“It’s the biggest not one-size-fits-all service I’ve ever worked in”: The realities of delivering a ‘Complications of Excess Weight’ service for children and young people in England from a multidisciplinary team perspective | Research Square window.SnipcartSettings = { analytics: { enabled: false } }; (function() { var accessVector = localStorage.getItem('access_vector') || ''; window.dataLayer = window.dataLayer || []; if (accessVector) { window.dataLayer.push({ user: { profile: { profileInfo: { snid: accessVector } } } }); } })(); (function(w,d,s,l,i){w[l]=w[l]||[];w[l].push({'gtm.start':new Date().getTime(),event:'gtm.js'});var f=d.getElementsByTagName(s)[0],j=d.createElement(s),dl=l!='dataLayer'?'&l='+l:'';j.async=true;j.src='https://www.googletagmanager.com/gtm.js?id='+i+dl;f.parentNode.insertBefore(j,f);})(window,document,'script','dataLayer','GTM-K279D39R'); Browse Preprints In Review Journals COVID-19 Preprints AJE Video Bytes Research Tools Research Promotion AJE Professional Editing AJE Rubriq About Preprint Platform In Review Editorial Policies Our Team Advisory Board Help Center Sign In Submit a Preprint Cite Share Download PDF Research Article “It’s the biggest not one-size-fits-all service I’ve ever worked in”: The realities of delivering a ‘Complications of Excess Weight’ service for children and young people in England from a multidisciplinary team perspective Rebecca Stone, Jordan Marwood, Paige Davies, James Nobles, Karen Coulman, and 6 more This is a preprint; it has not been peer reviewed by a journal. https://doi.org/ 10.21203/rs.3.rs-9247438/v1 This work is licensed under a CC BY 4.0 License Status: Under Review Version 1 posted 11 You are reading this latest preprint version Abstract Background Thirty-eight specialist weight management services for children and young people (CYP) living with severe obesity are being piloted across England. These ‘Complications of Excess Weight’ (CEW) services aim to provide holistic, person-centred care to CYP, delivered by a multi-disciplinary team (MDT). A national evaluation (ENHANCE; NIHR 158453) of the CEW programme sought to develop the evidence base and understanding of optimal models of care. This qualitative study aimed to explore the realities of delivering a CEW service from the perspective of MDT members. Methods Online semi-structured one-to-one interviews (N = 28 MDT members) were conducted across seven purposefully sampled CEW services between April-June 2025. Interviews explored barriers and facilitators to delivery, perceptions of patient cohort, service demand, and how CEW fits within wider weight management systems. Data were transcribed and analysed using Framework Analysis. Results Three overarching themes were identified: 1) Achieving person-centred care in CEW services; 2) Navigating complexity in the CEW patient journey; and 3) The challenges of designing and delivering a pilot . Participants described a complex patient group who required holistic, innovative approaches to care. Challenges included high service demand, a lack of appropriate transitional care pathways into adult weight management for 16-18-year-olds, and uncertainty about sustainable long-term funding and staffing in the context of a pilot programme. Conclusions A long-term commissioning plan would be needed to ensure stability and appropriate care for CEW services and the families they support. MDTs must be equipped with the skills to respond effectively to high levels of patient complexity, and gaps in the availability of less intensive services (step-down) and transitional care into adult weight management require urgent attention to ensure any positive medical and psychosocial improvements yielded from CEW are not lost. childhood children and young people obesity severe obesity weight management complications of excess weight healthcare patient centred care multidisciplinary teams qualitative Figures Figure 1 Figure 2 1. Background An estimated 8% of children and adolescents aged 5–19 years were living with obesity globally in 2022 (i.e., a body mass index (BMI) > 2 standard deviations above the median for their age/years and gender), compared with only 2% in 1990 1 . In the UK, data from the National Child Measurement Programme of the 2024/25 academic year, showed 10.5% of children aged 4–5 years and 22.2% aged 10–11 years were living with obesity, including 2.9% and 5.6%, respectively, with severe obesity (BMI > 99.6th centile) 2 . However, this statistic may be an underestimate as children at this body weight are less likely to attend school 3 . In high-income countries, obesity is socially patterned, where in areas of deprivation obesity prevalence increases with deprivation quintile 4 . For example, in areas of higher deprivation in the UK, 30% of children aged 10–11 years are living with obesity, compared to 13% of children of the same age-group in the least deprived areas 5 . This highlights the growing prevalence in, and widening of inequalities regarding, obesity in CYP. Severe obesity in childhood is widely recognised as a persistent health issue that tracks into adulthood 6 , 7 . It is a key risk factor for developing many long term non-communicable diseases, such as cancer, Type 2 diabetes, and cardiovascular disease, all of which contribute to decreased life expectancy and elevated early mortality rates 8 – 10 . Indeed, recent modelling indicates that if a patient has a BMI z-score of 4 (i.e., severe obesity) by the age of 4-years and does not lose weight, they have a life expectancy of 39 years 11 . Childhood obesity is also linked to psychosocial consequences, such as lower self-esteem, lower academic attainment, and higher social exclusion 12 . Despite these significant impacts, weight management to support children and young people (CYP) living with severe obesity is limited 13 , 14 . The NHS Long Term Plan committed to supporting 1,000 children per year, regarding complications related to severe obesity 15 . Subsequently, in 2021, NHS England commissioned the “Complications of Excess Weight” (CEW) pilot across England. This pilot initially funded 21 CEW services, increasing to 38 services by 2024. The primary aim of the programme was to provide person-centred, holistic treatment for CYP aged 2–17 years who were living with severe obesity and co-morbidities, with the goal of reducing the need for more invasive treatments later 16 . Each CEW service was given some autonomy to design and deliver their service tailored to the specific needs of their local population, which resulted in variability across different localities. Consequently, the ENHANCE study 17 was funded to provide a comprehensive understanding as to the make-up, effectiveness, and cost-effectiveness of the CEW programme. In this paper, as part of the ENHANCE study, we aimed to explore the realities of delivering a CEW service from the perspective of multidisciplinary team (MDT) members. 2. Materials and Methods This paper is reported according to COREQ guidelines for reporting qualitative research 18 . This study employed a qualitative design using semi-structured online interviews. Ethical approval was granted from Leeds Beckett University Ethics Committee (Ref: 128404) and Sheffield Hallam University Ethics Committee (Ref: 79269135) and is in accordance with the Declaration of Helsinki. 2.1. Recruitment and sampling Seven CEW services from across the UK were purposively sampled. Sampling was informed by geographical representation and responses to an adapted Standardised Reporting of Lifestyle Weight Management InTERventions (STAR-LITE) template 19 - findings presented elsewhere (Marwood et al, in prep; ENHANCE, 2024a). In short, the adapted STAR-LITE template systematically examined: a) the process of designing the CEW services; b) referral routes, capacity and waiting lists; c) the MDT composition, service delivery, pharmacotherapy, and complication management; d) discharge criteria and onward referral processes; and e) data management systems. Services were shortlisted for inclusion in the current study if they had detailed 'innovative' approaches to service delivery, including novel compositions of their MDT (i.e., not routinely seen across services, such as a family support worker) in their STAR-LITE response. Innovative approaches were determined using a systematic ranking criterion that was developed by the researchers. This consisted of eight criteria: composition of MDT; waiting list/ commissioned capacity; inclusion age; length of appointments; treatment interventions; GLP-1 use; discharge criteria; and transition services. Ten services were shortlisted and then pragmatically reduced to seven services in collaboration with NHS England (who have interests in service design/MDT availability) and the wider ENHANCE team. Additionally, within each selected CEW service, key staff were also purposefully sampled to ensure a range of MDT roles were represented. The lead clinicians of all seven services granted permission to recruit and conduct the interviews with the selected MDT members. 2.2. Development of topic guide The interview topic guide (Supplementary File 1) was co-produced with the wider ENHANCE team, which included academics, healthcare professionals and patient and public involvement. It explored each participant’s involvement in the CEW service and their experiences of the delivery of CEW, including perceptions of demand, descriptions of the patient cohort, and any adaptations made to the service. Experiences of working within an MDT and the innovative approach for why each service was selected to participate were also discussed. In addition, the topic guide explored barriers and facilitators to delivering the CEW services, and staff members’ perspectives on how the CEW service fits within wider weight management systems locally. Where relevant, topics such as safeguarding and onward or transition referrals were explored. The topic guide was piloted with staff based in a children’s specialist community weight management service to assess its utility and to gauge timings. 2.3. Data collection Individual interviews were conducted and recorded online using Microsoft Teams (April-June 2025). Written informed consent was obtained in advance of the interview and reconfirmed verbally during interview. Interviews were transcribed verbatim using Microsoft Team’s auto transcription feature into Microsoft Word and anonymised by a university approved provider, with final transcripts checked against the recordings for accuracy by RAS. The research team involved in the interviewing and analysis process (RAS, JMa, PD, JN) consisted of academics from varying career stages, with expertise in nutrition, public health, and behavioural science. They are skilled in conducting public health evaluations and informing evidence-based policy. This knowledge provides useful context for the conduct and interpretation of interviews, but we acknowledge the potential for bias in both the interpretation and representation of the data. Therefore, we include positionality statements to make explicit our roles and perspectives in relation to the research, which aligns with the principle of reflexivity 20 (Supplementary File 2). 2.4. Data analysis Transcripts were thematically analysed using inductive Framework Analysis (RAS and JM) following steps outlined in Gale et al. (2013) 21 RAS and JM independently coded three transcripts and used these codes to jointly develop a working analytical framework, which was subsequently refined via application to three more transcripts. The final framework was used to analyse the remaining transcripts using NVivo, before generating a framework matrix using Microsoft Excel. Overall themes were generated from the framework matrix by examining connections between and within participants and codes. This analytical approach is often used for multidisciplinary healthcare research 21 , 22 and is ideal for the analysis of semi-structured interview transcripts. 