Treatment of endometriosis involving a self-help group positively affects patients' perception of care

M B Wingfield, Wingfield MB, M. B. Wingfild, C Wood, Wood C, LM Henderson, Henderson LS, L S Henderson, Richard M. Wood, R M Wood, Wood RM
Journal of psychosomatic obstetrics and gynaecology · 1997 · vol. 18(4) , pp. 255–258 · doi:10.3109/01674829709080696 · PMID:9443134 · W1982120241
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A co-operative endometriosis clinic integrating a patient self-help group demonstrated high patient satisfaction and significant demand for this model of care.

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Abstract

Chronic endometriosis is notoriously difficult to treat and many women become frustrated with their care. We established an Endometriosis Clinic as a co-operative venture between a group of gynecologists and a self-help group, the Endometriosis Association of Victoria. The aim of this study was to examine the clinical characteristics of women attending the clinic and to determine patient satisfaction with the clinic. The study involved a review of patient histories and a postal satisfaction questionnaire. Three hundred and fourteen women attended the clinic during its first year of operation. Seventy per cent had had a diagnosis of endometriosis made elsewhere and attended the clinic for a second opinion or for more information. Eighty-six per cent presented with symptoms suggestive of endometriosis, 8% presented with infertility and 6% complained of both symptoms and infertility. When patients were asked to score the overall service provided by the clinic on a scale of 1 to 10, scores ranged from 4 to 10 with a mean of 8.7. Ninety-seven per cent of women felt that the consultation with a counselor from the Endometriosis Association was a major source of satisfaction. We have documented a significant demand for and high patient satisfaction with the concept of integrating a patient self-help group in the standard model of health care for endometriosis.

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Condition tags

endometriosisinfertility

MeSH descriptors

Endometriosis Patient Satisfaction Patient Satisfaction Self-Help Groups Self-Help Groups Adult Adult Chronic Disease Chronic Disease Endometriosis Endometriosis Endometriosis Female Female Humans Humans Program Evaluation Program Evaluation Victoria Victoria

Citation neighborhood (2-hop)

Papers in the corpus that this work cites (lower rings, blue) and that cite this one (upper rings, green). Dot size scales with the paper's in-corpus citation count — bigger dot = more influential within the endo/adeno field. Click a dot to open that paper. Outer rings show 2-hop neighbours — papers reached through the immediate citers/citees. [ collapse to 1-hop ]

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