Women's Use of Self-Care Interventions for Endometriosis Pain in the United States

Madeline Norman, Norman M, Omid Razmpour, Jeanette M. Olsen, Olsen JM
Nursing for women's health · 2021 · vol. 25(5) , pp. 346–356 · doi:10.1016/j.nwh.2021.07.008 · PMID:34437866 · W3193306520
Observational OA: closed CC0 ⤵ 8 in-corpus citations
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This study investigated the prevalence and types of self-care interventions used by women in the United States to manage endometriosis pain.

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Abstract

OBJECTIVE: To identify self-care interventions women living in the United States are using to manage endometriosis-related pain, describe frequency of use, and determine perceived effectiveness. DESIGN: Mixed-methods design with an online survey. SETTING: A survey link was posted on endometriosis support group Facebook pages. PARTICIPANTS: The online survey was completed by 98 women living in the United States who were members of Facebook support groups. MEASUREMENTS: Quantitative measures included demographic and health-related characteristics; self-care intervention frequency of use and perceived effectiveness; knowledge, confidence, and support managing endometriosis symptoms; pain intensity; and quality of life (QOL) operationalized with the Endometriosis Health Profile-30. Descriptive statistics and correlation coefficients were used to analyze data. Qualitative perspectives were captured through open-ended questions and analyzed for themes. RESULTS: Women used an average of 5.8 self-care interventions more than once per week. Heat, rest, over-the-counter pain medications, and diet changes were perceived as most effective, with >75% reporting at least slight improvement. Frequent use of multiple strategies was significantly correlated with worse scores for pain-related QOL (p < .01), all other QOL dimensions (p < .01), and less confidence in one's ability to control symptoms (p < .05). Endometriosis pain management perspectives showed three themes: Daily Struggle With Mental and Physical Health, Lack of Knowledge and Understanding From Health Care Providers, and Lack of Understanding From Everybody Else. CONCLUSION: These results strengthen evidence for the effectiveness of heat, rest, and dietary changes for endometriosis-related pain and underscore an individual's desire for support and understanding from health care professionals, family, and friends. Nurses can provide evidence-based self-care intervention teaching to help mitigate endometriosis-related pain, prevent adverse effects, and assist individuals in discovering what works for them. It is imperative that nurses deliver and advocate for well-informed, empathetic, and supportive care from all health care professionals.

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Condition tags

endometriosis

MeSH descriptors

Endometriosis Pain Pain Management Quality of Life Quality of Life Self Care Adult Adult Endometriosis Endometriosis Endometriosis Endometriosis Female Female Humans Humans Interviews as Topic Interviews as Topic Middle Aged Middle Aged

Citation neighborhood (2-hop)

Papers in the corpus that this work cites (lower rings, blue) and that cite this one (upper rings, green). Dot size scales with the paper's in-corpus citation count — bigger dot = more influential within the endo/adeno field. Click a dot to open that paper. Outer rings show 2-hop neighbours — papers reached through the immediate citers/citees. [ collapse to 1-hop ]

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