The
Endometriosis is a common gynaecological condition, which occurs when endometrium
(the lining of the womb) grows outside the womb ( De Nardi and Ferrari, 2011 ; Dunselman et al., 2014 ).
The main symptoms of endometriosis are pelvic pain, heavy and painful periods,
fatigue, dyspareunia (pain during sex) and subfertility ( De Nardi and Ferrari, 2011 ; Lemaire, 2004 ; Meuleman et al., 2009 ).
There is no definitive cure, but there are several treatments aimed at suppression
of the disease and symptom relief with varying degrees of success ( Dunselman et al.,
2014 ).
Endometriosis has a significant impact on the lives of women, and while research
suggests that couple relationships are affected ( Denny and Mann, 2007 ; Seear, 2009 ), few studies have included
this as a specific focus or have included women’s partners ( Culley et al., 2013b ). The ENDOPART study
was designed to explore the experience of heterosexual couples living with
endometriosis and was conceptualised from a relational, dyadic perspective. Using a
qualitative methodology, it aimed to explore the impact of endometriosis on women
and their male partners, contribute to the development of theory in chronic illness
and contribute to improving the wellbeing of people living with endometriosis by
providing an evidence base for improving couple support. It comprised three main
phases: first, a ‘context-setting’ phase, comprising interviews with key informants
and a systematic literature review ( Culley et al., 2013b ); second, in-depth,
semi-structured interviews with women with endometriosis and their male partners;
and finally, a stakeholder workshop was held to inform the recommendations and
outcomes from the study.
A total of 22 couples were recruited to phase 2, and partners were interviewed
separately (n = 44). Couples were recruited via the national charity, Endometriosis
UK (n = 11), NHS clinics (n = 5), other support or information groups or
organisations (n = 3) and word of mouth (n = 3). Participants were given written
information about the study and provided written consent. Interview schedules for
the women and their male partners were developed dyadically, for example, comprising
similarly themed questions as well as a sub-set of questions to allow for direct
comparison of perspectives (see further details below). Interviews were recorded,
transcribed verbatim and entered into NVivo for analysis. Ethical approval was
granted by the host university and by the East Midlands Leicester NHS Local Research
Ethics Committee UK (reference 12/EM/0015).
In designing the study, the decision was made to use individual interviews but to
design and analyse them according to a dyadic approach. We argue that dyadic
research can be defined as that which takes a dyad – that is two people in a
pre-existing relationship – as the unit of study and foregrounds this dyadic
relationship in the study design and analysis ( Eisikovits and Koren, 2010 ; Morgan et al., 2013 ; Ummel and Achille, 2016 ).
In dyadic studies, the study aims, design and analytic focus treat relational
aspects (e.g. social ties, networks, interactions, processes, etc.; Crossley, 2015 ) as the focus
of inquiry, investigating accounts dialogically and looking at partners’ meanings in
dialogue with one another. In keeping with previous literature, we argue that a
dyadic approach does not necessitate joint interviews, but that dyadic analysis can
be undertaken on separate interviews with partners in a dyadic unit, with this
approach comprising one of several possible ‘dyadic data collection modalities’
( Eisikovits and Koren,
2010 : 1643).
At the stage of study design, we purposefully adopted a two-part model of
‘methodological best practice’ in order to establish rigour during interviewing.
Within this model, we determined that where it was feasible (1) participants would
be interviewed separately and (2) interviews would occur simultaneously, and
therefore, a different interviewer would be used for each partner. While we aimed to
adhere to this model for each couple, this was not always possible due to
restrictions in participant availability (e.g. relating to childcare), researcher
availability or funding for travelling long distances (the instances in which we
were not able to adhere to this model and the reasons for this are discussed below).
This was a pragmatic approach which acknowledged that it may not always be possible
to follow best practice, but that where logistically possible we could ensure a
robust and repeatable data collection process within the resources and timescale of
a publicly funded research project.
In the following section, we discuss the rationale, implications, challenges and
benefits associated with these two aspects of the model: interviewing partners
separately and interviewing partners simultaneously with different interviewers.
Following this, the second half of this article describes our approach to
undertaking dyadic analysis, as well as challenges associated with reporting.
