Parallel worlds and personified pain: A mixed-methods analysis of pain metaphor use by women with endometriosis

Stella Bullo, Jasmine Heath Hearn
British journal of health psychology · 2020 · vol. 26(2) , pp. 271–288 · doi:10.1111/bjhp.12472 · PMID:32920887 · W3086184131
Qualitative OA: hybrid CC0 ⤵ 20 in-corpus citations
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This mixed-methods study analyzed metaphors used by women with endometriosis, finding common themes of pain as physical properties, damage, or an attacker, and revealing feelings of vulnerability, incomprehensibility, and a drive to manage and conceal pain.

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Abstract

OBJECTIVES: Endometriosis is a long-term condition in which endometrial-like tissue grows outside of the womb, causing intense chronic pain. Previous work has demonstrated the physical and emotional impact on women who live with endometriosis, and metaphors can play an influential role in communicating the experience of pain, but there exists little understanding of the role and impact of such language for women with endometriosis. DESIGN: A qualitative, semi-structured interview design. METHODS: Conceptual Metaphor Theory (CMT) and Interpretative Phenomenological Analysis (IPA) were utilized in a mixed-methods study to examine the prevalence, types, and meaning of metaphors and metaphor use as a health communication strategy. Twenty-one women aged between 23 and 53 years (mean age 36.1 years) with endometriosis took part in audio-recorded interviews. RESULTS: The women reported experiencing symptoms for an average of 11 years before receiving a formal diagnosis of endometriosis, and the mean age of diagnosis was 27.6 years. Seven distinct conceptual metaphors were identified in 221 metaphorical expressions used across all participants, with most common ones referring to pain as physical properties of elements such as temperature and pressure, physical damage, and an external attacker. IPA revealed three themes pertaining to the feeling of vulnerability and helplessness, pain being incomprehensible, and a drive to manage and conceal pain simultaneously. CONCLUSIONS: This study demonstrates the power of language in facilitating understanding and empathy in the listener, alongside the challenge of communicating endometriosis pain to others. Imagery-based techniques may assist in adaptation to, interpretation, and acceptance of pain to reduce pain-related distress.

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Condition tags

endometriosis

MeSH descriptors

Chronic Pain Chronic Pain Endometriosis Endometriosis Endometriosis Adult Adult Emotions Emotions Female Female Humans Humans Metaphor Metaphor Middle Aged Middle Aged Young Adult Young Adult

Citation neighborhood (2-hop)

Papers in the corpus that this work cites (lower rings, blue) and that cite this one (upper rings, green). Dot size scales with the paper's in-corpus citation count — bigger dot = more influential within the endo/adeno field. Click a dot to open that paper. Outer rings show 2-hop neighbours — papers reached through the immediate citers/citees. [ collapse to 1-hop ]

References (56)

Cited by (21)

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License: CC0 · commercial use OK