3. Results 3.1. Participants In two services, the lead clinician requested that additional MDT members were invited to be interviewed 1:1 (SL9, n = 2; SL18, n = 1), and in three services, the lead clinician indicated that selected MDT members were no longer in post and were without replacements (SL6, n = 1; SL13, n = 1; SL15, n = 1). Therefore, in total, 28 staff members were invited to interview and all participated (see Fig. 1 for MDT role by service). Interviews were conducted by RAS (n = 18, 64%), PD (n = 8, 29%), or JN (n = 2, 7%), and lasted approximately 45 minutes (range: 29–67 minutes). Note Participant codes (e.g., ‘_2’) do not correspond to Fig. 1 and are not consistent across services to maintain anonymity. For example, SL4_2 and SL9_2 do not reflect the same MDT role. 3.2. Thematic findings Three major themes and eight sub-themes were generated in the analysis: 1) Achieving person-centred care in CEW services ; 2) Navigating complexity in the CEW patient journey ; and 3) The challenges of designing and delivering a pilot (Fig. 2). Figure 2 : Thematic map of three major themes (ovals), eight sub-themes (rectangles), and relationships between sub-themes. The following section presents these themes, along with short example quotes. Further supporting quotations, over 4 lines long, can be found in Supplementary File 3. Theme 1: Achieving person-centered care in CEW services When exploring how CEW services were delivered, participants universally described how their service delivered flexible person-centered care. Participants reflected on how that care was delivered and suggested the composition and function of the MDT in CEW was central to this, as well as the importance of creating relationships external to CEW services, including through the wider CEW network and with other services (e.g., other hospital departments (e.g., CAMHS), social services, and schools). Subtheme 1.1: The composition and function of the MDT Across the interviews, the composition of roles within the MDT varied. Participants referred to specific professions that were considered integral to delivering person-centred care in CEW, outside of core clinical roles (e.g., medical consultant, nurse, dietician). Given the level of complexity in the patient group (see Theme 2), many participants emphasised the need for a dedicated social worker to be “ embedded ” within CEW. This was conceived to enable more effective and efficient safeguarding support, addressing perceived shortcomings in social services, and to reduce burden on other MDT members: “The universal barrier to effective safeguarding is related to social services and their completely inconsistent approach to obesity as a risk factor. So, we [medics] spend a huge amount of time trying to explain to social services what the risks are” (SL15_1) Family support workers were also seen as important to delivering person-centred care in CEW services due to their ability to holistically address family-based challenges experienced by CYP and their families. This was considered particularly important for younger children, where autonomy is lower and family-level factors play an even stronger role in engagement with CEW services. In contrast to family support roles, some participants also highlighted the importance of including youth workers within the MDT, to support adolescents who had greater agency. Youth workers were described as less authoritative and were felt to help de-medicalise CEW services for young people, which facilitated engagement: The youth worker is just cool; she's brilliant at engaging CYP. They don't see her as authority. She takes them out of the medical system very quickly and into community and other engagement projects” (SL15_1) Notably, it appeared that services differed in the role title used for the youth worker role, with some adopting “health and wellbeing practitioner” instead. Nevertheless, the skill set required appeared to remain similar between roles: “So, my role is called a health and well-being practitioner. Other services are called other things. Sometimes they're youth workers, sometimes they're psychological whatever. There's lots of different titles for similar roles” (SL18_3) Beyond professional expertise, participants emphasised that personal qualities and social capital were critical to the delivery of effective person-centred care in CEW services, particularly to “open doors” (SL18_4). In addition, the ability to build strong relationships with CYP was described as central to engagement, as well as having “ passion ” and “ genuine care” given the “ ups and downs ” (SL15_3) of CEW services: It is that relationship building as well that's been a really big thing that we have to, you have to be a certain kind of person to be able to kind of build those relationships with our young people and I think that's a really big part of getting them to keep coming back if they feel like they've got a good relationship with” (SL9_5) In addition, participants indicated that having previous experience of working with children with severe and complex obesity was crucial to anticipate and comprehend the level of patient complexity, and to provide care that is effective: “I think I knew that, after years of working with this particular group, they're very vulnerable and you need to think outside the box to be able to help them” (SL15_1) Regarding the function of the MDT, participants highlighted the perceived benefits of having a dedicated office space, which facilitated team cohesion and improved morale: “P: We've been lucky enough to have an actual office rather than people sitting in hot desking or anything like that. It used to be a cupboard, but now it's at the office. I: Has that made an impact? P: Definitely, to have that space for the support of the team to be able to support each other and have a place, you know, that is theirs” (SL6_1) Maintaining clear operational processes was also seen as key. Participants emphasised the importance of tracking actions discussed in MDT meetings to ensure efficiency and follow-through. One service used an online cloud spreadsheet to enable this: We use an online cloud spreadsheet so everyone can access at the same time, and it gets saved automatically, so no data is lost. So, once we've discussed it in MDT, we mark it so that doesn't get transferred for the next week's meeting" (SL9_1) Importantly however, administrative support was seen as essential for enabling person-centred care in CEW services, and for supporting the level of data recording and reporting required by NHS England as part of the national evaluation (see Subtheme 1.2): “But with that [person-centred care] comes the need to expand the admin that's dedicated to make that run more smoothly essentially” (SL13_1) Subtheme 1.2: Relationships beyond the walls of the CEW service Participants often reflected on how their CEW service operated within the wider hospital system. They indicated that when other departments were in close proximity, the economies of scope, and spatial connectedness facilitated more efficient delivery of care: “Most importantly, the other specialties would be able to address complications of obesity, they're all here. So, I think for that point of view, it’s a really good environment because it’s one of the biggest Children's Hospital in the country. You've got a lot of specialists here. It's a huge hospital. They've got support, it’s very well connected" (SL20_1) Participants’ perception of the utility of the national and regional CEW networks was largely positive. Almost all participants valued having a platform to share learning and exchange knowledge with their counterparts (see below), whereas for nurses, the network was reportedly not utilised as often due to difficulties in scheduling meetings. “I’ve found the CEW network really helpful. I meet with other dietitians, because we're often working in isolation, so that's been handy to hear what they're doing. We share information so we don't have to reinvent the wheel if someone's doing something else and they're happy to share resources, so that's been brilliant” (SL15_3) Participants also acknowledged that CEW services can “ only do so much ” (SL15_2), and therefore engaging support from outside of CEW services (and the hospital) is important. Participants highlighted the value of building strong relationships with schools. In this illustrative quote, a relationship between a CEW service and school has enabled the CYP’s timetable to be adapted to better suit their needs, thereby increasing school attendance: “So, we all link in with the schools as much as we can and get the timetables changed so that a young person that's going in 20% of the week can actually go in 70% of the week and come out with their GCSEs [higher education qualifications in UK]” (SL13_3) Similarly, participants noted the importance of building strong partnerships with local community services, explaining that these relationships helped CYP and their families access activities beyond CEW services, while also enabling CEW staff to understand “ what is out there ” (SL15_2) and signpost effectively according to CYP needs. Subtheme 1.3: The child at the heart of the CEW service When thinking about how person-centred care is delivered in CEW services, participants often cited how they used non-traditional approaches to obesity (i.e., innovative in comparison to standard obesity care), which promoted a non-stigmatising/non-judgemental service. Participants indicated that these approaches encouraged CYP to be “open and honest” (SL6_2) about their food consumption, thereby facilitating holistic weight management support. Similarly, participants reflected on feedback received from CEW patients that celebrated CEW services’ ability to make the CYP feel heard, which was believed to contrast with previous experiences with healthcare: “And I think some of the feedback we've had is that our team actually listen to what they're saying. We understand where they're coming from, we help them in a holistic way...” (SL6_2) Participants emphasised the importance of flexibility in service delivery, describing CEW services as “ the biggest not one-size-fits-all service ” where “ you couldn't follow a flow chart ” (SL6_2) to care. This flexibility was framed as a core component of the person-centred care delivered in CEW, enabling CYP to exercise autonomy in guiding their care. This approach was contrasted with other hospital services, such as diabetes or endocrinology, which were perceived as more prescriptive: “The team have a flexible mindset more than anything else. We don't have an agenda of what the CYP needs, they bring that to us, which is different to diabetes or endocrinology where you're prescribing a set thing. But that doesn't work for this group; you have to engage them by putting them at the forefront of every decision” (SL15_1). In addition to flexibility in the type of support offered in response to CYP needs, participants also described flexibility in how support was delivered, including the mode of delivery (e.g., online, face to face, or group-based) and the scheduling of appointments. In the following illustrative quote, one respondent explained how expanding modes of delivery and opening hours of work helped accommodate CYP whose appointments would otherwise be during school hours: "And the feedback that we got was flexibility was very key to getting them through the door. So, very quickly I realised we needed to get on all platforms and formats, so face to face, online, telephone, sometimes in groups, depending on the need. And also, to open up our hours of work as well" (SL18_4) Similarly, this flexibility enabled CEW services to adapt their delivery in response to the presenting complexity of CYP. For example, participants often described making environmental adjustments to better meet the needs of neurodivergent CYP: “We've got some children with more complex disabilities and needs, specifically around autism and ADHD. I contact parents, like, do you need to use our sensory room rather than one of our clinic rooms? Would you like me to meet you around the back of the hospital, and we can come in that way?” (SL9_3) Theme 2: Navigating complexity in the CEW patient journey Subtheme 2.1: Describing and responding to complexity While the CEW programme targeted medical and psychosocial complications related to excess weight, participants observed additional, often unexpected and multifaceted complexities among attending patients: “Never in my wildest dreams did I imagine some of these families. There is never a week where we don't pick up on a new complexity, a new psychosocial risk factor” (SL6_2) The range of complexities described included: neurodiversity and/or intellectual disabilities in children and/or caregivers, high levels of poverty and deprivation, low levels of literacy, mental health difficulties, geographical barriers, adverse childhood experiences in children and/or caregivers, housing issues, and language barriers. The impact of these complexities differed. For neurodiversity, participants highlighted how this could result in selective eating, rigidity around food choices, and the use of food as a behaviour management tool. “I suppose with the children with ASD and ADHD, more ASD, the using of food as a behaviour management tool is, that's one of our biggest areas we work with” (SL13_3) For those from a lower socioeconomic group, participants highlighted how this impact included difficulties in attending meetings due to a lack of transport options, an inability to afford leisure activities and healthier food