Enhancing collaboration in endometriosis research through the initiative of the World Endometriosis Research Foundation Endometriosis Phenome and Biobanking Harmonisation Project (EPHect)

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The World Endometriosis Research Foundation's EPHect initiative aims to improve global collaboration in endometriosis research by harmonizing phenotyping and biobanking.

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The paper describes the World Endometriosis Research Foundation Endometriosis Phenome and Biobanking Harmonisation Project (EPHect) and focuses on initiatives to enhance collaboration in endometriosis research through coordinated phenome and biobanking harmonization. It presents a high-level overview of the project framework and the participating investigators/organizations involved in this effort. The paper includes a funding statement from WERF and reports author roles and potential conflicts of interest, explicitly noting that some relationships to pharmaceutical or other research funding are not related to the work. This paper is centrally about endometriosis — it specifically describes the EPHect initiative aimed at harmonizing endometriosis phenome and biobanking resources to support collaborative research.

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Funding

This work was funded by the World Endometriosis Research Foundation.

Conflict

L.H. receives remuneration from WERF as the EPHect programme manager and has provided consultancy to Gesynta Pharma AS, which has no bearing on this work. D.P. reports no conflict of interest. K.L.B.-T. is a trustee of WERF. S.A.M. is a trustee of WERF, co-principal investigator of EPHect, a past president of the World Endometriosis Society (WES), and a member of the scientific advisory board of NextGen Jane; she has received presentation remuneration from Gideon Richter, and research funding from AbbVie, LLC, the Marriott Family Foundations, the USA National Institutes of Health (NIH), and the USA Peer Reviewed Medical Research Program (PRMRP), none of which is related to this work. E.G. is a member of the scientific advisory board of FimmCyte AG and a trustee of WERF.

Contrib Info

Lone Hummelshoj, World Endometriosis Research Foundation, London, UK. Daniëlle Peterse, Vascular Biology Program, Boston Children’s Hospital, Department of Surgery, Harvard Medical School, Boston, MA, USA. Kaylon L Bruner-Tran, World Endometriosis Research Foundation, London, UK; Department of Obstetrics and Gynecology, Vanderbilt University Medical Center, Nashville, TN, USA. Stacey A Missmer, World Endometriosis Research Foundation, London, UK; Department of Obstetrics and Gynecology, University of Michigan, Ann Arbor, MI, USA; Department of Epidemiology, Harvard TH Chan School of Public Health, Boston, MA, USA. Erin Greaves, World Endometriosis Research Foundation, London, UK; Division of Biomedical Sciences, Warwick Medical School, University of Warwick, Coventry, UK.

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Condition tags

endometriosis

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References (12)

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europepmc
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