The Experience of Living with Endometriosis
This qualitative study explored women's diverse experiences with endometriosis, including delayed diagnosis, pain, disrupted sexuality, and impacts on social relationships and healthcare interactions.
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This chapter uses qualitative research with women with endometriosis to describe how the condition affects multiple aspects of life for patients and those around them, emphasizing that experiences vary widely. It discusses the well-documented delay in diagnosis, the effects of receiving a diagnosis, how women describe endometriosis pain (including dyspareunia), and how endometriosis can disrupt sexuality-related domains such as fertility and sexual relationships. It further covers impacts on social relationships, interactions with health professionals, and experiences of interventions and treatments, presenting these themes through women’s accounts. The paper is centrally about endometriosis — it focuses on qualitative descriptions of living with the disease, including diagnostic delay, pain, and effects on sexuality and social/healthcare experiences.
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References (8)
- Circuit Breaking: Pathways of Treatment Seeking for Women With Endometriosis in Australia via openalex
- Endometriosis and the primary care consultation via openalex
- Endometriosis-associated dyspareunia: the impact on women's lives via openalex
- Focus group study of endometriosis: Struggle, loss and the medical merry‐go‐round via openalex
- “I Never Know From One Day to Another How I Will Feel”: Pain and Uncertainty in Women With Endometriosis via openalex
- The impact of endometriosis on work and social participation via openalex
- What’s the delay? A qualitative study of women’s experiences of reaching a diagnosis of endometriosis via openalex
- Women's experience of endometriosis via openalex
Cited by (4)
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- openalex
- last seen: 2026-06-10T17:14:06.276822+00:00
- unpaywall
- last seen: 2026-06-02T02:00:03.124865+00:00