options, and a lack of access to cooking facilities for those families living in temporary accommodation: “Well, I suppose because [county] has got some of the most deprived communities and the transport links aren't great. So, getting to a big supermarket, often they're reliant on little supermarkets, little sort of local shops, which are obviously going to be more expensive” (SL13_3) Participants cited that there were high levels of safeguarding concerns observed in the CYP and families seen in CEW with social services involvement for many families. However, participants noted that there was often tension between social service teams and CEW due to lack of agreement on whether obesity is considered a safeguarding concern. The complexity of the patient group necessitated adaptations in delivering and tailoring care. Participants discussed the need to upskill in their role using training and development opportunities to enable them to better care for patients, particularly those with neurodiversity. Others noted that it was difficult to adapt and deliver group materials due to different levels of comprehension within the patient group: “Definitely we see a lot of our young people are autistic and have ADHD as well. And that comes with its own challenges and the need for us as professionals to be educated on ways to support them” (SL15_2) Complexity in the patient group sometimes meant that families were unable to engage with CEW services due to high demands in other areas of their lives (e.g., housing issues). However, all services included within this sample noted that they accepted re-referrals so that families can access support when it is more suitable for them: “Sometimes it's probably too intense for them or they've got other things going on. I think some examples we've had are there’s been housing issues, school issues, there's been maybe violence in the home, these sorts of things have happened, and it has just been we [the family] cannot give it the time that CEW needs now” (SL18_4) Subtheme 2.2: The CEW patient journey The patient journey begins with how CYP and families are prepared for entering the CEW service. Across the sample, approaches differed, with some services providing, or planning to provide waitlist support, such as low-level healthy diet education, while other services did not. Participants noted that referrer communication quality was sometimes poor, where families were not made aware that they had been referred to CEW services or what the service entailed, and the subsequent perceived negative impact this had on engagement with services. Staff often cited a general lack of ‘step down’ (less intensive support) and transitional adult services, which impacted CEW’s ability to discharge. This included an absence of, or oversubscribed, adult weight management services. Where these services did exist, participants noted that transitional care was not always optimal and amounted to “ transaction rather than transition” (SL18_4). In some localities, there was a “ no man’s land ” (SL20_3) between paediatric and adult weight management services where CYP age out of CEW but are not yet old enough to attend adult weight management services. This was considered particularly problematic for the continuation of pharmacological weight management: “ They might come to us at 16 and then you're considering do you start GLP-1s or not because you know there isn’t an adult service to transition into. You can't keep them in paediatric care forever, so, does that mean they're not getting the treatment they need, or they would have eligibility for, because there's nowhere for them to go?” (SL9_5) Regarding ‘step down’ support, while some localities had paediatric Tier 2 / behavioural weight management programmes, participants questioned their utility for CYP who had already received intensive support provided by CEW services. Participants also noted that they found it difficult to “ keep on top of” (SL9_5) the constantly changing weight management landscape (due to changes in commissioning and de-commissioning of Tier 2 services by local authorities), which was thought to hinder building connections with the right post-CEW services. An associated issue was the length of intervention delivery. MDT members cited that their service operated flexibly, with a maximum intervention delivery length of 2 years. However, there was a consensus across interviews that it often takes significant time to engage families, gain trust, and establish rapport, as well as to address some of the complexities identified within the family before working on weight-loss and its associated complications. This issue, along with there being a lack of appropriate post-CEW services, was cited as the main reason for CYP remaining in services beyond the commissioned duration. Finally, this subtheme captures the impact of complexity on how CYP engage with CEW services, and the emotional toll this can have on staff when supporting families in complex and challenging circumstances. This was particularly evident in discussion with participants around discharge and the difficulty of discharging CYP knowing that there will be little infrastructure to support them moving forward. Theme 3: The challenges of designing and delivering a pilot service Subtheme 3.1: Recruiting and retaining staff Several participants noted that they did not have a fully staffed MDT, often due to fixed-term, part-time and split-post contracts being “ not appealing ” (SL13_1), and the uncertainty associated with the future, longer-term funding of the CEW programme. Some participants described this as their ‘ biggest challenge ’ (SL4_1) or as a ‘ total nightmare ’ (SL15_1). There were also difficulties in recruiting certain professionals to the MDT, such as psychologists, due to national shortages. Consequently, participants highlighted how some services had amended the role advertised to reflect that it fulfilled the requirement for psychological support without being a qualified psychologist, such as the use of a family therapist: “When we were unsuccessful in getting a second psychologist, someone gave us the, the advice to look for a family therapist, so the next advert had psychologist or family therapist, and that has been tremendous. Although we weren't looking for one, we thought the family therapist could ‘play the part’ of a psychologist” (SL4_1) Participants highlighted how service delivery in CEW services were directly impacted by staffing issues. For example, one service had experienced difficulties in administering GLP-1s because of a lack of appropriate staff to run the necessary medication clinics, and the subsequent burden this placed on other MDT members to plug these gaps in care. Subtheme 3.2: Organisational challenges This subtheme encompasses organisational challenges at both the Trust (i.e., a Trust is an organisational unit within the NHS serving a geographical area) and commissioning levels. At a Trust level, MDT members described logistical and administrative challenges that hindered effective service delivery. Administrative challenges included not having the correct access to IT systems, and/or incompatible IT systems between services, and difficulties identifying relevant Human Resources processes. Some participants perceived these difficulties to be due to the use of dual contracts and/or different Trusts/organisations (e.g., contracted youth services) working together to deliver CEW services. One of the main logistical issues cited by participants was the difficulty in accessing appropriate clinic space to meet patients. Participants believed that this impacted their ability to deliver personalised care, be that through limiting opportunities for 1:1s with patients, or to host a full in-person MDT “ for eight people in a room that only fits three ” (SL18_4): “[Trust name] is terrible for getting clinic time and rooms, we really battle with that. And sometimes we don't even get offered a second room for our clinics at [Trust name] so it's very difficult to have that space to have kind of one to ones with the patients” (SL18_2) At a commissioning level, while most services appeared to appreciate the flexibility given to them when setting up the service, some noted that they would have preferred more time and guidance before launch. Additionally, the level of data recording and reporting required by NHS England was often underestimated, as mentioned by this service: “Originally, I don't think there was a good understanding of how much data would be required or the consistency of data, so the dashboard took two or three years to develop. So, a lot of us had used money on clinical staff rather than admin or data staff” (SL15_1) Subtheme 3.3: High demand, low capacity This subtheme is linked to the aforementioned recruitment and organisational challenges, given that many services were not fully staffed and therefore perceived to not be working optimally. Almost all participants noted that their service had high demand that could not be met with the current capacity of the service: I didn't realise that the demand was so high that we can't physically or possibly do this in a timely manner with the current resources that we've got. We cannot see as many patients as we would wish to see. And then we have more referrals coming in. (SL20_3) Participants also cited long waiting lists for specialist psychological support, such as Child and Adolescent Mental Health Services (CAMHS) and eating disorder services, perceiving this may be a result of “ eating disorder services favouring underweight rather than overweight [patients] ” (SL15_3). Others reflected on instances where the complexities of CYP had deteriorated while being on waiting lists, and those who were not initially eligible for the service becoming eligible as complications worsened due to a lack of intervention: “However, due to capacity, some of our patients have sat on a waiting list for a couple of years and in that time their complications have worsened” (SL6_2) Participants reflected on how the lack of capacity to meet the high demand for services resulted in unplanned adaptations to the service, such as the introduction of more stringent eligibility criteria to manage demand (e.g., higher BMI SDS). Some participants also spoke about a drive to be time efficient that resulted in areas of the service being under-developed or less attended to. “[…] something has to lose out, doesn't it? So, if I'm doing this, spending this much time doing data, then the wait list for them to start GLP-1s has to go longer or I don't go to a clinic on a Monday or…actual clinical work is what loses out …”. (SL9_6) 4. Discussion This paper provides insights into the realities of delivering a CEW service, including the perceived challenges, and facilitators of success. The main themes revealed 1) how person-centred care was achieved in CEW services 2) how the complexity of the patient cohort impacted the CYP’s journey moving through CEW services, and 3) the challenges of designing and delivering a pilot, including recruitment challenges. Central to the CEW programme is the use of person-centred care 23 , 24 . Our findings demonstrate multiple approaches used to achieve this, and how these approaches have enabled effective care delivery. The interviews highlighted that CEW services had to build relationships with the wider hospital, community services, and schools to facilitate inter-organisational communication and support the delivery of person-centred care, which is a known facilitator of inter-organisational collaboration 25 . This approach aligns with the NHS 10 Year Health Plan ambition to shift care out of hospitals and into community-based settings 26 and reflects calls for integrated community-embedded solutions for people living with complex, chronic symptoms 27 . However, we found that the ability to forge these relationships was dependent on hospitals’ existing partnerships, personal characteristics of MDT members, and existing social capital of MDT members to spearhead this joined-up approach, which has been reported elsewhere 28 . Similarly, the interviews highlighted the importance of knowledge exchange between services to share evidence of best practice, particularly given the complexity of needs reported within the patient cohort. This reflects wider evidence on the value of inter-organisational learning within healthcare 29 , underscoring the need for greater collaboration across services, particularly with leadership from more established services, to support the delivery of effective specialist weight management services for CYP. Multidisciplinary teams represent another component of CEW services that enable person-centred care. MDTs are well established in the management of other complex paediatric