While separate and joint interviews each have relative advantages, family
researchers have often advocated separate interviews when researching
couple-sensitive topics (e.g. sex and intimacy) and when discussing dynamics and
power relationships ( Valentine, 1999 ). Interviewing partners separately enables each
participant to ‘tell the story from his or her own perspective, without having
to consider the reaction of the other when voicing criticism or bringing up
sensitive topics’ ( Eisikovits and Koren, 2010 : 1643–1644; see also Morris, 2001 ; Ummel and Achille,
2016 ). Using this approach increases the likelihood each interviewee will
disclose information that they would be unwilling to share in a couple interview
( Valentine, 1999 )
and potentially reduces the related ‘social desirability effect’ that would come
into play if their partner was present ( Taylor and De Vocht, 2011 ).
In an insightful piece of work, specifically exploring the gendered nature of
joint versus individual interviewing, Seale et al. (2008) compared data from
joint and solo interviews in studies about health, pregnancy and parenting
experiences. They found that in joint interviews, women were ‘more likely to
achieve quantitative dominance’ and suggest that this may be because they were
considered, by both their partner and the interviewer, to be the more
appropriate spokesperson on these topics ( Seale et al., 2008 : 124). The
experience of living with or alongside endometriosis is, of course, focused on
the health and wellbeing of the affected woman. It follows therefore that many
aspects of couples’ everyday lives are constructed around the impact of
endometriosis on the female partner. In planning our study, we felt that this
would also very likely have affected the interview dynamics, since in most cases
the female participants would likely (and justifiably) have dominated the
interviews. Seale and colleagues therefore advise that if researchers want to
find out more about men’s experiences, they should strive to design their
research, and specifically their interview questions, in a way that focuses on
men’s lives and experiences ( Seale et al., 2008 ).
Following the rationale in these studies – that individual interviews afford more
space to discuss sensitive issues and that women living with the condition may
have achieved ‘quantitative dominance’ – we interviewed all 44 participants in
our study in separate, individual interviews. This approach afforded us a range
of benefits in line with our specific objectives of wanting to address the
absence of men in previous studies on endometriosis and importantly, to hear
men’s accounts separately from those of their female partners. Data from our
interviews confirmed this decision, since participants expressed feelings and
experiences unlikely to have been forthcoming in a joint interview ( Valentine, 1999 ). For
example, both female and male partners reported concealing some aspects of
living with endometriosis from their partners. In the following excerpt, one
woman talks about how she hides the pain she experiences during sex from her partner: I’d love to be one of these couples who put everything on the
table and say ‘this is how it is, this and this and this’ but it’s
just not how we work. If I told him, if I put everything out and
said ‘when we have sex this is how I feel’, he’d run a mile, he
would never want to touch me again. (Female partner)
I’d love to be one of these couples who put everything on the
table and say ‘this is how it is, this and this and this’ but it’s
just not how we work. If I told him, if I put everything out and
said ‘when we have sex this is how I feel’, he’d run a mile, he
would never want to touch me again. (Female partner)
In the following example, this male partner discusses how he chooses not to
reveal to his partner his concerns about whether or not they will be able to
have children as a result of her endometriosis: 1
‘It’s a worry to me that we might not be able to have
children’ .
‘Have you talked to [partner] about your worry?’
‘No probably not, not as much as, it’s something I am not as open
with because, I don’t know, I don’t want her to feel like it’s her fault
because it’s not. I think if I just said that I was really worried and
the worries that I do have might make her feel bad and I don’t want that
… it’s probably something I have kept more concealed just for the sake
of sparing her feelings’ .
In discussing the impact endometriosis had on them, men frequently positioned
women’s needs as paramount and as a result some felt that expressing their own
emotions, concerns or needs within the relationship would be inappropriate or
selfish. Separate interviews therefore allowed men to express their own views
and feelings, whereas joint interviews may have resulted in a paucity of such
data. Furthermore, the interviews highlighted that men’s needs in relation to
living alongside endometriosis may be marginalised as the focus of support and
treatment resides with the female partner ( Culley et al., 2017 ). This
marginalisation may have been further exacerbated with the use of joint interviews: I’m so glad you’re asking because … like I said before the chaps
just get, you know, with doctors, nurses, everything going on, and
they’re just so worried about their wives, girlfriends and they’re
just pushed to one side and it’s so important to get their point of
view. (Male partner)
I’m so glad you’re asking because … like I said before the chaps
just get, you know, with doctors, nurses, everything going on, and
they’re just so worried about their wives, girlfriends and they’re
just pushed to one side and it’s so important to get their point of
view. (Male partner)
Interviewing partners separately also potentially reduces the related ‘social
desirability effect’ that would come into play if their partner was present,
that is, the tendency for interviewees to perform or present a particular ‘self’
deemed acceptable to their partner ( Taylor and De Vocht, 2011 ; Werner et al., 2004 ).
