Gynecologic disorders in women with Ehlers-Danlos syndrome

Lisa J. McIntosh, McIntosh LJ, L J McIntosh, V T Mallett, Mallett VT, Frahm JD, J D Frahm, D A Richardson, Richardson DA, Evans MI, M I Evans
Journal of the Society for Gynecologic Investigation · 1995 · vol. 2(3) , pp. 559–564 · doi:10.1016/1071-5576(94)00050-b · PMID:9420859 · W2093120626
article OA: closed CC0 ⤵ 3 in-corpus citations
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This paper reviews gynecologic disorders in women diagnosed with Ehlers-Danlos syndrome.

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Abstract

ObjectiveWe characterized the population with Ehlers-Danlos syndrome with regard to genital prolapse, urinary incontinence, and other gynecologic disorders.MethodsForty-one adult women who had registered for a first-ever Ehlers-Danlos multidisciplinary clinic participated in the study. Each had a comprehensive standardized evaluation, including gynecologic history, physical examination, urodynamic testing, and physical therapy evaluation. Qualitative and quantitative data were analyzed to determine means for various gynecologic disorders of Ehlers-Danlos syndrome.ResultsThe frequencies of incontinence complaints (59%), endometriosis (27%), dyspareunia (57%), and previous hysterectomy (44%) were higher than expected for a population with a mean age of 41 years. Incontinence could not be demonstrated objectively. Prolapse was diagnosed in 12 (29.3%).ConclusionsCareful attention should be paid to women with Ehlers-Danlos syndrome because of an association with many gynecologic complaints. Women with Ehlers-Danlos syndrome should be questioned regarding incontinence, genital prolapse, endometriosis, and dyspareunia.

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Condition tags

dyspareuniaendometriosis

MeSH descriptors

Ehlers-Danlos Syndrome Genital Diseases, Female Urinary Incontinence Adult Dyspareunia Dyspareunia Dyspareunia Ehlers-Danlos Syndrome Ehlers-Danlos Syndrome Electromyography Endometriosis Endometriosis Endometriosis Female Genital Diseases, Female Genital Diseases, Female Genital Diseases, Female Humans Hysterectomy Hysterectomy

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