The development of a comprehensive multidisciplinary endometriosis and chronic pelvic pain center

Jessica Opoku‐Anane, Megan S. Orlando, Jeannette Lager, Felicia Lester, Judith Cuneo, Lauri A. Pasch, Liina Pōder, Brooke Peterson, Lee Hullender Rubin, Linda C. Giudice
In: Journal of Endometriosis and Pelvic Pain Disorders · 2020 · vol. 12(1) , pp. 3–9 · doi:10.1177/2284026519899015 · W2999759250
article OA: bronze CC0 ⤵ 10 in-corpus citations
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This paper describes the development of a multidisciplinary endometriosis and chronic pelvic pain center, detailing its collaborative care components and showing increased patient encounters since its establishment.

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Abstract

Endometriosis affects 2%–10% of reproductive-aged women and is one of the leading causes of chronic pelvic pain. Given the extensive diagnostic challenges, multi-system nature of the disease, and significant impacts on quality of life, there has been a long-standing recognition of the need for integrated and specialty care for women living with endometriosis. We present our experience with the development of a multidisciplinary center for endometriosis and chronic pelvic pain at the University of California San Francisco. We describe the core components of this treatment model, including (1) methods for clinical collaboration across diagnostic, medical, and surgical subspecialties; (2) promotion of surgical excision of endometriosis; (3) establishment of a patient navigator; (4) utilization of psychological interventions and integrative medicine; and (5) health care provider and community training. Since the introduction of the endometriosis center in November 2016, outpatient encounters for patients with a primary diagnosis of endometriosis increased from 2761 in 2016 to 3905 in 2018, demonstrating high demand for these services. We also highlight opportunities for collaborative research through de-identified patient surveys, clinical data, and biospecimen collection.

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Condition tags

endometriosischronic_pelvic_pain

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