How Women Suffering from Endometriosis Disclose about their Disorder at Work
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⤵ 17 in-corpus citations
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This study explored how women with endometriosis disclose their condition at work, identifying five communication themes influenced by workplace environment.
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Abstract
Endometriosis is a stigmatized health disorder that impacts approximately 10% of the female population around the world and is characterized by severe physical and psychological symptoms. Through the interpretive perspective, this study investigated how women with endometriosis disclose about their disorder in the workplace. Potential participants were recruited using Reddit and Facebook. Participants (N = 119) completed an anonymous, online, open-ended questionnaire. Open-ended responses were analyzed using thematic analysis. Five themes emerged related to how endometriosis patients disclose about their disorder at work: 1) frequency of communication 2) level of openness 3) type of content shared 4) preferred setting for conversations and 5) preferred conversational partner. Furthermore, the findings revealed that disclosure about endometriosis is significantly impacted by workplace environment. These findings are contextualized by the theoretical framework provided by the disclosure process model. Overall, this study offers a starting point for deeper empirical investigation of mechanisms influencing disclosure and informs future research directed toward developing interventions that may enable organizations to better accommodate affected employees.
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Cited by (17)
- How are workplace policies, organizational dysfunction, and lack of accommodations for employees with endometriosis associated with fertility-related needs, absenteeism, and productivity in the workforce? A scoping review 2026
- Workplace mistrust and barriers to implementing workplace guidelines for endometriosis and chronic pelvic pain a mixed methods intervention study in an Australian University 2026
- “Will HR Know About This?” Lessons from implementing endometriosis workplace guidelines in an Australian University 2026
- Trabalho e endometriose: saúde e doença das mulheres diante das contradições do capitalismo 2025
- Illness Invalidation and Demoralization in Endometriosis: Does Self-Compassion Help? 2025
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- Debunking the “Mystical Condition” of Endometriosis: What People Living with Endometriosis Want You to Truly Understand 2025
- “Out of Sight, out of Mind?” Menstrual Leave vs. Workplace Supports for Employees with Endometriosis 2025
- Disclosure Dynamics of Women with Endometriosis-Induced Dyspareunia Disorder and Communication Challenges 2025
- The impact of reproductive health needs on women’s employment: a qualitative insight into managing endometriosis and work 2025
- The experiences of women with endometriosis in the workplace: A qualitative metasynthesis 2025
- From Insight into Action: Understanding How Employer Perspectives Shape Endometriosis-Inclusive Workplace Policies 2025
- “Activism Was a Survival Strategy”: Chronic Illness and the Power of Endometriosis Activism as Work 2025
- A COM-B and Theoretical Domains Framework Mapping of the Barriers and Facilitators to Effective Communication and Help-Seeking Among People With, or Seeking a Diagnosis Of, Endometriosis 2024
- SOCIAL MEDIA SUPPORT FOR WOMEN WITH ENDOMETRIOSIS: A SYSTEMATIC REVIEW 2023
- A qualitative study of endometriosis-related pain 2023
- “So It’s Like a Painful Period?” Living with Endometriosis: My Journey 2023
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