Treatment of endometriosis involving a self-help group positively affects patients' perception of care
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Abstract
Chronic endometriosis is notoriously difficult to treat and many women become frustrated with their care. We established an Endometriosis Clinic as a co-operative venture between a group of gynecologists and a self-help group, the Endometriosis Association of Victoria. The aim of this study was to examine the clinical characteristics of women attending the clinic and to determine patient satisfaction with the clinic. The study involved a review of patient histories and a postal satisfaction questionnaire. Three hundred and fourteen women attended the clinic during its first year of operation. Seventy per cent had had a diagnosis of endometriosis made elsewhere and attended the clinic for a second opinion or for more information. Eighty-six per cent presented with symptoms suggestive of endometriosis, 8% presented with infertility and 6% complained of both symptoms and infertility. When patients were asked to score the overall service provided by the clinic on a scale of 1 to 10, scores ranged from 4 to 10 with a mean of 8.7. Ninety-seven per cent of women felt that the consultation with a counselor from the Endometriosis Association was a major source of satisfaction. We have documented a significant demand for and high patient satisfaction with the concept of integrating a patient self-help group in the standard model of health care for endometriosis.
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References (4)
- Delay in the diagnosis of endometriosis: a survey of women from the USA and the UK via openalex
- Endometriosis in Adolescents via openalex
- Explaining Endometriosis via openalex
- What is important to the patient with endometriosis? via openalex
Cited by (11)
- Psychosomatic comorbidity in endometriosis: A multi-center, cross-sectional study identifying an underestimated factor in current medical support 2025
- Endometriosis pain and epistemic community: Mapping discourses in online discussions among sufferers 2023
- An overview on the relationship between endometriosis and infertility: the impact on sexuality and psychological well-being 2019
- Endometriosis and Infertility: The Impact on Quality of Life and Mental Health 2017
- Impact of endometriosis on quality of life and mental health: pelvic pain makes the difference 2015
- The Patient-Centeredness of Endometriosis Care and Targets for Improvement: A Systematic Review 2014
- The Experience of Chronic Illness in Women: A Comparison Between Women with Endometriosis and Women with Chronic Migraine Headaches 2007
- Prise en charge d'une endométriose douloureuse 2007
- A life shaped by pain: women and endometriosis 2005
- Endometriosis, an unknown entity: the consumer's perspective 2003
- Endometriosis, an unknown entity: the consumer's perspective 2003
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