However, while this tendency is reduced in separate interviews, we found that
social desirability effects do not disappear completely and that this can
include the way in which an interviewee presents both themselves and their
partner to the interviewer ( Taylor and De Vocht, 2011 ). As Eisikovits and Koren (2010) have
suggested, even when separate interviews are conducted, there exists ‘a joint
relationship and history, and as a result the partner is often virtually present
in the interview space’ (p. 1644).
In our study, this manifested in participants’ desire to portray their partner
and relationship in a positive light, and this was done by both men and women
albeit in slightly different ways. Men appeared defensive and protective of
their partner especially when talking about the legitimacy of their symptoms and
their partners’ experiences with unsupportive healthcare practitioners,
employees, colleagues and friends and family. Women in comparison were more
willing to speak negatively about their partner but when they did, were likely
to include qualifying statements about how hard their partner was trying or how
supportive they were and so repositioning them in a positive light. Many
appeared to avoid or minimise speaking in a way that could be perceived as a
betrayal and to avoid being judged as a ‘bad or unmatched couple’ ( Valentine, 1999 : 71).
Nonetheless, alongside these displays, participants also spoke at length about
negative aspects of their relationship and in many cases did voice criticism of
their partner; therefore, while displays of social desirability were evident,
these did not dominate the interview and may have been more frequent in joint
interviews.
Separate interviews have been criticised for missing the opportunity to capture
interaction and observe negotiation, mediation and dominance between partners
within an interview ( Arksey,
1996 ; Morris,
2001 ; Seale et
al., 2008 ; Valentine, 1999 ). However, we would suggest that any
observational data gathered in joint interviews are
substantively different in nature from the verbal accounts
provided by interviewees and that this may therefore present challenges in
analysis; something which is seldom explored. As Morgan (2010) argues, treating
interaction as something which produces data is different from treating
interaction as data. This study employed a constructivist and
relativist philosophical position, avoiding the pursuit of an underlying ‘truth’
(see further discussion below). In keeping with this position, we argue that
interview accounts should be seen as social constructions, subject to a range of
shifting positionalities and contextual factors, and that joint accounts are not
therefore any more ‘valid’ than separate ones.
A second feature of our methodological model was that different interviewers
interview partners within a couple unit simultaneously where possible, allowing
for the logistical restrictions described above. Interviewing partners in this
way avoids the possibility of partners discussing issues with each other between
interviews and thus prevents the possibility that an interview with the second
partner is influenced by such a discussion ( Eisikovits and Koren, 2010 ; Ummel and Achille,
2016 ). As suggested above, while we are not assuming in epistemological
terms that accounts can ever be ‘untainted’ or unbiased, nevertheless we wanted,
where feasible, to give participants the opportunity to tell their story
uninhibited by prior expectations or discussions about the interview, or by
their partner’s experience of taking part.
As stated above, we were not always able to adhere to this model for practical
reasons. In practice, we achieved this intention in 17 out of 22 cases. In the
remaining 5 cases, this was not possible due to participants’ childcare
requirements and/or researcher availability or travel resources. However, in 4
of these cases, the interviews were conducted in immediate succession by the
same interviewer. In one final case, we were unable to time the interviews to
happen simultaneously or in immediate succession, and instead, they took place
4 ;days apart. Therefore, we achieved our objective of ensuring that couples
could take part without prior discussion of a partner’s interview in 21 out of
22 cases.
This approach had very practical implications. Using two researchers increases
the time, cost and organisation needed for data collection. In most cases, we
were required to co-ordinate four diaries (two researchers and both members of
the couple). This approach also doubles the travel (and if needed,
accommodation) costs for the research, something which needs to be factored into
funding applications for dyadic research. There were also practical issues for
some couples who wanted to do the interviews at home and were therefore required
to find two suitable rooms in the house for interviews to take place. This was
not always possible and so in some cases led to the need for an alternative
location for the second interview. For those with children, booking the
interviews at an appropriate time where they could both take part raised
childcare issues. Finally, in some cases, the logistics made it just too
difficult and/or expensive for two researchers to attend; for example, in two
cases, the distance to the couple was so great that to send two researchers was
not possible. One interviewer attended and conducted both set of interviews
sequentially. This adds further challenges for the researcher when interviews
are lengthy and sensitive.
