A self-administered questionnaire to measure the painful symptoms of endometriosis: Results of a modified DELPHI survey of patients and physicians

A Fauconnier, Arnaud Fauconnier, Stéphanie Staraci, S Staraci, E Daraï, Émile Daraï, Philippe Descamps, P Descamps, Michelle Nisolle, M Nisolle, P Panel, H Roman, Horace Roman, R Boulkedid, Rym Boulkedid
Journal of gynecology obstetrics and human reproduction · 2017 · vol. 47(2) , pp. 69–79 · doi:10.1016/j.jogoh.2017.11.003 · PMID:29133195 · W2767450528
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⚙ AI-generated summary by claude@2026-06+body, 2026-06-07 ⓘ

A modified DELPHI survey of endometriosis patients and physicians resulted in a 21-question questionnaire measuring spontaneous pelvic pain, dysmenorrhea, dyspareunia, painful bowel symptoms, and other endometriosis-related pain.

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⚙ AI-generated deep summary by claude@2026-06, 2026-06-07 ⓘ

The study aimed to develop a self-administered questionnaire to measure patients’ painful symptom experiences in endometriosis by using a two-round modified Delphi process. Women with surgically confirmed endometriosis and French expert gynecologists rated statement validity and clarity, with initial items derived from patients’ verbal pain narratives, and subsequent rounds selecting and rewording items into a final set organized into four symptom dimensions (spontaneous pelvic pain and dysmenorrhea, dyspareunia, painful bowel symptoms, and other symptoms). Eleven of 48 statements were selected after the two Delphi rounds and further revisions produced a final questionnaire of 21 questions, including an English UK version via translation and back-translation. A major limitation noted by the authors’ design is that participants were recruited from a patient association and participating physicians, which may affect representativeness. This paper is centrally about endometriosis—specifically the development of a patient-centered questionnaire to quantify painful endometriosis symptoms.

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Condition tags

dysmenorrheadyspareuniaendometriosischronic_pelvic_pain

MeSH descriptors

Dyspareunia Endometriosis Pain Measurement Pelvic Pain Psychometrics Surveys and Questionnaires Adult Delphi Technique Dysmenorrhea Dysmenorrhea Dysmenorrhea Dyspareunia Dyspareunia Endometriosis Female Humans Middle Aged Pain Measurement Pain Measurement Pelvic Pain

Citation neighborhood

Papers in the corpus that this work cites (lower rings, blue) and that cite this one (upper rings, green). Dot size scales with the paper's in-corpus citation count — bigger dot = more influential within the endo/adeno field. Click a dot to open that paper. [ expand to 2 hops ] — adds papers reached through this work's immediate citers/citees. Heavier; up to 60 extra dots.

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