Clinical assessment of the impact of pelvic pain on women

Jane Chalmers, K Jane Chalmers, Mark J. Catley, Susan Evans, Susan F Evans, G. Lorimer Moseley
Pain · 2016 · vol. 158(3) , pp. 498–504 · doi:10.1097/j.pain.0000000000000789 · PMID:28135211 · W2563352424
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This study developed and validated the 10-item Pelvic Pain Impact Questionnaire, demonstrating its strong psychometric properties and suitability for assessing the life impact of pelvic pain in women across various care settings.

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Abstract

We aimed to develop a questionnaire that assesses the impact of pelvic pain on women, regardless of diagnosis, that has high utility, sound psychometric performance, easy scoring, and high reliability. Two studies, with 3 separate cohorts, were undertaken. Both studies were completed online. Studies included women with self-reported pelvic pain. Women were eligible to participate regardless of whether their pelvic pain was undiagnosed, self-diagnosed, or diagnosed by a clinician. Study 1 used a 3-round "patient-as-expert" Delphi technique. These rounds defined the 10 aspects of life with the self-reported greatest impact on the lives of women with pelvic pain, which formed the questionnaire. Study 2 used Rasch analysis to assess the psychometric properties of the resultant 10-item questionnaire. To assess its reliability, a subgroup completed the questionnaire 3 times over a 3-week period. In study 1, 443 women with pelvic pain participated. The resultant 10-item questionnaire consisted of 8 Likert questions and 2 supplemental, nonscored questions. In study 2, 1203 women with pelvic pain completed the questionnaire. Rasch analysis showed that the questionnaire targeted the pelvic pain population well, had appropriate Likert categories, constituted a unidimensional scale, and showed internal consistency. Twenty-seven women with pelvic pain completed the reliability trial. Test-retest reliability was high (intraclass correlation coefficient 0.91, P < 0.001). The resultant Pelvic Pain Impact Questionnaire assesses the life impact of pelvic pain. It uses patient-generated language, is easily administered and scored, has very strong psychometric properties, and it is suitable for research and clinical settings across primary, secondary, and tertiary care.

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MeSH descriptors

Pain Measurement Pelvic Pain Pelvic Pain Surveys and Questionnaires Adult Cohort Studies Female Humans Pelvic Pain Psychometrics Reproducibility of Results Self Report Young Adult

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