Cross-cultural adaptation of the Swedish version of Endometriosis Health Profile-30

Hanna Grundström, Anna Rauden, Matts Olovsson
Journal of obstetrics and gynaecology : the journal of the Institute of Obstetrics and Gynaecology · 2020 · vol. 40(7) , pp. 969–973 · doi:10.1080/01443615.2019.1676215 · PMID:31909643 · W2999518619
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⚙ AI-generated summary by claude@2026-06, 2026-06-07 ⓘ

This study culturally adapted and pre-tested the Swedish version of the Endometriosis Health Profile-30, finding it accessible and well-accepted with a minor wording change recommended.

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Abstract

The Endometriosis Health Profile-30 (EHP-30) is focusing on the effect of endometriosis symptoms upon health-related quality of life. The aim of this study was to pre-test and culturally adapt the Swedish version of EHP-30. Eighteen Swedish-speaking women with laparoscopically verified diagnosis of endometriosis answered the questionnaire and 17 were interviewed regarding their interpretations of the questionnaire. Demographics, distribution of answers, roof-ceiling effects and missing answers were analysed. The interviews were analysed using the qualitative approach proposed by Beaton et al. The Swedish version of EHP-30 was experienced as accessible with 100% data completeness and a roof effect (11%) in one dimension. Some women had difficulties with the instructions and one word should be replaced in order to culturally adapt the questionnaire. In conclusion, the Swedish version of EHP-30 is a useful and well-accepted questionnaire for women with endometriosis in Sweden, but a minor change of wording is recommended. Impact statementWhat is already known on this subject? Cross-cultural adaptation and psychometric testing are crucial when introducing translated questionnaires. Cross-cultural adaptation is a process that looks at both translational and cultural issues when a questionnaire is being prepared for use in another country than the original. EHP-30 has been translated into Swedish but has not yet been cross-culturally adapted.What do the results of this study add? The Swedish version of EHP-30 was experienced as a useful and well-accepted questionnaire for women with endometriosis, but a minor change of wording is recommended in one question to make the questionnaire convergent with the original version.What are the implications of these findings for clinical practice and/or further research? The Swedish version of EHP-30 is user friendly and can be used in clinical practice after a minor change of wording. Then, it should also undergo psychometric testing.

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Outcome instruments

EHP-30

Condition tags

endometriosis

MeSH descriptors

Cross-Cultural Comparison Endometriosis Endometriosis Health Status Quality of Life Surveys and Questionnaires Surveys and Questionnaires Adult Female Humans Language Middle Aged Patient Satisfaction Sweden Young Adult

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