conditions such as diabetes 30 , cystic fibrosis 31 , and kidney disease 32 , 33 and more recently in the management of childhood obesity 34 , 35 . Our interviews revealed that the composition of professionals in the MDT was not homogenous across CEW services (aside from core clinical roles, i.e., medical consultant and nurse), but certain competencies were considered essential to the delivery, particularly in relation to safeguarding expertise, psychological support, and family support. This finding supports a shift towards competency-based MDTs, similar to those adopted in mental health services 36 , to better support the complex patient group, whilst also addressing role-specific recruitment challenges 36 , 37 . Importantly, our findings reiterate that effective MDT functioning depends on appropriate IT infrastructure, adequate workspace, and sufficient administrative support 38 . While pilot programmes provide opportunities to develop innovative working practices 39 , our interviews highlighted perceived job insecurity and its impact on staff recruitment and retention. This was compounded by a national shortage of mental health professionals 40 , limiting some CEW services’ ability to deliver the biopsychosocial model of care that underpins the CEW programme. Nevertheless, these challenges are not unique to CEW 41 , and broader efforts to improve staff retention in the NHS are ongoing 42 . Although the NHS Long Term Plan committed to treating 1,000 children per year living with severe obesity 15 , CEW services are experiencing a higher demand than commissioned capacity can support (Marwood et al. In prep; Matu et al. In prep). Our findings suggest that these demand and capacity constraints are further exacerbated by recruitment challenges, partly linked to the short-term nature of the CEW pilot programme. Adequate long-term funding and commissioning are therefore essential to establish a permanent and fully fledged MDT to ensure service sustainability and high standards of care. The CEW programme treats a cohort with high levels of complexity, including high levels of deprivation, neurodiversity (Matu et al., In prep), and safeguarding issues. Indeed, our data builds on this to suggest that CYP who use CEW services need long-term, flexible, holistic, person-centred support to address multiple clinical and social barriers to weight management, consistent with previous findings 24 . This flexibility includes the mode of delivery used, with both online and face-to-face remaining important components of care. As such, the NHS Long-Term Plan to reduce face-to-face outpatient appointments by a third 15 may be misaligned with the needs of the CEW patient cohort. Furthermore, our data suggest that MDT workplans should include increased protected time dedicated to continuing professional development, to enable the continued development of skills needed to respond effectively to the complex patient needs in CEW, beyond what is offered currently. In addition, given the high emotional toll of working with clinically and socially complex groups evidenced within our data and other samples 43 , it is important that MDT members continue to receive appropriate supervision and wellbeing support. Overall, long-term commissioning of the CEW programme should account for the complexity of the patient cohort, as well as the time and workforce development required to equip MDT members to deliver appropriate and efficient care. Another key finding of this study related to the lack of appropriate long-term care for CYP accessing CEW services, including a dearth of services for CYP to transition to. This reflects both a national shortage of paediatric weight management services 44 and services to support transition into adult care. Those who are 16–18-year-old are therefore often left devoid of weight management support, which mirrors the views of the ENHANCE Patient and Public Involvement group, the ARROWs (ENHANCE, 2024). Given the evidence showing significant weight regain after paediatric weight management interventions 46 and after the cessation of weight loss medications 47 , there is a need for long-term support for CYP and their families post-CEW, including appropriate wraparound and transitional services. Recommendations This study has several recommendations. Firstly, there should be greater consideration for wraparound step-down and appropriate transitional adult services post-CEW. Secondly, the level of patient complexity in CYP with severe obesity needs to be anticipated to ensure appropriate and efficient care, specifically through a dedicated specialised weight management service for this population group, as Tier 2 services are unlikely to be able to provide this level of support. Thirdly, a long-term, adequately funded commissioning plan to enable the recruitment of a permanent and ‘fully-fledged’ MDT would be needed to ensure service sustainability. Fourthly, greater collaborative working between CEW services, led by those more established, would be necessary to support newer services during the design and implementation phase. This could include sharing best practice regarding logistics, workforce recruitment, and delivery models. Fifthly, to more effectively respond to the levels of patient complexity, services would need to prioritise the upskilling of the MDT in these areas, beyond what is currently provided, supported by adequate funding to do so. Finally, in parallel and recognising the demands of working with a complex and vulnerable patient group, staff wellbeing support should be strengthened and more clearly signposted. Strengths and limitations The current study was co-produced with policy partners at NHSE, clinical co-investigators, and with the wider ENHANCE team, integrating expertise from policy, economics, and health, strengthening its methodological and contextual rigour. In addition, data were collected from a diverse range of professional roles within the MDT, ensuring multiple perspectives from a geographically diverse sample within England. That said, not all MDT roles were interviewed, potentially restricting the diversity of professional perspectives. Similarly, derived themes were drawn from seven of 38 CEW services and so may not fully reflect the practices or perspectives of the whole CEW programme. It should also be noted that services included in this study were purposively selected for their innovative approaches to delivering their CEW service. This potentially may have introduced sampling bias and thus limit the generalisability of findings to less-developed services. Therefore, it is important that future commissioning decisions be taken within the context of the broader findings of the ENHANCE evaluation. 5. Conclusion This study presents novel insights from MDT members on the delivery of the first NHS commissioned specialist weight management pilot for CYP in England. It highlights the distinct challenges and facilitators associated with designing and implementing a pilot programme, as well as the impact on service delivery. The findings also underscore the complexity within the CEW patient cohort, and the corresponding need for person-centred, holistic, and flexible models of care. Collectively, these findings suggest that the CEW programme represents a distinctive and innovative approach to specialist paediatric obesity service delivery, and that any future roll out could incorporate the ENHANCE evaluation recommendations to optimise models of care. Declarations Ethics approval and consent to participate Ethical approval was granted from Leeds Beckett University Ethics Committee (Ref: 128404) and Sheffield Hallam University Ethics Committee (Ref: 79269135) and is in accordance with the Declaration of Helsinki. Consent for publication Not applicable Competing Interests RAS, JM, PD, EI, AM, LN and VS declare no conflicts of interest. JN has received funding from the NIHR and Sport England, and has had travel expenses paid for by the Novo Nordisk Foundation to attend the Childhood Obesity cluster in Denmark. LE receives funding from the NIHR, MRC and Oliver Bird Foundation. She is also an unpaid author of the ACTION Teens study and has delivered a workshop to clinical pharmacists that was sponsored by Eli Lilly – payment was received by Leeds Beckett University. CH receives funding from NIHR. KC has previously undertaken research consultancy for Oviva, Manual and Oxford Medical Products through University research consultancy agreements. Funding This study is funded by the NIHR Health and Social Care Delivery Research programme (NIHR 158453). The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care. Author Contribution **RAS:** Writing – original draft, Visualization, Methodology, Investigation, Formal analysis, Conceptualization, Project administration. **JM:** Writing – original draft, Visualization, Formal analysis. **PD:** Writing – review & editing, Investigation. **JN:** Writing – review & editing, Supervision, Methodology, Investigation, Formal analysis, Conceptualization, Funding acquisition. **KC:** Writing – review & editing, Funding acquisition. **EI:** Writing – review & editing, Validation. **AM:** Writing – review & editing, Funding acquisition. **VS:** Writing – review & editing, Funding acquisition. **LN** : Writing – review & editing, Validation. Funding acquisition. **LE** : Writing – review & editing, Methodology, Conceptualization, Funding acquisition. **CH** : Writing – review & editing, Methodology, Conceptualization, Funding acquisition. Acknowledgement The authors would like to acknowledge Jaffer Ismail, Sally Abbott, and Helen Benn from NHS England, who has worked on the co-production of this study and identification of study aims and who provided feedback on an earlier draft of this manuscript. The authors would also like to acknowledge the Patient and Public Involvement team 'ARROWS' that have worked on the co-production of the ENHANCE study. ENHANCE includes a multidisciplinary team of academics and clinicians. The authors would like to acknowledge the team, including The ENHANCE project includes a multidisciplinary team of academics and clinicians. The authors would like to acknowledge the team, including Dr Martin Lamb, Professor Claire Griffiths, Kath Sharman, Karina Kinsella, Rhiannon Day, Dr Jamie Matu, Dr Megan Garside, Dr Richard Mattock, Dr Charlotte Benkowitz, Dr Chris Brown, Dr Taya Zabula, Professor Julian Hamilton-Shield, Dr Dita Aswani, Dr Neil Wright, Dr Caroline Steele, Claire, Woodward, Tahira Amin, Daisy Forman and Kaydee Shepherd. Data Availability The data that support the findings of this study are not openly available due to reasons of sensitivity and are available from the corresponding author upon reasonable request. References World Health Organization. Obesity and Overweight. 2025. Accessed March 17, 2026. https://www.who.int/news-room/fact-sheets/detail/obesity-and-overweight Department of Health & Social Care. National Child Measurement Programme Annual Report, Academic Year 2024 to 2025. 2025. 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NHS Retention Drive Expanded across the Country with Thousands Fewer Staff Leaving Frontline Roles. 2023. Accessed March 17, 2026. https://www.england.nhs.uk/2023/12/nhs-retention-drive-expanded-across-the-country-with-thousands-fewer-staff-leaving-frontline-roles/ Shaw RL, Butcher I, Webb S, Duncan HP, Morrison R. Building evidence-based interventions to improve staff well‐being in paediatric critical care using the behaviour change wheel. Nurs Crit Care. 2025;30(4). 10.1111/nicc.13228 . Mears R, Leadbetter S, Candler T, Sutton H, Sharp D, Shield JPH. Cross-sectional survey of child weight management service provision by acute NHS trusts across England in 2020/2021. BMJ Open. 2022;12(11):e061971. 10.1136/bmjopen-2022-061971 . ENHANCE. ENHANCE ARROWS. 2024. Accessed March 17, 2026. https://www.enhance-research.com/enhance-arrows Vermeiren E, Bruyndonckx L, De Winter B, Verhulst S, Van Eyck A, Van Hoorenbeeck K. The effect of weight regain on cardiometabolic health in children with obesity: A systematic review of clinical studies. Nutr Metabolism Cardiovasc Dis. 2021;31(9):2575–86. 10.1016/j.numecd.2021.05.020 . West S, Scragg J, Aveyard P, et al. Weight regain after cessation of medication for weight management: systematic review and meta-analysis. BMJ. 2026;392:e085304. 