Patients’ knowledge, attitudes, and practices concerning endometriosis and its long-term management

Chengbin Lin, Zhiwei Wu, Yuanjun Cai, Yuanqing Cai
BMC women's health · 2025 · vol. 25(1) , pp. 633 · doi:10.1186/s12905-025-04187-z · PMID:41316257 · PMC12750744 · W4416785129
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⚙ AI-generated summary by claude@2026-06, 2026-06-08 ⓘ

This study found that endometriosis patients generally have poor knowledge, attitudes, and practices regarding the condition, with knowledge significantly influencing attitude and practice.

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⚙ AI-generated deep summary by claude@2026-06, 2026-06-08 ⓘ

This cross-sectional study surveyed 301 patients with confirmed endometriosis at a Chinese maternity hospital (Aug–Dec 2023) using a self-designed Chinese questionnaire assessing knowledge, attitudes, and practices related to endometriosis and long-term management. Participants reported generally poor KAP scores, with mean knowledge 13.28/24, attitudes 28.23/40, and practices 22.56/35, and structural equation modeling showed knowledge had direct effects on both attitude (β = 0.287, P = 0.014) and practice (β = 0.361, P = 0.005). Knowledge was associated with factors including duration of disease, education, ethnicity, having children, and having female relatives with endometriosis, while attitude and practice also varied by several sociodemographic and lifestyle/insurance variables. A major limitation is that the convenience sampling at a single hospital and the cross-sectional design restrict generalizability and causal inference. This paper is centrally about endometriosis — it investigates patients’ knowledge, attitudes, and practices regarding long-term management of the condition.

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Abstract

BACKGROUND: Endometriosis, affecting 10-15% of women, causes pain and infertility. Current treatments have limitations. This study aimed to investigate patients' knowledge, attitude, and practice (KAP) concerning endometriosis and its long-term management. METHODS: A cross-sectional study was conducted among patients diagnosed with endometriosis, using a self-designed questionnaire. RESULTS: A total of 301 valid questionnaires were included. The mean age of the participants was 32.3 ± 6.8 years, and 220 (73.1%) cases or participants. The participants scored a mean of 13.28 ± 5.98 (possible range: 0-24) for knowledge, 28.23 ± 2.38 (possible range: 8-40) for attitude, and 22.56 ± 4.76 (possible range: 7-35) for practice. They indicated a generally poor KAP. The structural equation model revealed that knowledge had a direct influence on attitude (β = 0.287, P = 0.014) and knowledge also directly influenced practice (β = 0.361, P = 0.005). Duration of endometriosis (β = 0.300, P = 0.006), having children (β = -0.127, P = 0.010), ethnicity (β = -0.127, P = 0.010), education (β = 0.217, P = 0.009), and having female relatives with endometriosis (β = -0.202, P = 0.004) had significant direct effects on knowledge. Having children (β = -0.037, P = 0.015), ethnicity (β = -0.037, P = 0.008), having female relatives with endometriosis (β = -0.058, P = 0.004), income (β = -0.176, P = 0.009), drinking (β = 0.318, P = 0.008), and health insurance (β = 0.169, P = 0.016) influenced attitude. Duration of endometriosis diagnosis (β = 0.103, P = 0.006), having children (β = -0.044, P = 0.010), ethnicity (β = -0.242, P = 0.015), education (β = 0.258, P = 0.013), having female relatives with endometriosis (β = -0.293, P = 0.007), and health insurance (β = -0.123, P = 0.030) influenced practice. CONCLUSION: Patients demonstrated inadequate knowledge, moderate attitudes, and practices regarding endometriosis. These findings suggest a need for more targeted educational efforts. Healthcare providers should prioritize education, particularly for individuals from diverse backgrounds and those with limited resources, to enhance patient outcomes.

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Condition tags

endometriosisinfertility

MeSH descriptors

Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Endometriosis Health Knowledge, Attitudes, Practice Health Knowledge, Attitudes, Practice Health Knowledge, Attitudes, Practice Health Knowledge, Attitudes, Practice

Citation neighborhood

Papers in the corpus that this work cites (lower rings, blue) and that cite this one (upper rings, green). Dot size scales with the paper's in-corpus citation count — bigger dot = more influential within the endo/adeno field. Click a dot to open that paper. [ expand to 2 hops ] — adds papers reached through this work's immediate citers/citees. Heavier; up to 60 extra dots.

References (39)

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