Health-related quality of life in endometriosis: The influence of endometriosis-related symptom presence and distress

Van Niekerk, Leesa, Lucy Johnstone, Mandy Matthewson
Journal of health psychology · 2022 · vol. 27(14) , pp. 3121–3135 · doi:10.1177/13591053221085051 · PMID:35341340 · W4221119901
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⚙ AI-generated summary by claude@2026-06, 2026-06-08 ⓘ

In 318 women with endometriosis, greater symptom burden and distress, somatic concern, depression, pain, and bloating were associated with poorer health-related quality of life.

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Abstract

This international cross-sectional study examined the relationships between endometriosis-related symptom experience and health-related quality of life (HRQoL) in 318 women with endometriosis. Measures of symptom burden and distress, pain, psychological wellbeing, and HRQoL were collected via an online survey. Age, symptom duration, burden, and distress were associated with lower psychological wellbeing and HRQoL, with small to medium effect sizes. Somatic concern, depression, pain, dysmenorrhea, clitoral pain, dyspareunia, and bloating were found to be significant correlates of HRQoL. The findings highlight the importance of considering a broader range of endometriosis-related symptoms than pain alone and the ongoing need to reduce diagnostic delay in endometriosis.

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Condition tags

endometriosischronic_pelvic_paindysmenorrheadyspareunia

MeSH descriptors

Endometriosis Endometriosis Endometriosis Endometriosis Quality of Life Quality of Life Quality of Life Quality of Life Cross-Sectional Studies Cross-Sectional Studies Cross-Sectional Studies Delayed Diagnosis Delayed Diagnosis Delayed Diagnosis Female Female Female Humans Humans Humans

Citation neighborhood

Papers in the corpus that this work cites (lower rings, blue) and that cite this one (upper rings, green). Dot size scales with the paper's in-corpus citation count — bigger dot = more influential within the endo/adeno field. Click a dot to open that paper. [ expand to 2 hops ] — adds papers reached through this work's immediate citers/citees. Heavier; up to 60 extra dots.

References (37)

Cited by (20)

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