Disclosure Dynamics of Women with Endometriosis-Induced Dyspareunia Disorder and Communication Challenges

Anjali Joshi, Anindya Deb
In: Women's Reproductive Health · 2025 · vol. 13(2) , pp. 408–425 · doi:10.1080/23293691.2025.2578472 · W4415966143
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This paper explores how women with endometriosis-induced dyspareunia disorder experience and communicate about their pain, highlighting specific communication challenges they encounter.

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This qualitative study examined the motivations and relationship dynamics influencing disclosure decisions among 23 women diagnosed with endometriosis-induced dyspareunia. Utilizing the Disclosure Process Model, the researchers found that participants often navigated multiple goals, such as seeking support or testing their partners, while relational factors significantly shaped whether they chose to reveal their condition. The authors note that current assistance methods require improvement, specifically calling for enhanced social support systems to better address these communication challenges. This paper is centrally about endometriosis — specifically focusing on the psychosocial aspects of dyspareunia and patient-provider or partner communication regarding this symptom.

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Abstract Disclosure is central to managing concealable stigmatized identities. Women with endometriosis-induced dyspareunia (EID) often hesitate to disclose their condition due to stigma and relational concerns. Using the Disclosure Process Model and a pragmatic feminist lens, this study investigated the non(disclosure) motivations among 23 women with EID and how relationship dynamics shape these decisions. Findings reveal that women often have multiple goals (to receive support, to test their partner) when disclosing, while relationship dynamics significantly influence their decisions. Change is needed in the ways to assist with disclosure, including a greater emphasis on developing social support for women with EID. Acknowledgment We thank all the women who responded to our survey and interviews and shared their experiences. We also thank all the individuals who directly or indirectly contributed to the completion of this study. We also thank the editors and reviewers of this journal for accepting our abstract and giving us the opportunity to submit our work for further consideration. Disclosure Statement No potential conflict of interest was reported by the authors. Data Availability Statement The full qualitative dataset that supports the findings of this study is available from the corresponding author, Anindya Deb, upon a reasonable request.

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Condition tags

endometriosisdyspareunia

Citation neighborhood

Papers in the corpus that this work cites (lower rings, blue) and that cite this one (upper rings, green). Dot size scales with the paper's in-corpus citation count — bigger dot = more influential within the endo/adeno field. Click a dot to open that paper. [ expand to 2 hops ] — adds papers reached through this work's immediate citers/citees. Heavier; up to 60 extra dots.

References (55)

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