The decision to use different interviewers in simultaneous interviews was also
informed by a desire to reduce the possibility of the interviewer bringing prior
knowledge, gained in the first interview and relating to the couple unit, into
the subsequent interview ( Eisikovits and Koren, 2010 ; Ummel and Achille, 2016 ). Doing so
raises ethical concerns and specifically presents potential difficulties for
confidentiality if the interviewer inadvertently discloses information
previously given by their partner ( Tolich, 2002 ; Zarhin, 2018 ). There is also the
possibility that interviewees directly ask the interviewer to tell them what
their partner said or that the interviewer is asked to take sides ( Zarhin, 2018 ). Indeed,
this was raised by one participant, despite the interviews taking place
simultaneously:
‘I wonder what sort of questions your friend’s going to ask him. Tell
me’ .
‘Quite similar questions really, it’s quite
conversational’ .
‘Will she ask him questions like “how does your wife cope with the
housework?” and things like that or would she ask him questions just
about him? … Tell me what he thinks. He won’t mind’ .
Participants may also have felt reassured and more comfortable expressing
themselves knowing that their interviewer would not, following their interview,
be then also meeting with their partner:
‘[Partner] will, we’ll be sitting there on the sofa watching the
telly – [partner] doesn’t get to hear this does she?’
‘No absolutely not’ .
‘There are certain little things that she does that I’m aware of and
I’ll say ‘oh do you need a tab [tablet]?’, and she’ll say ‘how did you
[know]?’
Using different interviewers therefore avoids a situation of a researcher being
‘stuck in the middle’ of a couple and the ethical implications this presents
( Forbat and Henderson,
2003 ).
Intro
Despite a growing literature on the value of relational data in studies of social
phenomena ( May, 2011 ;
Smart, 2007 ),
individuals still commonly constitute the basic unit of analysis in qualitative
research. Studies of illness experiences commonly give primacy to the account of the
person living with the condition, and while this allows a dedicated focus on
personal, subjective accounts, in some cases it neglects an important opportunity to
explore the relational nature of health and the specific ways in which social
networks and intimate relationships can configure lives and experiences.
Interviewing couples can offer rich relational data, which may be especially
relevant in research about chronic illness because of the potential impact of
illness on relationships with family members and partners and because of partners’
roles in managing illness and coping day to day ( Culley et al., 2017 ; Hudson et al., 2016 ).
Relationality, and the ‘relational turn’ in sociology, is concerned with
understanding the constitution of a phenomenon through figurations, networks or
social worlds and sees social relations as dynamic and fluid processes ( Dépelteau and Powell, 2013 ;
Finch, 2007 ; Roseneil and Ketokivi,
2016 ; Smart,
2007 ). A relational framing therefore requires the use of methods that are
able to effectively explore the points of connection between social actors ( Hudson et al., 2016 ; Springer et al., 2012 ).
There exists a long tradition in the sociology of the family of interviewing
multiple family members which has directly informed the use and development of
relational methods more generally ( Finch, 2007 ; Roseneil and Ketokivi, 2016 ; Smart, 2007 ; Valentine, 1999 ). However,
the literature remains incomplete and inconclusive with regard to the question of
whether interviewing jointly or separately is most desirable, with notably fewer
authors addressing the latter approach. Furthermore, few authors have tackled the
specific complexities inherent in analysing data from couple interviews. The
development of relevant methods and approaches is therefore needed in order to
further the advancement of a relational sociology of health and illness more
generally.
This article offers methodological reflections arising from a study of the impact of
the gynaecological condition endometriosis on couples (findings from the empirical
data are reported elsewhere; see Culley et al., 2013a , 2017 and Hudson et
al., 2016 ). It describes our rationale for interviewing partners
separately, as well the related implications, benefits and challenges. This article
seeks to contribute to the small body of methodological literature on interviewing
couples and on dyadic analysis and to offer insights to inform future relational and
dyadic research. Despite ethical and interpretive complexities, it is argued that
the approach we employed presents a number of advantages. We begin with an outline
of the study on which this article is based, which is followed by the rationale for
the methodological approach we adopted and the outcomes it achieved. The second half
of this article describes our approach to undertaking dyadic analysis, as well as
challenges associated with reporting the data derived from these methods. We use
examples throughout to illustrate the challenges and advantages presented by our
approach.
