Inclusive by Design: Rethinking Endometriosis Self-Tracking for Trans and Gender-Diverse Users

Sara Patrício Canhoto, Tiago Guerreiro, Rúben Gouveia
In: Proceedings of the 2026 ACM Interactive Health Conference · 2026 · pp. 1–5 · doi:10.1145/3786579.3804915 · W7167087904
Observational OA: gold CC0
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⚙ AI-generated summary by gemini-2.5-flash-lite, 2026-07-14 ⓘ

This paper examined how transgender and gender-diverse individuals with endometriosis use health-tracking tools, finding privacy concerns, gendered designs, and reductionist symptom models create barriers to inclusive self-tracking.

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Abstract

Personal health tracking technologies are commonly designed around cisnormative and binary assumptions, limiting their usefulness and safety for transgender and gender-diverse (TGD) individuals. This paper investigates how TGD people with endometriosis engage with existing health-tracking tools and the barriers they encounter in doing so. We report findings from an online questionnaire (n=34) exploring lived experiences, self-tracking practices, and perceptions of exclusion. Our results highlight a set of design tensions in current tools, including privacy and disclosure concerns, gendered designs, reductionist symptom models, and an emotional burden associated with tracking. We argue for more inclusive, gender-affirming approaches to self-tracking and present this work as a provocation for researchers and designers to rethink how identity and embodied experiences are encoded in self-tracking technologies.

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Citation neighborhood (2-hop)

Papers in the corpus that this work cites (lower rings, blue) and that cite this one (upper rings, green). Dot size scales with the paper's in-corpus citation count — bigger dot = more influential within the endo/adeno field. Click a dot to open that paper. Outer rings show 2-hop neighbours — papers reached through the immediate citers/citees. [ collapse to 1-hop ]

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last seen: 2026-10-01T06:07:16.299885+00:00
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