10.1136/bmj-2025-085304 . Additional Declarations Competing interest reported. RAS, JM, PD, EI, AM, LN and VS declare no conflicts of interest. JN has received funding from the NIHR and Sport England, and has had travel expenses paid for by the Novo Nordisk Foundation to attend the Childhood Obesity cluster in Denmark. LE receives funding from the NIHR, MRC and Oliver Bird Foundation. She is also an unpaid author of the ACTION Teens study and has delivered a workshop to clinical pharmacists that was sponsored by Eli Lilly – payment was received by Leeds Beckett University. CH receives funding from NIHR. KC has previously undertaken research consultancy for Oviva, Manual and Oxford Medical Products through University research consultancy agreements. Supplementary Files SupplementaryFile1InterviewTopicGuide.docx SupplementaryFile2PositionalityStatements.docx SupplementaryFile3Thematicquotations.docx Cite Share Download PDF Status: Under Review Version 1 posted Editorial decision: Revision requested 11 May, 2026 Reviewers agreed at journal 10 May, 2026 Reviews received at journal 06 May, 2026 Reviews received at journal 05 May, 2026 Reviewers agreed at journal 22 Apr, 2026 Reviewers agreed at journal 16 Apr, 2026 Reviewers invited by journal 16 Apr, 2026 Editor invited by journal 02 Apr, 2026 Editor assigned by journal 02 Apr, 2026 Submission checks completed at journal 02 Apr, 2026 First submitted to journal 27 Mar, 2026 You are reading this latest preprint version Research Square lets you share your work early, gain feedback from the community, and start making changes to your manuscript prior to peer review in a journal. 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17:54:50","currentVersionCode":1,"declarations":"","doi":"10.21203/rs.3.rs-9247438/v1","doiUrl":"https://doi.org/10.21203/rs.3.rs-9247438/v1","draftVersion":[],"editorialEvents":[],"editorialNote":"","failedWorkflow":false,"files":[{"id":107832698,"identity":"a4de2567-d339-4324-ae6f-3c8ea2ae0ef3","added_by":"auto","created_at":"2026-04-26 15:35:29","extension":"jpeg","order_by":1,"title":"Figure 1","display":"","copyAsset":false,"role":"figure","size":57266,"visible":true,"origin":"","legend":"\u003cp\u003eDot matrix plot of the roles of MDT members (Y axis) interviewed from the seven CEW services (X axis).\u003c/p\u003e","description":"","filename":"Figure1.jpeg","url":"https://assets-eu.researchsquare.com/files/rs-9247438/v1/05aa83b4b784767b83c7cc61.jpeg"},{"id":107832700,"identity":"35869e50-4ab5-4b83-aa21-16fbe9e24399","added_by":"auto","created_at":"2026-04-26 15:35:29","extension":"jpeg","order_by":2,"title":"Figure 2","display":"","copyAsset":false,"role":"figure","size":292194,"visible":true,"origin":"","legend":"\u003cp\u003eThematic map of three major themes (ovals), eight sub-themes (rectangles), and relationships between sub-themes.\u003c/p\u003e","description":"","filename":"Figure2.jpeg","url":"https://assets-eu.researchsquare.com/files/rs-9247438/v1/7065ab4b41aa7ec2d23efd23.jpeg"},{"id":108006186,"identity":"32ec200a-5bb0-4920-98d3-53c3a2e99aed","added_by":"auto","created_at":"2026-04-28 12:54:22","extension":"pdf","order_by":0,"title":"","display":"","copyAsset":false,"role":"manuscript-pdf","size":668293,"visible":true,"origin":"","legend":"","description":"","filename":"manuscript.pdf","url":"https://assets-eu.researchsquare.com/files/rs-9247438/v1/b053342b-ba86-426b-8ba1-643643134804.pdf"},{"id":107832697,"identity":"bba07f3e-13e3-4539-b791-2508b60b39ef","added_by":"auto","created_at":"2026-04-26 15:35:29","extension":"docx","order_by":1,"title":"","display":"","copyAsset":false,"role":"supplement","size":55325,"visible":true,"origin":"","legend":"","description":"","filename":"SupplementaryFile1InterviewTopicGuide.docx","url":"https://assets-eu.researchsquare.com/files/rs-9247438/v1/1a9d4f1a1e9ba5c718284050.docx"},{"id":107869706,"identity":"4f98f92d-c07b-46d6-ad14-4888b929dfdf","added_by":"auto","created_at":"2026-04-27 07:37:55","extension":"docx","order_by":2,"title":"","display":"","copyAsset":false,"role":"supplement","size":21279,"visible":true,"origin":"","legend":"","description":"","filename":"SupplementaryFile2PositionalityStatements.docx","url":"https://assets-eu.researchsquare.com/files/rs-9247438/v1/3c5a22726b0c017f53431895.docx"},{"id":107869657,"identity":"7273f513-27f1-41bd-af45-0d9bdfea4568","added_by":"auto","created_at":"2026-04-27 07:37:45","extension":"docx","order_by":3,"title":"","display":"","copyAsset":false,"role":"supplement","size":26381,"visible":true,"origin":"","legend":"","description":"","filename":"SupplementaryFile3Thematicquotations.docx","url":"https://assets-eu.researchsquare.com/files/rs-9247438/v1/4cf8b1c21df562476d9aa95c.docx"}],"financialInterests":"Competing interest reported. RAS, JM, PD, EI, AM, LN and VS declare no conflicts of interest. JN has received funding from the NIHR and Sport England, and has had travel expenses paid for by the Novo Nordisk Foundation to attend the Childhood Obesity cluster in Denmark. LE receives funding from the NIHR, MRC and Oliver Bird Foundation. She is also an unpaid author of the ACTION Teens study and has delivered a workshop to clinical pharmacists that was sponsored by Eli Lilly – payment was received by Leeds Beckett University. CH receives funding from NIHR. KC has previously undertaken research consultancy for Oviva, Manual and Oxford Medical Products through University research consultancy agreements.","formattedTitle":"“It’s the biggest not one-size-fits-all service I’ve ever worked in”: The realities of delivering a ‘Complications of Excess Weight’ service for children and young people in England from a multidisciplinary team perspective","fulltext":[{"header":"1. Background","content":"\u003cp\u003eAn estimated 8% of children and adolescents aged 5\u0026ndash;19 years were living with obesity globally in 2022 (i.e., a body mass index (BMI)\u0026thinsp;\u0026gt;\u0026thinsp;2 standard deviations above the median for their age/years and gender), compared with only 2% in 1990 \u003csup\u003e1\u003c/sup\u003e. In the UK, data from the National Child Measurement Programme of the 2024/25 academic year, showed 10.5% of children aged 4\u0026ndash;5 years and 22.2% aged 10\u0026ndash;11 years were living with obesity, including 2.9% and 5.6%, respectively, with severe obesity (BMI\u0026thinsp;\u0026gt;\u0026thinsp;99.6th centile) \u003csup\u003e\u003cspan citationid=\"CR2\" class=\"CitationRef\"\u003e2\u003c/span\u003e\u003c/sup\u003e. However, this statistic may be an underestimate as children at this body weight are less likely to attend school \u003csup\u003e\u003cspan citationid=\"CR3\" class=\"CitationRef\"\u003e3\u003c/span\u003e\u003c/sup\u003e. In high-income countries, obesity is socially patterned, where in areas of deprivation obesity prevalence increases with deprivation quintile \u003csup\u003e\u003cspan citationid=\"CR4\" class=\"CitationRef\"\u003e4\u003c/span\u003e\u003c/sup\u003e. For example, in areas of higher deprivation in the UK, 30% of children aged 10\u0026ndash;11 years are living with obesity, compared to 13% of children of the same age-group in the least deprived areas \u003csup\u003e\u003cspan citationid=\"CR5\" class=\"CitationRef\"\u003e5\u003c/span\u003e\u003c/sup\u003e. This highlights the growing prevalence in, and widening of inequalities regarding, obesity in CYP.\u003c/p\u003e \u003cp\u003eSevere obesity in childhood is widely recognised as a persistent health issue that tracks into adulthood \u003csup\u003e\u003cspan citationid=\"CR6\" class=\"CitationRef\"\u003e6\u003c/span\u003e,\u003cspan citationid=\"CR7\" class=\"CitationRef\"\u003e7\u003c/span\u003e\u003c/sup\u003e. It is a key risk factor for developing many long term non-communicable diseases, such as cancer, Type 2 diabetes, and cardiovascular disease, all of which contribute to decreased life expectancy and elevated early mortality rates \u003csup\u003e\u003cspan additionalcitationids=\"CR9\" citationid=\"CR8\" class=\"CitationRef\"\u003e8\u003c/span\u003e\u0026ndash;\u003cspan citationid=\"CR10\" class=\"CitationRef\"\u003e10\u003c/span\u003e\u003c/sup\u003e. Indeed, recent modelling indicates that if a patient has a BMI z-score of 4 (i.e., severe obesity) by the age of 4-years and does not lose weight, they have a life expectancy of 39 years \u003csup\u003e\u003cspan citationid=\"CR11\" class=\"CitationRef\"\u003e11\u003c/span\u003e\u003c/sup\u003e. Childhood obesity is also linked to psychosocial consequences, such as lower self-esteem, lower academic attainment, and higher social exclusion \u003csup\u003e\u003cspan citationid=\"CR12\" class=\"CitationRef\"\u003e12\u003c/span\u003e\u003c/sup\u003e. Despite these significant impacts, weight management to support children and young people (CYP) living with severe obesity is limited \u003csup\u003e\u003cspan citationid=\"CR13\" class=\"CitationRef\"\u003e13\u003c/span\u003e,\u003cspan citationid=\"CR14\" class=\"CitationRef\"\u003e14\u003c/span\u003e\u003c/sup\u003e.\u003c/p\u003e \u003cp\u003eThe NHS Long Term Plan committed to supporting 1,000 children per year, regarding complications related to severe obesity \u003csup\u003e\u003cspan citationid=\"CR15\" class=\"CitationRef\"\u003e15\u003c/span\u003e\u003c/sup\u003e. Subsequently, in 2021, NHS England commissioned the \u0026ldquo;Complications of Excess Weight\u0026rdquo; (CEW) pilot across England. This pilot initially funded 21 CEW services, increasing to 38 services by 2024. The primary aim of the programme was to provide person-centred, holistic treatment for CYP aged 2\u0026ndash;17 years who were living with severe obesity and co-morbidities, with the goal of reducing the need for more invasive treatments later \u003csup\u003e\u003cspan citationid=\"CR16\" class=\"CitationRef\"\u003e16\u003c/span\u003e\u003c/sup\u003e. Each CEW service was given some autonomy to design and deliver their service tailored to the specific needs of their local population, which resulted in variability across different localities. Consequently, the ENHANCE study \u003csup\u003e\u003cspan citationid=\"CR17\" class=\"CitationRef\"\u003e17\u003c/span\u003e\u003c/sup\u003e was funded to provide a comprehensive understanding as to the make-up, effectiveness, and cost-effectiveness of the CEW programme. In this paper, as part of the ENHANCE study, we aimed to explore the realities of delivering a CEW service from the perspective of multidisciplinary team (MDT) members.\u003c/p\u003e"},{"header":"2. Materials and Methods","content":"\u003cp\u003eThis paper is reported according to COREQ guidelines for reporting qualitative research \u003csup\u003e\u003cspan citationid=\"CR18\" class=\"CitationRef\"\u003e18\u003c/span\u003e\u003c/sup\u003e. This study employed a qualitative design using semi-structured online interviews. Ethical approval was granted from Leeds Beckett University Ethics Committee (Ref: 128404) and Sheffield Hallam University Ethics Committee (Ref: 79269135) and is in accordance with the Declaration of Helsinki.\u003c/p\u003e \u003cdiv id=\"Sec3\" class=\"Section2\"\u003e \u003ch2\u003e2.1. Recruitment and sampling\u003c/h2\u003e \u003cp\u003eSeven CEW services from across the UK were purposively sampled. Sampling was informed by geographical representation and responses to an adapted Standardised Reporting of Lifestyle Weight Management InTERventions (STAR-LITE) template \u003csup\u003e\u003cspan citationid=\"CR19\" class=\"CitationRef\"\u003e19\u003c/span\u003e\u003c/sup\u003e - findings presented elsewhere (Marwood et al, in prep; ENHANCE, 2024a). In short, the adapted STAR-LITE template systematically examined: a) the process of designing the CEW services; b) referral routes, capacity and waiting lists; c) the MDT composition, service delivery, pharmacotherapy, and complication management; d) discharge criteria and onward referral processes; and e) data management systems. Services were shortlisted for inclusion in the current study if they had detailed 'innovative' approaches to service delivery, including novel compositions of their MDT (i.e., not routinely seen across services, such as a family support worker) in their STAR-LITE response. Innovative approaches were determined using a systematic ranking criterion that was developed by the researchers. This consisted of eight criteria: composition of MDT; waiting list/ commissioned capacity; inclusion age; length of appointments; treatment interventions; GLP-1 use; discharge criteria; and transition services. Ten services were shortlisted and then pragmatically reduced to seven services in collaboration with NHS England (who have interests in service design/MDT availability) and the wider ENHANCE team. Additionally, within each selected CEW service, key staff were also purposefully sampled to ensure a range of MDT roles were represented. The lead clinicians of all seven services granted permission to recruit and conduct the interviews with the selected MDT members.