Barriers to self‐management of patients with adenomyosis: A qualitative study

Rong Huang, Xiaohan Li, Hui Jiang, Quanlei Li
Nursing open · 2021 · vol. 9(2) , pp. 1086–1095 · doi:10.1002/nop2.1148 · PMID:34859610 · W3216043332
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⚙ AI-generated summary by claude@2026-06, 2026-06-07 ⓘ

This qualitative study identified lack of disease knowledge, daily life challenges, negative emotions, and unmet support needs as key barriers to adenomyosis self-management for patients in China.

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Abstract

AIM: This study aims to explore the barriers to self-management of patients with adenomyosis. DESIGN: Phenomenological qualitative methodology. METHODS: Totally, 18 patients with diagnosis of adenomyosis participated in this study. We used purposive sampling for recruitment until data saturation. A qualitative research was conducted using in-depth interviews, which were tape recorded and transcribed verbatim. Colaizzi's method was used to analyse the contents of interviews. RESULTS: This study presented important information about the barriers to self-management of patients with adenomyosis in China. Four themes were identified: "lack of disease knowledge," "challenges and dilemmas of daily life," "multidimensional negative emotions" and "personalized supporting requirements." CONCLUSION: The study provided new insights into the barriers to self-management of patients with adenomyosis, including physical, psychological, daily life and self-image problems, and the patients need emotional and social support, which recommended that professionals should provide authoritative health education and multiple support.

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Condition tags

adenomyosis

MeSH descriptors

Adenomyosis Adenomyosis Self-Management Emotions Humans Qualitative Research Self Concept

Citation neighborhood

Papers in the corpus that this work cites (lower rings, blue) and that cite this one (upper rings, green). Dot size scales with the paper's in-corpus citation count — bigger dot = more influential within the endo/adeno field. Click a dot to open that paper. [ expand to 2 hops ] — adds papers reached through this work's immediate citers/citees. Heavier; up to 60 extra dots.

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