Impact of a National Public Health Plan on the time frame for moderate and severe endometriosis diagnosis

Emilie Gastineau, Laura Miquel, Antoine Netter, A Netter, Aubert Agostini, Maëva Jego, Maeva Jego, Blandine Courbiere, Blandine Courbière
Journal of gynecology obstetrics and human reproduction · 2025 · vol. 54(9) , pp. 103011 · doi:10.1016/j.jogoh.2025.103011 · PMID:40818690 · W4413269953
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⚙ AI-generated summary by claude@2026-06, 2026-06-07 ⓘ

This study found that the French National Endometriosis Public Health Plan did not significantly reduce the median 5-year diagnostic delay for moderate and severe endometriosis, with infertility as an initial symptom shortening the delay.

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Abstract

OBJECTIVE: to study the time from symptom onset to the diagnosis of moderate and severe endometriosis and to compare this delay before and after the implementation of the French National Endometriosis Public Health Plan. DESIGN: Monocentric retrospective cohort study. EXPOSURE: A comparison of diagnostic delays for moderate and severe endometriosis in women before and after the implementation of a National Public Health Plan in February 2022. MAIN OUTCOME MEASURES: Diagnostic delay, defined as the time from symptom onset to a final diagnosis of moderate or severe endometriosis confirmed by imaging or surgery. RESULTS: The median diagnostic delay was 5.0 years (range 1.6-11.2) with no statistically significant difference observed before and after the implementation of the National Endometriosis Public Health Plan: median delay of 5.7 years (range 1.6-11.8) Vs. 4.2 years (range 1.5-11.1) (P = 0.70). The most common presenting symptom was dysmenorrhea (73 %), and 91 women (65 %) experienced primary infertility. Women whose initial symptom was infertility had a significantly shorter diagnostic delay compared to those with pain symptoms: median (IQR) of 1.5 (0.9-3.1) Vs. 6.9 (2.1-12.6) years, P ≤ 0.001. A younger age at symptom onset was associated with a longer diagnostic delay. CONCLUSION: Despite increased awareness efforts by Public Health institutions, significant diagnostic delays for moderate and severe endometriosis persist, particularly among younger women. The objective of the National Endometriosis Public Health Plan was to raise awareness among healthcare providers to reduce diagnostic delays; however, further longitudinal studies are needed to confirm its long-term impact.

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Condition tags

endometriosisdysmenorrheainfertility

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