi:10.1186/s12905-025-03731-1 · PMID:40241030 · W4409513435
article OA: gold CC0 ⤵ 2 in-corpus citations
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⚙ AI-generated summary by claude@2026-06, 2026-06-08 ⓘ

A qualitative feasibility study involving interviews with women with endometriosis found that the digital self-management intervention MY-ENDO was positively received, particularly its disease-specific content, patient collaboration, and the value of a contact person for motivation.

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⚙ AI-generated deep summary by claude@2026-06, 2026-06-09 ⓘ

This qualitative feasibility study co-developed a digital, mindfulness- and acceptance-based self-management program (MY-ENDO) for women with self-reported symptomatic endometriosis by interviewing seven participants as they completed the first four sessions, with 35 semi-structured interviews conducted before the first session and after each of the four sessions. Using a phenomenological approach with Braun and Clarke thematic analysis, the authors found that two program components—“knowledge of the disease” and “management of the disease”—were crucial to participant outcomes, alongside a broader theme of “motivation and alliance,” including the perceived importance of having a contact person. The intervention was generally experienced and evaluated positively, with acceptability attributed in part to its tailored, endometriosis-specific content and patient collaboration during development. This paper is centrally about endometriosis—co-developing and testing acceptability of the MY-ENDO digital mindfulness/acceptance self-management intervention for symptomatic endometriosis.

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Abstract

BACKGROUND: MY-ENDO (Mind Your ENDOmetriosis) is a mindfulness- and acceptance-based endometriosis self-management intervention aimed at teaching women with symptomatic endometriosis how to manage and reduce negative physical, psychological, and social consequences of endometriosis. This study aimed at involving women with endometriosis in the co-development process of a digital version of MY-ENDO to investigate their experiences with and attitudes toward the intervention. METHODS: The study was designed as a qualitative feasibility study. The empirical material consisted of 35 interviews with seven women who self-reported a diagnosis with endometriosis, based on a semi-structured interview guide. Each participant completed the first four sessions of the intervention and was interviewed before the first and after each of the four sessions (five times in total) during participation. The study was based on a phenomenological approach and the data were analyzed using Braun and Clarke's thematic analysis strategy. RESULTS: Analysis indicated that the two parts of the program called 'knowledge of the disease' and 'management of the disease' with eight related subthemes were crucial for participants' outcomes. In addition, a generic theme called 'motivation and alliance' was identified. CONCLUSION: The digital self-management intervention MY-ENDO was generally experienced and evaluated as positive. It was considered an advantage that the program was specifically tailored to and targeting endometriosis as well as developed in collaboration with patients. Having a contact person was deemed important with regard to maintenance and motivation suggesting potential consequences for the implementation of this digital solution in clinical practice.

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Condition tags

endometriosis

MeSH descriptors

Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis

Citation neighborhood

Papers in the corpus that this work cites (lower rings, blue) and that cite this one (upper rings, green). Dot size scales with the paper's in-corpus citation count — bigger dot = more influential within the endo/adeno field. Click a dot to open that paper. [ expand to 2 hops ] — adds papers reached through this work's immediate citers/citees. Heavier; up to 60 extra dots.

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