The Significance of Diagnostic Delay in Endometriosis
Diagnostic delay in endometriosis results from patient factors, physician factors, disease factors, and a lack of comprehensive clinical guidelines.
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This editorial discusses the significance of diagnostic delay in endometriosis, defining it largely as the interval between symptom onset and diagnostic surgery, and synthesizing findings from earlier studies showing substantial delays (estimated up to 10.4 years), frequent misdiagnosis, and longer delays for pelvic pain compared with infertility; it also notes that delay for deep infiltrating endometriosis diagnosis can be longer in advanced stage IV disease. It highlights potential contributors at patient, disease, and physician levels—such as normalization or suppression of symptoms, reliance on nondiscriminatory investigations, lack of awareness or confidence, and overlapping symptoms with other morbidities—and emphasizes additional health-system policy factors, including gaps and contradictions in clinical guidelines and limited evidence from randomized trials. A key limitation is that the piece is not a new primary study and presents an interpretive review of published reports rather than original data. This paper is centrally about endometriosis — it focuses specifically on diagnostic delay in endometriosis and the multi-level causes and implications of delayed diagnosis.
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References (15)
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Cited by (4)
- Epistemic and affective harms in Endometriosis diagnosis 2026
- How are workplace policies, organizational dysfunction, and lack of accommodations for employees with endometriosis associated with fertility-related needs, absenteeism, and productivity in the workforce? A scoping review 2026
- Temporal and regional differences in the incidence of hospital‐diagnosed endometriosis: a Danish population‐based study 2022
- Impact of Endometriosis Diagnostic Delays on Healthcare Resource Utilization and Costs 2020
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- last seen: 2026-06-10T17:14:06.276822+00:00