Patients’ perspectives of endometriosis-related fatigue: qualitative interviews

Dana DiBenedetti, Ahmed M Soliman, Catherine Gupta, Eric S Surrey
Journal of patient-reported outcomes · 2020 · vol. 4(1) , pp. 33 · doi:10.1186/s41687-020-00200-1 · PMID:32377820 · W3021076771
article OA: gold CC0 ⤵ 22 in-corpus citations
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⚙ AI-generated summary by claude@2026-06, 2026-06-07 ⓘ

This qualitative study of 22 women found that endometriosis-related fatigue is pervasive, impacting daily, social, physical, and emotional functioning, as well as relationships and work or school.

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⚙ AI-generated deep summary by claude@2026-06, 2026-06-07 ⓘ

This qualitative study used in-person semistructured interviews with 22 adult females (18–49) who reported moderate to severe endometriosis-related pain and had self-reported laparoscopic/surgically confirmed endometriosis, recruited via qualitative research firms in Raleigh, North Carolina, and Dallas, Texas. The key finding was that all 22 participants described experiencing endometriosis-related fatigue, with 21 reporting it was at least “somewhat bothersome,” and most describing impacts across day-to-day, social, and physical activities, mood and emotions, relationships, and work or school. The authors analyzed transcripts using an iterative coding process with double-coding of 10% for consistency and noted the need for future studies to measure how fatigue changes with treatment. This paper is centrally about endometriosis — it focuses specifically on patients’ perspectives and reported impacts of endometriosis-related fatigue.

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Abstract

BACKGROUND: Endometriosis-related fatigue is common and negatively impacts multiple areas of many women's lives, particularly in day-to-day activities, social activities, physical activities, mood and emotions, relationships with family or partners, and work or school. Multiple studies have documented fatigue as a significant symptom of endometriosis. Additional research is needed to better understand endometriosis-related fatigue and its impacts on patients. METHODS: This qualitative study consisted of individual in-person semistructured interviews conducted with 22 adult females reporting moderate to severe endometriosis-related pain. Women with self-reported, surgically confirmed endometriosis and moderate to severe endometriosis-related pain were recruited from qualitative research firms in two locations in the United States. Qualified subjects participated in semistructured interviews that lasted approximately 45 min each. Interviews were audio recorded and transcribed for qualitative analysis. RESULTS: All 22 participants reported experiencing fatigue related to their endometriosis. While the degree of severity of their endometriosis-related fatigue varied, 21 of the 22 participants stated that it was at least "somewhat bothersome." Most participants noted an impact from endometriosis-related fatigue on day-to-day activities, social activities, physical activities, mood and emotions, relationships with family or partner, and work or school. CONCLUSIONS: The data presented here indicate that endometriosis-related fatigue has a pervasive impact on the functioning of women living with this condition. Future studies should measure any changes in fatigue that may be associated with treatment for endometriosis.

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Condition tags

endometriosis

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