Endometriosis and Fertility Preservation: What Patients Need from Healthcare Providers
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Abstract
Existing research on endometriosis and fertility-related care has highlighted an emphasis on fertility preservation above other healthcare outcomes, leading to a loss of reproductive autonomy. Guided by a critical realist lens, we sought to understand what individuals with endometriosis (n = 22) require from their healthcare providers when considering fertility-related concerns and preservation. Inductive, reflexive thematic analysis identified that fertility concerns were pervasive and resulted in uncertainty and fertility-related healthcare encounters encompassed both supportive and distressing experiences. Participants identified the need for accessible, inclusive, and person-centered interdisciplinary care that moves beyond siloed and fertility-centric approaches and improves reproductive autonomy.
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References (34)
- “A day-to-day struggle”: A comparative qualitative study on experiences of women with endometriosis and chronic pelvic pain via openalex
- 'A name to the pain': A mixed methods analysis of diagnostic delay and perceptions of diagnosis importance in Australians with endometriosis via openalex
- Building Bridges: Enhancing Diagnosis and Care for Endometriosis Across the Primary-Secondary Care Continuum via openalex
- Debunking the “Mystical Condition” of Endometriosis: What People Living with Endometriosis Want You to Truly Understand via openalex
- Endometriosis via openalex
- Endometriosis and chronic pelvic pain have similar impact on women, but time to diagnosis is decreasing: an Australian survey via openalex
- Endometriosis and fertility: women's accounts of healthcare via openalex
- Endometriosis in infertile women: an observational and comparative study of quality of life, anxiety, and depression via openalex
- Experiences of endometriosis-associated infertility among women and their partners: A qualitative systematic review via openalex
- Incremental validity of acceptance over coping in predicting adjustment to endometriosis via openalex
- 'It just stops me from living': A qualitative study of losses experienced by women with self-reported endometriosis via openalex
- Patient experiences of being advised by a healthcare professional to get pregnant to manage or treat endometriosis: a cross-sectional study via openalex
- Patient experience surveys for endometriosis care: A scoping review via openalex
- Sharing stories, building connections, and regaining control: a qualitative study of cognitive behavioural therapy for endometriosis and persistent pelvic pain via openalex
- The association between experiences with patient-centred care and health-related quality of life in women with endometriosis via openalex
- Transgender and gender diverse people with endometriosis: A perspective on affirming gynaecological care via openalex
- Women's experiences of endometriosis: a systematic review and synthesis of qualitative research via openalex
- Women's lived experience of endometriosis-related fertility issues via openalex
- W7168106246 via openalex
- W2041927436 via openalex
- W2066628494 via openalex
- W2138664283 via openalex
- W2289587231 via openalex
- W2346275821 via openalex
- W2770269309 via openalex
- W2801331207 via openalex
- W3025346350 via openalex
- W3154463802 via openalex
- W3213968370 via openalex
- W4281651168 via openalex
- W4306292478 via openalex
- W4401946468 via openalex
- W4403100603 via openalex
- W2003135842 via openalex
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- last seen: 2026-11-01T06:01:13.392755+00:00
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