\u003c/p\u003e \u003c/div\u003e \u003cdiv id=\"Sec4\" class=\"Section2\"\u003e \u003ch2\u003e2.2. Development of topic guide\u003c/h2\u003e \u003cp\u003eThe interview topic guide (Supplementary File 1) was co-produced with the wider ENHANCE team, which included academics, healthcare professionals and patient and public involvement. It explored each participant\u0026rsquo;s involvement in the CEW service and their experiences of the delivery of CEW, including perceptions of demand, descriptions of the patient cohort, and any adaptations made to the service. Experiences of working within an MDT and the innovative approach for why each service was selected to participate were also discussed. In addition, the topic guide explored barriers and facilitators to delivering the CEW services, and staff members\u0026rsquo; perspectives on how the CEW service fits within wider weight management systems locally. Where relevant, topics such as safeguarding and onward or transition referrals were explored. The topic guide was piloted with staff based in a children\u0026rsquo;s specialist community weight management service to assess its utility and to gauge timings.\u003c/p\u003e \u003c/div\u003e \u003cdiv id=\"Sec5\" class=\"Section2\"\u003e \u003ch2\u003e2.3. Data collection\u003c/h2\u003e \u003cp\u003eIndividual interviews were conducted and recorded online using Microsoft Teams (April-June 2025). Written informed consent was obtained in advance of the interview and reconfirmed verbally during interview. Interviews were transcribed verbatim using Microsoft Team\u0026rsquo;s auto transcription feature into Microsoft Word and anonymised by a university approved provider, with final transcripts checked against the recordings for accuracy by RAS.\u003c/p\u003e \u003cp\u003eThe research team involved in the interviewing and analysis process (RAS, JMa, PD, JN) consisted of academics from varying career stages, with expertise in nutrition, public health, and behavioural science. They are skilled in conducting public health evaluations and informing evidence-based policy. This knowledge provides useful context for the conduct and interpretation of interviews, but we acknowledge the potential for bias in both the interpretation and representation of the data. Therefore, we include positionality statements to make explicit our roles and perspectives in relation to the research, which aligns with the principle of reflexivity \u003csup\u003e\u003cspan citationid=\"CR20\" class=\"CitationRef\"\u003e20\u003c/span\u003e\u003c/sup\u003e (Supplementary File 2).\u003c/p\u003e \u003c/div\u003e \u003cdiv id=\"Sec6\" class=\"Section2\"\u003e \u003ch2\u003e2.4. Data analysis\u003c/h2\u003e \u003cp\u003eTranscripts were thematically analysed using inductive Framework Analysis (RAS and JM) following steps outlined in Gale et al. (2013)\u003csup\u003e\u003cspan citationid=\"CR21\" class=\"CitationRef\"\u003e21\u003c/span\u003e\u003c/sup\u003e RAS and JM independently coded three transcripts and used these codes to jointly develop a working analytical framework, which was subsequently refined via application to three more transcripts. The final framework was used to analyse the remaining transcripts using NVivo, before generating a framework matrix using Microsoft Excel. Overall themes were generated from the framework matrix by examining connections between and within participants and codes. This analytical approach is often used for multidisciplinary healthcare research \u003csup\u003e\u003cspan citationid=\"CR21\" class=\"CitationRef\"\u003e21\u003c/span\u003e,\u003cspan citationid=\"CR22\" class=\"CitationRef\"\u003e22\u003c/span\u003e\u003c/sup\u003e and is ideal for the analysis of semi-structured interview transcripts.\u003c/p\u003e \u003c/div\u003e"},{"header":"3. Results","content":"\u003cdiv id=\"Sec8\" class=\"Section2\"\u003e \u003ch2\u003e3.1. Participants\u003c/h2\u003e \u003cp\u003eIn two services, the lead clinician requested that additional MDT members were invited to be interviewed 1:1 (SL9, n\u0026thinsp;=\u0026thinsp;2; SL18, n\u0026thinsp;=\u0026thinsp;1), and in three services, the lead clinician indicated that selected MDT members were no longer in post and were without replacements (SL6, n\u0026thinsp;=\u0026thinsp;1; SL13, n\u0026thinsp;=\u0026thinsp;1; SL15, n\u0026thinsp;=\u0026thinsp;1). Therefore, in total, 28 staff members were invited to interview and all participated (see Fig.\u0026nbsp;\u003cspan refid=\"Fig1\" class=\"InternalRef\"\u003e1\u003c/span\u003e for MDT role by service). Interviews were conducted by RAS (n\u0026thinsp;=\u0026thinsp;18, 64%), PD (n\u0026thinsp;=\u0026thinsp;8, 29%), or JN (n\u0026thinsp;=\u0026thinsp;2, 7%), and lasted approximately 45 minutes (range: 29\u0026ndash;67 minutes).\u003c/p\u003e \u003cp\u003e \u003c/p\u003e \u003cp\u003e \u003cstrong\u003eNote\u003c/strong\u003e \u003cp\u003eParticipant codes (e.g., \u0026lsquo;_2\u0026rsquo;) do not correspond to Fig.\u0026nbsp;\u003cspan refid=\"Fig1\" class=\"InternalRef\"\u003e1\u003c/span\u003e and are not consistent across services to maintain anonymity. For example, SL4_2 and SL9_2 do not reflect the same MDT role.\u003c/p\u003e \u003c/p\u003e \u003c/div\u003e \u003cdiv id=\"Sec9\" class=\"Section2\"\u003e \u003ch2\u003e3.2. Thematic findings\u003c/h2\u003e \u003cp\u003eThree major themes and eight sub-themes were generated in the analysis: 1) \u003cem\u003eAchieving person-centred care in CEW services\u003c/em\u003e; 2) \u003cem\u003eNavigating complexity in the CEW patient journey\u003c/em\u003e; and 3) \u003cem\u003eThe challenges of designing and delivering a pilot\u003c/em\u003e (Fig.\u0026nbsp;2).\u003c/p\u003e \u003cp\u003e \u003cspan type=\"Underline\" class=\"Underline\" name=\"Emphasis\"\u003eFigure 2\u003c/span\u003e: Thematic map of three major themes (ovals), eight sub-themes (rectangles), and relationships between sub-themes.\u003c/p\u003e \u003cp\u003e The following section presents these themes, along with short example quotes. Further supporting quotations, over 4 lines long, can be found in Supplementary File 3.\u003c/p\u003e \u003cp\u003e \u003cspan type=\"Underline\" class=\"Underline\" name=\"Emphasis\"\u003eTheme 1: Achieving person-centered care in CEW services\u003c/span\u003e \u003c/p\u003e \u003cp\u003eWhen exploring how CEW services were delivered, participants universally described how their service delivered flexible person-centered care. Participants reflected on how that care was delivered and suggested the composition and function of the MDT in CEW was central to this, as well as the importance of creating relationships external to CEW services, including through the wider CEW network and with other services (e.g., other hospital departments (e.g., CAMHS), social services, and schools).\u003c/p\u003e \u003cp\u003e \u003cspan type=\"ItalicUnderline\" class=\"ItalicUnderline\" name=\"Emphasis\"\u003eSubtheme 1.1: The composition and function of the MDT\u003c/span\u003e \u003c/p\u003e \u003cp\u003eAcross the interviews, the composition of roles within the MDT varied. Participants referred to specific professions that were considered integral to delivering person-centred care in CEW, outside of core clinical roles (e.g., medical consultant, nurse, dietician). Given the level of complexity in the patient group (see Theme 2), many participants emphasised the need for a dedicated social worker to be \u0026ldquo;\u003cem\u003eembedded\u003c/em\u003e\u0026rdquo; within CEW. This was conceived to enable more effective and efficient safeguarding support, addressing perceived shortcomings in social services, and to reduce burden on other MDT members:\u003cdiv class=\"BlockQuote\"\u003e\u003cp\u003e\u003cem\u003e\u0026ldquo;The universal barrier to effective safeguarding is related to social services and their completely inconsistent approach to obesity as a risk factor. So, we [medics] spend a huge amount of time trying to explain to social services what the risks are\u0026rdquo;\u003c/em\u003e (SL15_1)\u003c/p\u003e\u003c/div\u003e\u003c/p\u003e \u003cp\u003eFamily support workers were also seen as important to delivering person-centred care in CEW services due to their ability to holistically address family-based challenges experienced by CYP and their families. This was considered particularly important for younger children, where autonomy is lower and family-level factors play an even stronger role in engagement with CEW services. In contrast to family support roles, some participants also highlighted the importance of including youth workers within the MDT, to support adolescents who had greater agency. Youth workers were described as less authoritative and were felt to help de-medicalise CEW services for young people, which facilitated engagement:\u003cdiv class=\"BlockQuote\"\u003e\u003cp\u003e \u003cem\u003eThe youth worker is just cool; she's brilliant at engaging CYP. They don't see her as authority. She takes them out of the medical system very quickly and into community and other engagement projects\u0026rdquo;\u003c/em\u003e (SL15_1)\u003c/p\u003e\u003c/div\u003e\u003c/p\u003e \u003cp\u003eNotably, it appeared that services differed in the role title used for the youth worker role, with some adopting \u0026ldquo;health and wellbeing practitioner\u0026rdquo; instead. Nevertheless, the skill set required appeared to remain similar between roles:\u003cdiv class=\"BlockQuote\"\u003e\u003cp\u003e \u003cem\u003e\u0026ldquo;So, my role is called a health and well-being practitioner. Other services are called other things. Sometimes they're youth workers, sometimes they're psychological whatever. There's lots of different titles for similar roles\u0026rdquo;\u003c/em\u003e (SL18_3)\u003c/p\u003e\u003c/div\u003e\u003c/p\u003e \u003cp\u003eBeyond professional expertise, participants emphasised that personal qualities and social capital were critical to the delivery of effective person-centred care in CEW services, particularly to \u003cem\u003e\u0026ldquo;open doors\u0026rdquo;\u003c/em\u003e (SL18_4). In addition, the ability to build strong relationships with CYP was described as central to engagement, as well as having \u0026ldquo;\u003cem\u003epassion\u003c/em\u003e\u0026rdquo; and \u0026ldquo;\u003cem\u003egenuine care\u0026rdquo;\u003c/em\u003e given the \u0026ldquo;\u003cem\u003eups and downs\u003c/em\u003e\u0026rdquo; (SL15_3) of CEW services:\u003cdiv class=\"BlockQuote\"\u003e\u003cp\u003e \u003cem\u003eIt is that relationship building as well that's been a really big thing that we have to, you have to be a certain kind of person to be able to kind of build those relationships with our young people and I think that's a really big part of getting them to keep coming back if they feel like they've got a good relationship with\u0026rdquo;\u003c/em\u003e (SL9_5)\u003c/p\u003e\u003c/div\u003e\u003c/p\u003e \u003cp\u003eIn addition, participants indicated that having previous experience of working with children with severe and complex obesity was crucial to anticipate and comprehend the level of patient complexity, and to provide care that is effective:\u003cdiv class=\"BlockQuote\"\u003e\u003cp\u003e \u003cem\u003e\u0026ldquo;I think I knew that, after years of working with this particular group, they're very vulnerable and you need to think outside the box to be able to help them\u0026rdquo;\u003c/em\u003e (SL15_1)\u003c/p\u003e\u003c/div\u003e\u003c/p\u003e \u003cp\u003eRegarding the function of the MDT, participants highlighted the perceived benefits of having a dedicated office space, which facilitated team cohesion and improved morale:\u003cdiv class=\"BlockQuote\"\u003e\u003cp\u003e \u003cem\u003e\u0026ldquo;P: We've been lucky enough to have an actual office rather than people sitting in hot desking or anything like that. It used to be a cupboard, but now it's at the office.\u003c/em\u003e \u003c/p\u003e\u003cp\u003e \u003cem\u003eI: Has that made an impact?