Dyadic
While there is now a small but growing literature on the relative benefits of
separate or joint interviews for the data collection process, much less has been
written about the process of analysis. In dyadic research, the couple is the unit of
analysis; it is not enough to sample both partners – it is the focus on
relationships and patterns within couple units that makes research dyadic – the ‘we’
of the experience ( Eisikovits
and Koren, 2010 ). Eisikovits and Koren (2010) appear to offer the most in terms of
outlining a detailed and systematic dyadic analytic method. They suggest that dyadic
analysis alters the individually based interpretation of the data and gives an
additional dimension to understanding. Epistemologically they suggest that the
researcher creates a third dyadic version, while retaining the individual accounts,
highlighting that ‘the dyadic version is more than the sum of two individual ones’
( Eisikovits and Koren,
2010 : 1652). In order to achieve this, they propose the following
strategy. First, analysis of the individual interviews in line with usual principles
of qualitative analysis, that is, a thematic ‘horizontal’ analysis, which seeks to
construct a number of common themes across the cases. In the second, dyadic stage,
the focus is on each couple unit and comprises a systematic identification of the
contrasts and overlaps between partners’ accounts. This is carried out at two
levels: the ‘textual and descriptive’ level, which they suggest reveals what they
term the ‘open reality’ of the situation, and the ‘sub-textual and interpretive’
level, which seeks to explore what they term the ‘hidden reality’ in the accounts,
that is, how the individuals are interpreting phenomena ( Eisikovits and Koren, 2010 : 1653). In the
ENDOPART study, we adapted Eisikovits and Koren’s model, as described below.
Our approach to dyadic analysis began at the level of question design ( Eisikovits and Koren,
2010 ). As well as employing a general dyadic method to questioning
(which involved asking female and male participants similarly themed questions),
we also devised a sub-set of interview questions that were designed to allow us
a more direct comparison of perspectives in the analysis. For example, we asked
participants ‘ what is the single biggest issue for you and what do you
think is the single biggest issue for your partner? ’ which allowed
us to explore the similarities and differences in the direct responses to this
question. While we recognise the limitations of such directive questions, this
strategy provided some focused data on the relative agreement within the couple
about the global impact of endometriosis on their lives as well as participants’
levels of awareness regarding their partner’s experience, when compared to the
more open data collected about a number of more specific domains such as home
life, work, childcare, healthcare and fertility (see Culley et al., 2013a , 2017 and Hudson et al., 2016 for
findings).
Second, we used the themes that emerged from the stage 1 thematic analysis to
directly inform our stage 2 dyadic analyses. While Eisikovits and Koren suggest
that dyadic analysis is conducted throughout the entire data set, our stage 1
data analysis demonstrated that certain themes were more dyadic in character
than others and that a more detailed, intense focus on these themes would
provide a richer relational account of the couple experience of endometriosis
(see Hudson et al.,
2016 , for discussion of these findings). Two themes were selected
according to their dyadic nature: that is how significant they were for the ‘we’
relationship. They were ‘sex and intimacy’ and ‘planning for and having
children’. In contrast to research where the questions are centred exclusively
on the substantive matter of couple relationships (as in Eisikovits and Koren’s
(2010) study), in our study, we were also interested in gendered
individual experiences of living with/alongside a specific chronic condition and
therefore we also sought to retain an empirical focus on women’s and men’s
individual accounts as well as exploring the impact at the couple level. This
decision was therefore led by our specific study objectives, but means that only
specific elements of our data were analysed dyadically and as such our approach
signifies a slight departure from Eisikovits and Koren’s approach.
