Demographic and clinical characteristics determining patient-centeredness in endometriosis care

Hanna Grundström, Helena Kilander, Per Wikman, Matts Olovsson
Archives of gynecology and obstetrics · 2022 · vol. 307(4) , pp. 1047–1055 · doi:10.1007/s00404-022-06887-5 · PMID:36576559 · PMC10023645 · W4313232231
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⚙ AI-generated summary by claude@2026-06, 2026-06-08 ⓘ

This study found that Swedish women with endometriosis experience low patient-centeredness, highlighting the importance of relational aspects of care and having a responsible gynecologist for improved treatment and follow-up.

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⚙ AI-generated deep summary by claude@2026-06, 2026-06-09 ⓘ

This cross-sectional national survey studied patient-centeredness of endometriosis care among 476 Swedish women with confirmed endometriosis, recruited from 10 gynecology clinics and assessed via a digital version of the ENDOCARE questionnaire (ECQ) plus three background questions. Women reported low overall patient-centeredness (mean patient-centeredness score 3.73/10), and rated relational aspects with healthcare professionals as both highly important and among the areas reflecting unsatisfactory experiences. Having a gynecologist with patient responsibility was an independent predictor of higher patient-centeredness across multiple regression models. A key limitation explicitly noted by the study design is the moderate response rate (47.6%), which may affect generalizability. This paper is centrally about endometriosis — it evaluates what predicts women’s experiences of patient-centeredness in endometriosis care in Sweden.

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Abstract

PURPOSE: The primary aim of this study was to assess patient-centeredness of endometriosis care in a national sample of Swedish women with endometriosis. The secondary aims were to assess the importance of different dimensions of endometriosis care and to analyze demographic and clinical determinants associated with the experience of patient-centeredness. METHODS: This cross-sectional study included 476 women with confirmed endometriosis. An invitation to participate was sent to 1000 randomly selected women aged ≥ 18 years having any endometriosis diagnosis and who had visited a gynecological clinic due to endometriosis problems any time during the past five years. Participants were recruited from ten different-sized gynecology clinics all over Sweden. The invitation letter had a link to the digital survey, which consisted of demographic and clinical questions, and the ENDOCARE questionnaire (ECQ). ECQ measures experiences, importance and patient-centeredness of ten dimensions of endometriosis care. Univariate and multiple regression analyses were used to analyze which patient-specific demographic and clinical determinants were associated with the experience of patient-centeredness. RESULTS: The response rate was 48%. The results indicate that Swedish women with endometriosis experience low patient-centeredness and rate relational aspects with healthcare professionals as the most important aspects of care. Having a gynecologist with patient responsibility was an independent predictor for high patient-centeredness. CONCLUSION: Women with endometriosis in Sweden experience low patient-centeredness, reflecting the urgent need for improvement. More effort should be given to develop the relational aspects of care. Women with endometriosis should have a responsible gynecologist to care for treatment and follow-up.

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Condition tags

endometriosis

MeSH descriptors

Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Gynecology Gynecology Gynecology Gynecology Gynecology Gynecology Gynecology Gynecology

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Papers in the corpus that this work cites (lower rings, blue) and that cite this one (upper rings, green). Dot size scales with the paper's in-corpus citation count — bigger dot = more influential within the endo/adeno field. Click a dot to open that paper. [ expand to 2 hops ] — adds papers reached through this work's immediate citers/citees. Heavier; up to 60 extra dots.

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