\u003c/em\u003e \u003c/p\u003e\u003cp\u003e \u003cem\u003eP: Definitely, to have that space for the support of the team to be able to support each other and have a place, you know, that is theirs\u0026rdquo;\u003c/em\u003e (SL6_1)\u003c/p\u003e\u003c/div\u003e\u003c/p\u003e \u003cp\u003eMaintaining clear operational processes was also seen as key. Participants emphasised the importance of tracking actions discussed in MDT meetings to ensure efficiency and follow-through. One service used an online cloud spreadsheet to enable this:\u003cdiv class=\"BlockQuote\"\u003e\u003cp\u003e \u003cem\u003eWe use an online cloud spreadsheet so everyone can access at the same time, and it gets saved automatically, so no data is lost. So, once we've discussed it in MDT, we mark it so that doesn't get transferred for the next week's meeting\"\u003c/em\u003e (SL9_1)\u003c/p\u003e\u003c/div\u003e\u003c/p\u003e \u003cp\u003eImportantly however, administrative support was seen as essential for enabling person-centred care in CEW services, and for supporting the level of data recording and reporting required by NHS England as part of the national evaluation (see Subtheme 1.2):\u003cdiv class=\"BlockQuote\"\u003e\u003cp\u003e \u003cem\u003e\u0026ldquo;But with that [person-centred care] comes the need to expand the admin that's dedicated to make that run more smoothly essentially\u0026rdquo;\u003c/em\u003e (SL13_1)\u003c/p\u003e\u003c/div\u003e\u003c/p\u003e \u003cp\u003e \u003cspan type=\"ItalicUnderline\" class=\"ItalicUnderline\" name=\"Emphasis\"\u003eSubtheme 1.2: Relationships beyond the walls of the CEW service\u003c/span\u003e \u003c/p\u003e \u003cp\u003eParticipants often reflected on how their CEW service operated within the wider hospital system. They indicated that when other departments were in close proximity, the economies of scope, and spatial connectedness facilitated more efficient delivery of care:\u003cdiv class=\"BlockQuote\"\u003e\u003cp\u003e \u003cem\u003e\u0026ldquo;Most importantly, the other specialties would be able to address complications of obesity, they're all here. So, I think for that point of view, it\u0026rsquo;s a really good environment because it\u0026rsquo;s one of the biggest Children's Hospital in the country. You've got a lot of specialists here. It's a huge hospital. They've got support, it\u0026rsquo;s very well connected\"\u003c/em\u003e (SL20_1)\u003c/p\u003e\u003c/div\u003e\u003c/p\u003e \u003cp\u003eParticipants\u0026rsquo; perception of the utility of the national and regional CEW networks was largely positive. Almost all participants valued having a platform to share learning and exchange knowledge with their counterparts (see below), whereas for nurses, the network was reportedly not utilised as often due to difficulties in scheduling meetings.\u003cdiv class=\"BlockQuote\"\u003e\u003cp\u003e\u003cem\u003e\u0026ldquo;I\u0026rsquo;ve found the CEW network really helpful. I meet with other dietitians, because we're often working in isolation, so that's been handy to hear what they're doing. We share information so we don't have to reinvent the wheel if someone's doing something else and they're happy to share resources, so that's been brilliant\u0026rdquo;\u003c/em\u003e (SL15_3)\u003c/p\u003e\u003c/div\u003e\u003c/p\u003e \u003cp\u003eParticipants also acknowledged that CEW services can \u0026ldquo;\u003cem\u003eonly do so much\u003c/em\u003e\u0026rdquo; (SL15_2), and therefore engaging support from outside of CEW services (and the hospital) is important. Participants highlighted the value of building strong relationships with schools. In this illustrative quote, a relationship between a CEW service and school has enabled the CYP\u0026rsquo;s timetable to be adapted to better suit their needs, thereby increasing school attendance:\u003cdiv class=\"BlockQuote\"\u003e\u003cp\u003e \u003cem\u003e\u0026ldquo;So, we all link in with the schools as much as we can and get the timetables changed so that a young person that's going in 20% of the week can actually go in 70% of the week and come out with their GCSEs [higher education qualifications in UK]\u0026rdquo;\u003c/em\u003e (SL13_3)\u003c/p\u003e\u003c/div\u003e\u003c/p\u003e \u003cp\u003eSimilarly, participants noted the importance of building strong partnerships with local community services, explaining that these relationships helped CYP and their families access activities beyond CEW services, while also enabling CEW staff to understand \u0026ldquo;\u003cem\u003ewhat is out there\u003c/em\u003e\u0026rdquo; (SL15_2) and signpost effectively according to CYP needs.\u003c/p\u003e \u003cp\u003e \u003cspan type=\"ItalicUnderline\" class=\"ItalicUnderline\" name=\"Emphasis\"\u003eSubtheme 1.3: The child at the heart of the CEW service\u003c/span\u003e \u003c/p\u003e \u003cp\u003eWhen thinking about how person-centred care is delivered in CEW services, participants often cited how they used non-traditional approaches to obesity (i.e., innovative in comparison to standard obesity care), which promoted a non-stigmatising/non-judgemental service. Participants indicated that these approaches encouraged CYP to be \u003cem\u003e\u0026ldquo;open and honest\u0026rdquo;\u003c/em\u003e (SL6_2) about their food consumption, thereby facilitating holistic weight management support. Similarly, participants reflected on feedback received from CEW patients that celebrated CEW services\u0026rsquo; ability to make the CYP feel heard, which was believed to contrast with previous experiences with healthcare:\u003cdiv class=\"BlockQuote\"\u003e\u003cp\u003e\u003cem\u003e\u0026ldquo;And I think some of the feedback we've had is that our team actually listen to what they're saying. We understand where they're coming from, we help them in a holistic way...\u0026rdquo;\u003c/em\u003e (SL6_2)\u003c/p\u003e\u003c/div\u003e\u003c/p\u003e \u003cp\u003eParticipants emphasised the importance of flexibility in service delivery, describing CEW services as \u0026ldquo;\u003cem\u003ethe biggest not one-size-fits-all service\u003c/em\u003e\u0026rdquo; where \u0026ldquo;\u003cem\u003eyou couldn't follow a flow chart\u003c/em\u003e\u0026rdquo; (SL6_2) to care. This flexibility was framed as a core component of the person-centred care delivered in CEW, enabling CYP to exercise autonomy in guiding their care. This approach was contrasted with other hospital services, such as diabetes or endocrinology, which were perceived as more prescriptive:\u003cdiv class=\"BlockQuote\"\u003e\u003cp\u003e\u003cem\u003e\u0026ldquo;The team have a flexible mindset more than anything else. We don't have an agenda of what the CYP needs, they bring that to us, which is different to diabetes or endocrinology where you're prescribing a set thing. But that doesn't work for this group; you have to engage them by putting them at the forefront of every decision\u0026rdquo;\u003c/em\u003e (SL15_1).\u003c/p\u003e\u003c/div\u003e\u003c/p\u003e \u003cp\u003eIn addition to flexibility in the \u003cem\u003etype\u003c/em\u003e of support offered in response to CYP needs, participants also described flexibility in \u003cem\u003ehow\u003c/em\u003e support was delivered, including the mode of delivery (e.g., online, face to face, or group-based) and the scheduling of appointments. In the following illustrative quote, one respondent explained how expanding modes of delivery and opening hours of work helped accommodate CYP whose appointments would otherwise be during school hours:\u003cdiv class=\"BlockQuote\"\u003e\u003cp\u003e\u003cem\u003e\"And the feedback that we got was flexibility was very key to getting them through the door. So, very quickly I realised we needed to get on all platforms and formats, so face to face, online, telephone, sometimes in groups, depending on the need. And also, to open up our hours of work as well\"\u003c/em\u003e (SL18_4)\u003c/p\u003e\u003c/div\u003e\u003c/p\u003e \u003cp\u003eSimilarly, this flexibility enabled CEW services to adapt their delivery in response to the presenting complexity of CYP. For example, participants often described making environmental adjustments to better meet the needs of neurodivergent CYP:\u003cdiv class=\"BlockQuote\"\u003e\u003cp\u003e\u003cem\u003e\u0026ldquo;We've got some children with more complex disabilities and needs, specifically around autism and ADHD. I contact parents, like, do you need to use our sensory room rather than one of our clinic rooms? Would you like me to meet you around the back of the hospital, and we can come in that way?\u0026rdquo;\u003c/em\u003e (SL9_3)\u003c/p\u003e\u003c/div\u003e\u003c/p\u003e \u003cp\u003e \u003cspan type=\"Underline\" class=\"Underline\" name=\"Emphasis\"\u003eTheme 2: Navigating complexity in the CEW patient journey\u003c/span\u003e \u003c/p\u003e \u003cp\u003e \u003cspan type=\"ItalicUnderline\" class=\"ItalicUnderline\" name=\"Emphasis\"\u003eSubtheme 2.1: Describing and responding to complexity\u003c/span\u003e \u003c/p\u003e \u003cp\u003eWhile the CEW programme targeted medical and psychosocial complications related to excess weight, participants observed additional, often unexpected and multifaceted complexities among attending patients:\u003cdiv class=\"BlockQuote\"\u003e\u003cp\u003e \u003cem\u003e\u0026ldquo;Never in my wildest dreams did I imagine some of these families. There is never a week where we don't pick up on a new complexity, a new psychosocial risk factor\u0026rdquo;\u003c/em\u003e (SL6_2)\u003c/p\u003e\u003c/div\u003e\u003c/p\u003e \u003cp\u003eThe range of complexities described included: neurodiversity and/or intellectual disabilities in children and/or caregivers, high levels of poverty and deprivation, low levels of literacy, mental health difficulties, geographical barriers, adverse childhood experiences in children and/or caregivers, housing issues, and language barriers. The impact of these complexities differed. For neurodiversity, participants highlighted how this could result in selective eating, rigidity around food choices, and the use of food as a behaviour management tool.\u003cdiv class=\"BlockQuote\"\u003e\u003cp\u003e \u003cem\u003e\u0026ldquo;I suppose with the children with ASD and ADHD, more ASD, the using of food as a behaviour management tool is, that's one of our biggest areas we work with\u0026rdquo;\u003c/em\u003e (SL13_3)\u003c/p\u003e\u003c/div\u003e\u003c/p\u003e \u003cp\u003eFor those from a lower socioeconomic group, participants highlighted how this impact included difficulties in attending meetings due to a lack of transport options, an inability to afford leisure activities and healthier food options, and a lack of access to cooking facilities for those families living in temporary accommodation:\u003cdiv class=\"BlockQuote\"\u003e\u003cp\u003e \u003cem\u003e\u0026ldquo;Well, I suppose because [county] has got some of the most deprived communities and the transport links aren't great. So, getting to a big supermarket, often they're reliant on little supermarkets, little sort of local shops, which are obviously going to be more expensive\u0026rdquo;\u003c/em\u003e (SL13_3)\u003c/p\u003e\u003c/div\u003e\u003c/p\u003e \u003cp\u003eParticipants cited that there were high levels of safeguarding concerns observed in the CYP and families seen in CEW with social services involvement for many families. However, participants noted that there was often tension between social service teams and CEW due to lack of agreement on whether obesity is considered a safeguarding concern.\u003c/p\u003e \u003cp\u003eThe complexity of the patient group necessitated adaptations in delivering and tailoring care. Participants discussed the need to upskill in their role using training and development opportunities to enable them to better care for patients, particularly those with neurodiversity. Others noted that it was difficult to adapt and deliver group materials due to different levels of comprehension within the patient group:\u003cdiv class=\"BlockQuote\"\u003e\u003cp\u003e \u003cem\u003e\u0026ldquo;Definitely we see a lot of our young people are autistic and have ADHD as well. And that comes with its own challenges and the need for us as professionals to be educated on ways to support them\u0026rdquo;\u003c/em\u003e (SL15_2)\u003c/p\u003e\u003c/div\u003e\u003c/p\u003e \u003cp\u003eComplexity in the patient group sometimes meant that families were unable to engage with CEW services due to high demands in other areas of their lives (e.g., housing issues). However, all services included within this sample noted that they accepted re-referrals so that families can access support when it is more suitable for them:\u003cdiv class=\"BlockQuote\"\u003e\u003cp\u003e \u003cem\u003e\u0026ldquo;Sometimes it's probably too intense for them or they've got other things going on. I think some examples we've had are there\u0026rsquo;s been housing issues, school issues, there's been maybe violence in the home, these sorts of things have happened, and it has just been we [the family] cannot give it the time that CEW needs now\u0026rdquo;\u003c/em\u003e (SL18_4)\u003c/p\u003e\u003c/div\u003e\u003c/p\u003e \u003cp\u003e \u003cspan type=\"ItalicUnderline\" class=\"ItalicUnderline\" name=\"Emphasis\"\u003eSubtheme 2.2: The CEW patient journey\u003c/span\u003e \u003c/p\u003e \u003cp\u003eThe patient journey begins with how CYP and families are prepared for entering the CEW service. Across the sample, approaches differed, with some services providing, or planning to provide waitlist support, such as low-level healthy diet education, while other services did not. Participants noted that referrer communication quality was sometimes poor, where families were not made aware that they had been referred to CEW services or what the service entailed, and the subsequent perceived negative impact this had on engagement with services.