Viet-Thi Tran

BackgroundShared decision making (SDM) is a cornerstone of patient-centered care; however, little information is available on how SDM is practiced in routine care. We aimed to assess the level of SDM perceived by patients with chronic condi…

BACKGROUND: An average time to diagnosis of 7 years is commonly described for endometriosis; diagnostic delay for adenomyosis is unknown. This cross-sectional study aimed to describe diagnostic delay for endometriosis and adenomyosis and to…

CONTEXT AND OBJECTIVES: Women with endometriosis report higher anxiety and depression levels compared with the general population. While numerous studies focused on chronic pain, few have investigated broader potential correlates of mental …

Abstract Study question To identify comorbidity profiles in women with endometriosis in ComPaRe-Endometriosis cohort Summary answer This study identified distinct comorbidity profiles (7) in women with endometriosis What is known already En…

BACKGROUND: Despite the numerous health benefits associated with physical activity (PA), many patients with chronic conditions remain inactive. We hypothesise that patients often misperceive their PA level, which affects behaviour change. W…

STUDY QUESTION: How reliable are self-reported endometriosis or adenomyosis data compared with medical reports in online patient surveys? SUMMARY ANSWER: In our sample, reliability was strong to excellent for diagnosis, age at diagnosis, a…

BACKGROUND: Endometriosis may manifest through various pain symptoms, such as dysmenorrhea, dyspareunia, dyschezia, dysuria and abdominal pain. While retrospective evaluation of these pain symptoms is less expensive and time-consuming compa…

Background: Endometriosis is a chronic gynecological condition that affects about 10% of women of reproductive age. Despite its prevalence, diagnosis is often delayed, misdiagnosis is common, and treatment options are poor. This study aimed…

BACKGROUND: Patients' participation is crucial to the success of randomized controlled trials (RCTs). However, recruiting and retaining patients in trials remain a challenge. OBJECTIVE: This study aims to describe patients' preferences for…

IMPORTANCE: The COVID-19 pandemic led to the implementation of alternative care modalities (eg, teleconsultations and task shifting) that will continue to be implemented in parallel to traditional care after the pandemic. An ideal balance b…

BACKGROUND: This study aimed to involve patients with chronic conditions in generating ideas for improving their care. METHODS: We performed a citizen science study. Participants were adult patients with chronic conditions recruited in Com…