Eisikovits and Koren’s model focuses on the identification of contrasts (opposing
descriptions of situations, phenomenon, feelings and experiences) and overlaps
(converging descriptions of situations, phenomenon, feelings and experiences) in
partners’ accounts, and we followed this approach for our two dyadic themes. A
further adaption we made to their model was the identification of
‘ omissions ’ as a particular kind of contrast in partners’
accounts, and one which we suggest represents a new analytical category in
dyadic research. Omissions were represented by topics that were discussed by one
partner but not the other. This allowed us to further interrogate the different
emphasis each partner gave to particular issues. For example, with regard to sex
and intimacy, analysis revealed that men frequently omitted several topics that
their partners discussed, including bleeding during or after sex, seeking advice
and support externally and the loss of intimacy. With regard to planning for and
having children, men frequently omitted discussion about biographical
disruption, the challenges in negotiating fertility-compromising pain treatments
and trying to conceive, and a lack of support or pressure from families, whereas
women were more likely to omit discussions about the financial implications
(e.g. of in vitro fertilisation (IVF)) and either their or their partners’
coping strategies. These were not identified at the general level, that is, by
comparing the data set from all men with the data set from all women, but at the
couple level by identifying contrasts, overlaps and
omissions relating to these factors between partners’ accounts. Exploring the
degree of completeness in accounts ( Van Dijk, 2001 ) illuminates the ways in
which participants’ narratives are partial. The identification of what is
omitted is insightful in understanding the factors that do and do not constitute
individuals’ social worlds: ‘what is left unsaid is often more important that
what is said’ ( Huckin,
2002 : 162). In a dyadic study, this is of paramount importance:
comparing partners’ accounts in this way allows for an exploration of the
factors which do and do not constitute each individual’s experience of
endometriosis and how these might differ between partners within a couple unit.
Furthermore, including the analytic category ‘omission’ was necessary in order
to avoid an incomplete coding exercise. It became apparent early on in the
activity that if the data could only be coded to ‘contrast’ or ‘overlap’, this
would have left a considerable amount of data uncoded.
Finally, as described above, Eisikovits and Koren (2010) propose that stage 2 of the analysis
should involve the exploration of contrasts and overlaps at two different
levels: the ‘textual and descriptive’ and the ‘sub-textual and interpretive’
level (p. 1653). We opted not to systematically apply the two levels of analysis
in our study for two reasons. This was partly practical, due to the size of our
sample (n = 22 couples, 44 interviews) and the resource implications of focusing
in such a detailed way on a data set of this size, but mainly this related to
the ontological and epistemological tensions that this approach presents ( Bjørnholt and Farstad,
2014 ; Manning and
Kunkel, 2015 ). Seeking to explore the interpretive or ‘hidden
meaning’ in the accounts was not in keeping with the constructivist
philosophical position we had adopted in the research more generally ( Braybrook et al., 2017 ).
We proposed that the cultural repertoires which people draw upon are important
in understanding illness experiences and therefore decided to keep our analysis
of overlaps, contrasts and omissions at the textual and descriptive level in
order to compare the ways in which couples discussed and presented their
experiences and perceptions in the interviews, but not to attempt to ‘go beyond’
these representations in our analysis. While we recognise the existence of a
relationship (albeit a complex and contested one) between people’s
representations and their experiences ( Bjørnholt, 2011 ), we were not attempting
to directly assess or evaluate these ‘real life’ experiences via the couples’
accounts.
Overall, this approach to dyadic analysis – exploring contrasts, overlaps and
omissions in partners’ accounts – enabled a detailed insight into the impact of
the condition on the couple relationship. 2 It illuminated a range of shared and different interpretations,
experiences, understandings and meanings within each couple unit. These kinds of
analyses allow a consideration of how life with or alongside the condition can
result in markedly different experiences for each partner and contrasting coping
strategies which may cause challenges for couple wellbeing, and can produce and
re-produce particular gendered subjectivities.
Interviewing members of a dyad separately causes complexities in subsequently
reporting the data (see, for example, Saunders et al., 2015 ; Ummel and Achille,
2016 ). An accepted convention when reporting quotations from interviews
is to assign a descriptive label to the quotation, providing the reader with
contextual or demographic information about the participant (e.g. individual’s
age, length of relationship and time since diagnosis). This has not been
possible because identifying the data in this way, especially in a small study,
may allow partners to identify one another and thereby know exactly what their
partner said in the interview.
An alternative might be to use a unique identifier code or a pseudonym; however,
if couple quotations are presented together (e.g. male 1 and female 1) and a
participant recognises their own quotation, they will therefore also be able to
employ ‘jigsaw identification’ to identify the other quotation as coming from
their partner ( Forbat and
Henderson, 2003 ; Saunders et al., 2015 ). If a participant could identify one
quotation from their partner, they would then also know that all other
quotations assigned to that particular unique identifier or pseudonym were also
from their partner.
