The needs, preferences, and priorities for supportive healthcare in people living with endometriosis: A qualitative exploratory study

Suiyin Cheah, Antonina Mikocka‐Walus, Antonina Mikocka-Walus, Van Niekerk, Leesa, Katherine Stanley, Marilla Druitt, Subhadra Evans
Journal of health psychology · 2026 · pp. 13591053261448104 · doi:10.1177/13591053261448104 · PMID:42227977 · W7163136199
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⚙ AI-generated summary by claude@2026-06, 2026-06-06 ⓘ

This study explored the supportive healthcare needs, preferences, and priorities of individuals living with endometriosis through qualitative research.

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Abstract

Although pain, poor quality of life and symptoms of anxiety and depression are common in people with endometriosis, consumer views regarding supportive care needs are limited. Using a descriptive phenomenological approach, three focus groups were conducted with 12 participants with endometriosis to understand their needs and priorities for supportive evidence-based healthcare. Template thematic analysis identified three overarching themes: (1) Endometriosis Is a Whole Person Disease, highlighting the physical and psychological challenges of endometriosis; (2) Current Gaps and Unmet Needs - The Disparity Between Individual Requirements and Available Services and Support, emphasising the impact of healthcare practitioner interactions, financial constraints, and information requirements; and (3) Endometriosis Needs Whole Person Solutions, identifying the need for interdisciplinary, person-centred care to enhance individual empowerment and healthcare decision-making. Given the high costs of healthcare and limited availability of practitioners familiar with endometriosis and whole-person approaches, development and evaluation of online supportive care programs may be beneficial.

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Condition tags

endometriosis

Citation neighborhood

Papers in the corpus that this work cites (lower rings, blue) and that cite this one (upper rings, green). Dot size scales with the paper's in-corpus citation count — bigger dot = more influential within the endo/adeno field. Click a dot to open that paper. [ expand to 2 hops ] — adds papers reached through this work's immediate citers/citees. Heavier; up to 60 extra dots.

References (39)

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