The association between experiences with patient-centred care and health-related quality of life in women with endometriosis

Silke Apers, Apers S, Eline A F Dancet, Eline Dancet, Johanna W. M. Aarts, Kluivers KB, Kirsten B. Kluivers, D'Hooghe TM, Thomas D’Hooghe, Thomas M D'Hooghe, Nelen W.L.D.M., Willianne L D M Nelen, W. L. D. M. Nelen
Reproductive BioMedicine Online · 2017 · vol. 36(2) , pp. 197–205 · doi:10.1016/j.rbmo.2017.10.106 · PMID:29191758 · W2765973582
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This study investigated the connection between patient-centered care experiences and health-related quality of life in women diagnosed with endometriosis.

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Abstract

In this cross-sectional study, we investigated whether patient-centred endometriosis care (PCEC) is associated with health-related quality of life (HRQOL). Dutch-speaking women with endometriosis, treated by laparoscopy in a university clinic between 2009 and 2010, were eligible (n = 194). Endometriosis Health Profile-30 and ENDOCARE questionnaire were used to assess HRQOL and PCEC, respectively. Overall and subscale scores were converted to a scale from 0 (best score) to 100 (worst score). Linear regression analyses were conducted while controlling for confounders. Participants (n = 109) had a mean age of 35.4 years; 79.6% had moderate-severe endometriosis. Mean scores for overall HRQOL and PCEC were 29.3/100 and 38.0/100, respectively. The PCEC-subscale 'continuity' was significantly associated with overall HRQOL (P = 0.029). A significant association was found between overall PCEC and the HRQOL-subscale 'social support' (P = 0.026). The PCEC-subscales 'information' and 'continuity' were significantly associated with the HRQOL-subscales 'emotional wellbeing' and 'social support' (P < 0.05). The PCEC-subscale 'respect' was significantly associated with the HRQOL-subscale 'emotional wellbeing' (P = 0.023). Multivariable regression analyses produced no significant associations, including all subscales of PCEC. Providing PCEC could lead to better HRQOL, especially if paying attention to 'continuity', 'respect' and 'information'. Large-scale longitudinal research is needed.

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Condition tags

endometriosis

MeSH descriptors

Endometriosis Patient-Centered Care Adult Cross-Sectional Studies Endometriosis Endometriosis Female Humans Quality of Life

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