From womanhood to endometriosis: findings from focus groups with women from different ethnic groups

Elaine Denny, Lorraine Culley, Irena Papadopoulos, Patricia Apenteng
2011 · vol. 8(3) · W1587188319
article OA: green CC0 ⤵ 8 in-corpus citations
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This study explored community awareness of and experiences with endometriosis among women from Indian, Pakistani, African Caribbean, Chinese, and Greek/Greek Cypriot ethnic groups in the UK, finding both similarities and cultural differences in perceptions.

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Abstract

Endometriosis is a long-term, disabling condition, and acommon cause of chronic pelvic pain, yet little is known about the experience of the disease among women from minority ethnic groups. This paper reports on the first phase of a UK-based study (the Endocul Project), which explored community awareness of endometriosis and the experience of living with the disease in a sample of women from a range of minority ethnic communities (Indian, Pakistani, African Caribbean, Chinese and Greek/ Greek Cypriot). Focus groups were conducted with healthy women from these five communities on contextual issues surrounding endometriosis and the women’s awareness of the condition. The data reveal many similarities between the groups, and between them and the majority white population. They also highlight cultural differences in perceptions of reproduction, fertility and menstruation. While not wishing to stereotype women, the findings of this study demonstrate the importance for providers of healthcare of recognising socio-cultural differences.

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Condition tags

endometriosischronic_pelvic_pain

Citation neighborhood

Papers in the corpus that this work cites (lower rings, blue) and that cite this one (upper rings, green). Dot size scales with the paper's in-corpus citation count — bigger dot = more influential within the endo/adeno field. Click a dot to open that paper. [ expand to 2 hops ] — adds papers reached through this work's immediate citers/citees. Heavier; up to 60 extra dots.

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