Financial Hardship and Crowdfunding for Endometriosis Care: A Cross-Sectional Study

Irene Masini, Natalie Cooley, N. Cooley, Cooley N, Kelly N. Wright, Siedhoff MT, Matthew T. Siedhoff, Raanan Meyer, Meyer R
BJOG: An International Journal of Obstetrics & Gynaecology · 2025 · vol. 132(13) , pp. 2299–2301 · doi:10.1111/1471-0528.18210 · PMID:40364738 · W4410376455
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This cross-sectional study investigated the prevalence of financial hardship among individuals seeking endometriosis care and examined the role of crowdfunding in managing these costs.

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This cross-sectional study investigates the prevalence of financial hardship and the use of crowdfunding among patients seeking care for endometriosis. The researchers analyzed survey data to determine how often individuals turn to online fundraising platforms to cover medical expenses associated with diagnosis and treatment. Key findings indicate that a significant portion of participants experienced substantial financial burden, with many utilizing crowdfunding as a critical resource to access necessary healthcare services. This paper is centrally about endometriosis — specifically examining the socioeconomic barriers and financial coping mechanisms employed by patients managing this condition.

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Abstract

K.N.W. – Aqua Therapeutics-consultant, Hologic-consultant, Karl Storz-consultant; M.T.S. – Applied Medical-consultant; R.M. – Intuitive Surgical, Claria Medical. The authors declare no conflicts of interest. The data that support the findings of this study are available from the corresponding author upon reasonable request. Tables S1–S4 Figures S1–S2 Please note: The publisher is not responsible for the content or functionality of any supporting information supplied by the authors. Any queries (other than missing content) should be directed to the corresponding author for the article.
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Funding: The authors received no specific funding for this work. Masini, I., Cooley, N., Wright, K.N., Siedhoff, M.T. and Meyer, R. (2025), Financial Hardship and Crowdfunding for Endometriosis Care: A Cross-Sectional Study. BJOG, 132: 2299-2301. https://doi.org/10.1111/1471-0528.18210 Please note: The publisher is not responsible for the content or functionality of any supporting information supplied by the authors. Any queries (other than missing content) should be directed to the corresponding author for the article. References 1L. Della Corte, C. Di Filippo, O. Gabrielli, et al., “The Burden of Endometriosis on Women's Lifespan: A Narrative Overview on Quality of Life and Psychosocial Wellbeing,” International Journal of Environmental Research and Public Health17, no. 13 (2020): 4683, https://doi.org/10.3390/ijerph17134683. 2B. W. Alemu, M. Waller, and L. R. Tooth, “The Association Between Menstrual Disorders and Workforce Participation: A Prospective Longitudinal Study,” BJOG: An International Journal of Obstetrics & Gynaecology132 (2025): 961–971, https://doi.org/10.1111/1471-0528.18109. 3C. Uzuner, J. Mak, F. El-Assaad, and G. Condous, “The Bidirectional Relationship Between Endometriosis and Microbiome,” Frontiers in Endocrinology14 (2023): 1110824, https://doi.org/10.3389/fendo.2023.1110824. 4M. I. Liang, R. Harrison, E. M. Aviki, K. M. Esselen, R. Nitecki, and L. Meyer, “Financial Toxicity: A Practical Review for Gynecologic Oncology Teams to Understand and Address Patient-Level Financial Burdens,” Gynecologic Oncology170 (2023): 317–327, https://doi.org/10.1016/j.ygyno.2023.01.035. 5R. M. O'Connor, D. S. Huang, B. J. Rimel, et al., “Unmet Financial Needs Among Patients Crowdfunding to Support Gynecologic Cancer Care,” Gynecologic Oncology186 (2024): 199–203, https://doi.org/10.1016/j.ygyno.2024.05.017. Total unique accesses to an article’s full text in HTML or PDF/ePDF format.More metric information Scite metrics Explore this article's citation statements on scite.ai Share QR Code Generating QR code QR code copied to clipboard! Something went wrong while generating your QR code. Please try again in a moment. If the issue persists, refresh the page or contact support. Export citation Unable to load citation data. Please try again in a moment. How to cite Elkins, L. J., & Spiegelman, M. (2021). pyUserCalc: A revised Jupyter notebook calculator for uranium-series disequilibria in basalts. Earth and Space Science, 8, e2020EA001619. https://doi.org/10.1029/2020EA001619 How to cite text copied to clipboard! Download Citation If you have the appropriate software installed, you can download article citation data to the citation manager of your choice. Simply select your manager software from the list below and click on download. This feature enables you to download the bibliographic information (also called citation data, header data, or metadata) for the articles on our site. Citation manager file format Use the dropdown list to choose how to format the bibliographic data you're harvesting. Several citation manager formats are available, including EndNote and BibTex. You can then copy the formatted citation (as displayed) or download it as file, to your device. If the RefWorks format is chosen, the 'Download' button will be replaced with an option to directly export to RefWorks Please check your email for instructions on resetting your password. If you do not receive an email within 10 minutes, your email address may not be registered, and you may need to create a new Wiley Online Library account. Request Username Can't sign in? Forgot your username? Enter your email address below and we will send you your username If the address matches an existing account you will receive an email with instructions to retrieve your username

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