Living with Endometriosis: The Role of the Internet in Supporting the Diagnosis and Treatment Process

Laura Sbaffi, Kathleen King
In: Journal of Consumer Health on the Internet · 2020 · vol. 24(4) , pp. 370–390 · doi:10.1080/15398285.2020.1816803 · W3112210629
article OA: closed CC0 ⤵ 13 in-corpus citations
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⚙ AI-generated summary by claude@2026-06, 2026-06-09 ⓘ

This study found that individuals with endometriosis actively seek information and support online, particularly from national endometriosis organizations and their social media, though diagnostic delays and misinformation persist.

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Abstract

Those living with endometriosis turn to online resources for information and support. Despite an abundance of information, delays in diagnosis and perpetuation of untruths remain. This study aims to assess and evaluate the role of the Internet in the diagnosis, treatment options and support of people living with endometriosis. The results of this mixed-methods study show that people are very active information seekers with the majority favoring national endometriosis websites and their associated Facebook accounts. There is a positive attitude toward information and sharing experiences online, but women trust official endometriosis organizations more than other resources on the Internet.

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Condition tags

endometriosis

Citation neighborhood

Papers in the corpus that this work cites (lower rings, blue) and that cite this one (upper rings, green). Dot size scales with the paper's in-corpus citation count — bigger dot = more influential within the endo/adeno field. Click a dot to open that paper. [ expand to 2 hops ] — adds papers reached through this work's immediate citers/citees. Heavier; up to 60 extra dots.

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