‘You feel like you’re drifting apart’: a qualitative study of impacts of endometriosis on sex and intimacy amongst heterosexual couples
Qualitative
OA: hybrid
CC0
⤵ 3 in-corpus citations
AI-generated summary
This qualitative study explored how endometriosis symptoms impact sex, intimacy, and relationships in heterosexual couples, revealing complex emotional responses and management strategies.
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Abstract
While a wide body of research reports the considerable impact endometriosis can have on sex for women with the condition, studies commonly use a quantitative design and often focus on dyspareunia. There has been a limited amount of qualitative research which includes partners and explores the broader impact on not only sex, but also intimacy and the couple relationship. This paper utilizes findings from the UK-based ENDOPART study which examined the impact of endometriosis on heterosexual couples, via in-depth interviews (n = 44). The paper reports the complex ways in which endometriosis symptoms, including but not only dyspareunia, can impact upon sex, intimacy and the couple relationship, as well as partners’ emotional responses and the strategies they employed. It discusses specific and gendered ways in which heterosexual women and couples experience, navigate and manage these impacts in relation to conventions of menstrual etiquette, discourses of male sex drive and practices of emotion work. In demonstrating the range of impacts on women, partners and the couple relationship, and the importance of taking a couple-focused, relational and gendered approach, the paper will be of benefit to practitioners in healthcare and sex- and relationship-focused therapy working with women and couples living with endometriosis.
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References (59)
- An Exploration of Dyadic Relationship Approach-Avoidance Goals and Relationship and Sexual Satisfaction in Couples Coping with Endometriosis via openalex
- A systematic review on the effects of endometriosis on sexuality and couple's relationship via openalex
- Body image, self-compassion, and sexual distress in individuals living with endometriosis via openalex
- Comparison of male and female perspective in couples involved in sexual relationships and facing endometriosis via openalex
- Conducting dyadic, relational research about endometriosis: A reflexive account of methods, ethics and data analysis via openalex
- Does Endometriosis Affect Sexual Activity and Satisfaction of the Man Partner? A Comparison of Partners From Women Diagnosed With Endometriosis and Controls via openalex
- Dyspareunia and depressive symptoms are associated with impaired sexual functioning in women with endometriosis, whereas sexual functioning in their male partners is not affected via openalex
- Dyspareunia in Their Own Words: A Qualitative Description of Endometriosis-Associated Sexual Pain via openalex
- Emotional intimacy, empathic concern, and relationship satisfaction in women with endometriosis and their partners via openalex
- Endometriosis and cultural diversity: improving services for minority ethnic women via openalex
- Endometriosis-associated dyspareunia: the impact on women's lives via openalex
- Endometriosis-associated pain: a review of quality of life, sexual health and couple relationship via openalex
- Epidemiology of endometriosis via openalex
- ESHRE guideline for the diagnosis and treatment of endometriosis via openalex
- Experiences of male partners of women with endometriosis-associated pelvic pain: a qualitative study via openalex
- Exploring the impact of endometriosis on partners via openalex
- Female Perspectives on Endometriosis: Findings from the Uterine Bleeding and Pain Women'S Research Study via openalex
- Health-related quality of life burden of women with endometriosis: a literature review via openalex
- Health-related quality of life in women with endometriosis: a systematic review via openalex
- Impact of endometriosis on female sexual function: an updated systematic review and meta-analysis via openalex
- Impact of endometriosis on quality of life and mental health: pelvic pain makes the difference via openalex
- Impact of endometriosis on quality of life: a pilot study via openalex
- IMPACT OF ENDOMETRIOSIS ON SEXUAL LIFE OF WOMEN AND PARTNERS: RESULTS FROM THE ENDOVIE SURVEY via openalex
- Living with endometriosis: a phenomenological study via openalex
- Living with endometriosis: the perspective of male partners via openalex
- More than just bad sex: sexual dysfunction and distress in patients with endometriosis via openalex
- Partners matter: The psychosocial well-being of couples when dealing with endometriosis via openalex
- Priorities for endometriosis research: a proposed focus on deep dyspareunia via openalex
- Qualitative and quantitative aspects of sex life in the context of endometriosis: a multicentre case control study via openalex
- Quality of life and sexual satisfaction in women suffering from endometriosis: An Italian preliminary study via openalex
- Quality of life of women with endometriosis: comparison between epiphenomenon and severe disease via openalex
- Relational patterns of couples living with chronic pelvic pain from endometriosis via openalex
- Sexual function in endometriosis patients and their partners: effect of the disease and consequences of treatment via openalex
- Sexuality in women with endometriosis: a critical narrative review via openalex
- Sexual Satisfaction and Frequency of Orgasm in Women With Chronic Pelvic Pain due to Endometriosis via openalex
- The Burden of Endometriosis on Women's Lifespan: A Narrative Overview on Quality of Life and Psychosocial Wellbeing via openalex
- The etiquette of endometriosis: stigmatisation, menstrual concealment and the diagnostic delay via openalex
- The impact of endometriosis upon quality of life: a qualitative analysis via openalex
- The relationship between women's symptoms of endometriosis and self-esteem via openalex
- The significant effect of endometriosis on physical, mental and social wellbeing: results from an international cross-sectional survey via openalex
- The social and psychological impact of endometriosis on women's lives: a critical narrative review via openalex
- The Subjective Experience of Dyspareunia in Women with Endometriosis: A Systematic Review with Narrative Synthesis of Qualitative Research via openalex
- 'We needed to change the mission statement of the marriage': biographical disruptions, appraisals and revisions among couples living with endometriosis via openalex
- Women's experience of endometriosis via openalex
- W2580269237 via openalex
- W7065511640 via openalex
- W2765399611 via openalex
- W2477261485 via openalex
- W2205987933 via openalex
- W2948250772 via openalex
- W2950504429 via openalex
- W2995023559 via openalex
- W3044976580 via openalex
- W2105488659 via openalex
- W3119380823 via openalex
- W3159132710 via openalex
- W2049361099 via openalex
- W2018065499 via openalex
- W1503572884 via openalex
Cited by (6)
- Quality of life in women with endometriosis in Portugal: a cross-sectional study on the roles of social support and sexual satisfaction 2026
- Coping together: a qualitative exploration of challenges identified by couples living with endometriosis 2026
- The “Endophant” in the Room: A Scoping Review of Relationship Satisfaction in Couples Managing Endometriosis 2026
- Information Needs of Women Affected by Endometriosis and Their Environment: Qualitative Results from Participatory Workshops 2026
- Disclosure Dynamics of Women with Endometriosis-Induced Dyspareunia Disorder and Communication Challenges 2025
- Disregarded, devalued and lacking diversity: an exploration into women’s experiences with endometriosis. A systematic review and narrative synthesis of qualitative data 2024
Source provenance
- openalex
- last seen: 2026-06-10T17:14:06.276822+00:00
License: CC0
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