These issues are all the more significant in a study which included distressing
accounts and the potential for this information, if identities were uncovered,
to have profound effects on relationships (see also Ummel and Achille, 2016 ). For example,
one partner spoke several times about considering ending their relationship.
Although we alerted couples, in the information we provided prior to them giving
consent, to the slight possibility that they may identify one another from their
quotations, we could not have fully anticipated the extent of the impact of
endometriosis on some couples and the potential implications of participants
identifying their partner’s accounts. Data management and anonymity therefore
became of added importance when reporting findings at conferences and in
publications. Because of the challenges associated with descriptive labels,
unique identifiers or pseudonyms, and due to the enhanced relational sensitivity
of the data, we have used ‘female participant’ and ‘male participant’ to present
findings in a way that does not compromise internal confidentiality ( Tolich, 2004 ). In
addition, we have limited the extent to which we present accounts from both
partners side by side, only doing so when necessary. In these cases, we have
also avoided the use of direct quotations and removed or modified specific
details deemed to be highly identifiable and/or relationally sensitive, while
still seeking to provide a valid illustration of the arguments presented. While
this approach may compromise the integrity of the data, and is a difficult
balance to strike, ultimately we have prioritised ethical defensibility over
richness in reporting dyadic analysis ( Saunders et al., 2015 ; Ummel and Achille,
2016 ).
Conclusions
The relational turn in the social sciences requires us to consider more effective
ways of understanding the complexity of social life and social relations between
individuals. In the context of research about long-term conditions such as
endometriosis, this can facilitate an improved understanding of the ways in which
individuals, couples and families navigate a complex web of symptoms, diagnoses and
medical and non-medical management. While individual, solo interviews offer
privileged access to individual narratives about lives shaped by chronic illness, a
dyadic approach can enrich research accounts and offer a means by which to
understand the wider social and relational implications of health and illness as it
impacts on social networks and how these connections in turn may act as a source of
support or a source of additional stress.
Despite these potential advantages, there is a paucity of literature on interviewing
couples and the specific methodological challenges of this approach, especially in
relation to data analysis. There is a particular gap in the methodological
literature regarding the unique contribution and advantages offered by interviewing
partners in a dyad separately . Reflections from this study
therefore contribute to a small body of methodological scholarship on interviewing
couples and offer novel insights on the practical, methodological and ethical
dilemmas involved in conducting separate interviews about chronic illness with both
partners in a heterosexual couple. We were able to explore accounts that were
unlikely to have emerged in joint interviews, and which validate the decisions made
regarding separate, simultaneous interviews. This approach allowed participants to
articulate perceptions and experiences considered to be relationally or emotionally
highly sensitive and to share problematic aspects of relationships, and permitted
men’s accounts to be heard unmediated by women’s participation. The best practice
approach employed, coupled with a dyadic analysis employing a careful and detailed
focus on partners’ accounts in relation to one another, allowed a unique insight
into how couples navigate this common chronic condition.
This approach is not without its challenges, including the display of social
desirability ‘talk’ within the interviews, the need to carefully consider logistical
and resource implications in planning and managing the project and specific ethical
concerns regarding anonymity when reporting. Some of the challenges and limitations
of separate interviews may be addressed by combining both joint and separate
interviews in the same study (see for example Butt and Chesla, 2007 ). Such a strategy
could offer a way to capture relational accounts while minimising the unique
limitations of each approach. However, it may present additional challenges and
complexities and its appropriateness will depend on the aims of the study in
question ( Ummel and Achille,
2016 ).
Despite the challenges presented, interviewing partners separately and undertaking
dyadic analysis offered us an effective method for the exploration of couple
experiences of endometriosis. Adopting a model of methodological best practice
afforded us some flexibility when negotiating the realities of carrying out funded
health research and allowed us to make decisions guided by a pre-agreed protocol,
supported by existing research evidence, which was tailored to our specific research
objectives. This approach also allowed us the space to systematically record,
reflect upon and report the success of our design and its associated limitations and
offered us a means to gain detailed insight into the impact of the condition on the
couple relationship. We would therefore recommend this approach to others who wish
to consider the use of such a method.