\u003c/p\u003e \u003cp\u003eStaff often cited a general lack of \u0026lsquo;step down\u0026rsquo; (less intensive support) and transitional adult services, which impacted CEW\u0026rsquo;s ability to discharge. This included an absence of, or oversubscribed, adult weight management services. Where these services did exist, participants noted that transitional care was not always optimal and amounted to \u0026ldquo;\u003cem\u003etransaction rather than transition\u0026rdquo;\u003c/em\u003e (SL18_4). In some localities, there was a \u0026ldquo;\u003cem\u003eno man\u0026rsquo;s land\u003c/em\u003e\u0026rdquo; (SL20_3) between paediatric and adult weight management services where CYP age out of CEW but are not yet old enough to attend adult weight management services. This was considered particularly problematic for the continuation of pharmacological weight management:\u003cdiv class=\"BlockQuote\"\u003e\u003cp\u003e\u0026ldquo;\u003cem\u003eThey might come to us at 16 and then you're considering do you start GLP-1s or not because you know there isn\u0026rsquo;t an adult service to transition into. You can't keep them in paediatric care forever, so, does that mean they're not getting the treatment they need, or they would have eligibility for, because there's nowhere for them to go?\u0026rdquo;\u003c/em\u003e (SL9_5)\u003c/p\u003e\u003c/div\u003e\u003c/p\u003e \u003cp\u003eRegarding \u0026lsquo;step down\u0026rsquo; support, while some localities had paediatric Tier 2 / behavioural weight management programmes, participants questioned their utility for CYP who had already received intensive support provided by CEW services. Participants also noted that they found it difficult to \u0026ldquo;\u003cem\u003ekeep on top of\u0026rdquo;\u003c/em\u003e (SL9_5) the constantly changing weight management landscape (due to changes in commissioning and de-commissioning of Tier 2 services by local authorities), which was thought to hinder building connections with the right post-CEW services.\u003c/p\u003e \u003cp\u003eAn associated issue was the length of intervention delivery. MDT members cited that their service operated flexibly, with a maximum intervention delivery length of 2 years. However, there was a consensus across interviews that it often takes significant time to engage families, gain trust, and establish rapport, as well as to address some of the complexities identified within the family before working on weight-loss and its associated complications. This issue, along with there being a lack of appropriate post-CEW services, was cited as the main reason for CYP remaining in services beyond the commissioned duration.\u003c/p\u003e \u003cp\u003eFinally, this subtheme captures the impact of complexity on how CYP engage with CEW services, and the emotional toll this can have on staff when supporting families in complex and challenging circumstances. This was particularly evident in discussion with participants around discharge and the difficulty of discharging CYP knowing that there will be little infrastructure to support them moving forward.\u003c/p\u003e \u003cp\u003e \u003cspan type=\"Underline\" class=\"Underline\" name=\"Emphasis\"\u003eTheme 3: The challenges of designing and delivering a pilot service\u003c/span\u003e \u003c/p\u003e \u003cp\u003e \u003cspan type=\"ItalicUnderline\" class=\"ItalicUnderline\" name=\"Emphasis\"\u003eSubtheme 3.1: Recruiting and retaining staff\u003c/span\u003e \u003c/p\u003e \u003cp\u003eSeveral participants noted that they did not have a fully staffed MDT, often due to fixed-term, part-time and split-post contracts being \u0026ldquo;\u003cem\u003enot appealing\u003c/em\u003e\u0026rdquo; (SL13_1), and the uncertainty associated with the future, longer-term funding of the CEW programme. Some participants described this as their \u0026lsquo;\u003cem\u003ebiggest challenge\u003c/em\u003e\u0026rsquo; (SL4_1) or as a \u0026lsquo;\u003cem\u003etotal nightmare\u003c/em\u003e\u0026rsquo; (SL15_1).\u003c/p\u003e \u003cp\u003eThere were also difficulties in recruiting certain professionals to the MDT, such as psychologists, due to national shortages. Consequently, participants highlighted how some services had amended the role advertised to reflect that it fulfilled the requirement for psychological support without being a qualified psychologist, such as the use of a family therapist:\u003cdiv class=\"BlockQuote\"\u003e\u003cp\u003e \u003cem\u003e\u0026ldquo;When we were unsuccessful in getting a second psychologist, someone gave us the, the advice to look for a family therapist, so the next advert had psychologist or family therapist, and that has been tremendous. Although we weren't looking for one, we thought the family therapist could \u0026lsquo;play the part\u0026rsquo; of a psychologist\u0026rdquo;\u003c/em\u003e (SL4_1)\u003c/p\u003e\u003c/div\u003e\u003c/p\u003e \u003cp\u003e Participants highlighted how service delivery in CEW services were directly impacted by staffing issues. For example, one service had experienced difficulties in administering GLP-1s because of a lack of appropriate staff to run the necessary medication clinics, and the subsequent burden this placed on other MDT members to plug these gaps in care.\u003c/p\u003e \u003cp\u003e \u003cspan type=\"ItalicUnderline\" class=\"ItalicUnderline\" name=\"Emphasis\"\u003eSubtheme 3.2: Organisational challenges\u003c/span\u003e \u003c/p\u003e \u003cp\u003eThis subtheme encompasses organisational challenges at both the Trust (i.e., a Trust is an organisational unit within the NHS serving a geographical area) and commissioning levels. At a Trust level, MDT members described logistical and administrative challenges that hindered effective service delivery. Administrative challenges included not having the correct access to IT systems, and/or incompatible IT systems between services, and difficulties identifying relevant Human Resources processes. Some participants perceived these difficulties to be due to the use of dual contracts and/or different Trusts/organisations (e.g., contracted youth services) working together to deliver CEW services.\u003c/p\u003e \u003cp\u003eOne of the main logistical issues cited by participants was the difficulty in accessing appropriate clinic space to meet patients. Participants believed that this impacted their ability to deliver personalised care, be that through limiting opportunities for 1:1s with patients, or to host a full in-person MDT \u0026ldquo;\u003cem\u003efor eight people in a room that only fits three\u003c/em\u003e\u0026rdquo; (SL18_4):\u003cdiv class=\"BlockQuote\"\u003e\u003cp\u003e \u003cem\u003e\u0026ldquo;[Trust name] is terrible for getting clinic time and rooms, we really battle with that. And sometimes we don't even get offered a second room for our clinics at [Trust name] so it's very difficult to have that space to have kind of one to ones with the patients\u0026rdquo;\u003c/em\u003e (SL18_2)\u003c/p\u003e\u003c/div\u003e\u003c/p\u003e \u003cp\u003eAt a commissioning level, while most services appeared to appreciate the flexibility given to them when setting up the service, some noted that they would have preferred more time and guidance before launch. Additionally, the level of data recording and reporting required by NHS England was often underestimated, as mentioned by this service:\u003cdiv class=\"BlockQuote\"\u003e\u003cp\u003e \u003cem\u003e\u0026ldquo;Originally, I don't think there was a good understanding of how much data would be required or the consistency of data, so the dashboard took two or three years to develop. So, a lot of us had used money on clinical staff rather than admin or data staff\u0026rdquo;\u003c/em\u003e (SL15_1)\u003c/p\u003e\u003c/div\u003e\u003c/p\u003e \u003cp\u003e \u003cspan type=\"ItalicUnderline\" class=\"ItalicUnderline\" name=\"Emphasis\"\u003eSubtheme 3.3: High demand, low capacity\u003c/span\u003e \u003c/p\u003e \u003cp\u003eThis subtheme is linked to the aforementioned recruitment and organisational challenges, given that many services were not fully staffed and therefore perceived to not be working optimally. Almost all participants noted that their service had high demand that could not be met with the current capacity of the service:\u003cdiv class=\"BlockQuote\"\u003e\u003cp\u003e \u003cem\u003eI didn't realise that the demand was so high that we can't physically or possibly do this in a timely manner with the current resources that we've got. We cannot see as many patients as we would wish to see. And then we have more referrals coming in. (SL20_3)\u003c/em\u003e \u003c/p\u003e\u003c/div\u003e\u003c/p\u003e \u003cp\u003eParticipants also cited long waiting lists for specialist psychological support, such as Child and Adolescent Mental Health Services (CAMHS) and eating disorder services, perceiving this may be a result of \u0026ldquo;\u003cem\u003eeating disorder services favouring underweight rather than overweight [patients]\u003c/em\u003e\u0026rdquo; (SL15_3). Others reflected on instances where the complexities of CYP had deteriorated while being on waiting lists, and those who were not initially eligible for the service becoming eligible as complications worsened due to a lack of intervention:\u003cdiv class=\"BlockQuote\"\u003e\u003cp\u003e \u003cem\u003e\u0026ldquo;However, due to capacity, some of our patients have sat on a waiting list for a couple of years and in that time their complications have worsened\u0026rdquo;\u003c/em\u003e (SL6_2)\u003c/p\u003e\u003c/div\u003e\u003c/p\u003e \u003cp\u003eParticipants reflected on how the lack of capacity to meet the high demand for services resulted in unplanned adaptations to the service, such as the introduction of more stringent eligibility criteria to manage demand (e.g., higher BMI SDS). Some participants also spoke about a drive to be time efficient that resulted in areas of the service being under-developed or less attended to.\u003cdiv class=\"BlockQuote\"\u003e\u003cp\u003e\u003cem\u003e\u0026ldquo;[\u0026hellip;] something has to lose out, doesn't it? So, if I'm doing this, spending this much time doing data, then the wait list for them to start GLP-1s has to go longer or I don't go to a clinic on a Monday or\u0026hellip;actual clinical work is what loses out \u0026hellip;\u0026rdquo;.\u003c/em\u003e (SL9_6)\u003c/p\u003e\u003c/div\u003e\u003c/p\u003e \u003c/div\u003e"},{"header":"4. Discussion","content":"\u003cp\u003eThis paper provides insights into the realities of delivering a CEW service, including the perceived challenges, and facilitators of success. The main themes revealed 1) how person-centred care was achieved in CEW services 2) how the complexity of the patient cohort impacted the CYP\u0026rsquo;s journey moving through CEW services, and 3) the challenges of designing and delivering a pilot, including recruitment challenges.\u003c/p\u003e \u003cp\u003eCentral to the CEW programme is the use of person-centred care \u003csup\u003e\u003cspan citationid=\"CR23\" class=\"CitationRef\"\u003e23\u003c/span\u003e,\u003cspan citationid=\"CR24\" class=\"CitationRef\"\u003e24\u003c/span\u003e\u003c/sup\u003e. Our findings demonstrate multiple approaches used to achieve this, and how these approaches have enabled effective care delivery. The interviews highlighted that CEW services had to build relationships with the wider hospital, community services, and schools to facilitate inter-organisational communication and support the delivery of person-centred care, which is a known facilitator of inter-organisational collaboration \u003csup\u003e\u003cspan citationid=\"CR25\" class=\"CitationRef\"\u003e25\u003c/span\u003e\u003c/sup\u003e. This approach aligns with the NHS 10 Year Health Plan ambition to shift care out of hospitals and into community-based settings \u003csup\u003e\u003cspan citationid=\"CR26\" class=\"CitationRef\"\u003e26\u003c/span\u003e\u003c/sup\u003e and reflects calls for integrated community-embedded solutions for people living with complex, chronic symptoms \u003csup\u003e\u003cspan citationid=\"CR27\" class=\"CitationRef\"\u003e27\u003c/span\u003e\u003c/sup\u003e. However, we found that the ability to forge these relationships was dependent on hospitals\u0026rsquo; existing partnerships, personal characteristics of MDT members, and existing social capital of MDT members to spearhead this joined-up approach, which has been reported elsewhere \u003csup\u003e\u003cspan citationid=\"CR28\" class=\"CitationRef\"\u003e28\u003c/span\u003e\u003c/sup\u003e. Similarly, the interviews highlighted the importance of knowledge exchange between services to share evidence of best practice, particularly given the complexity of needs reported within the patient cohort. This reflects wider evidence on the value of inter-organisational learning within healthcare \u003csup\u003e\u003cspan citationid=\"CR29\" class=\"CitationRef\"\u003e29\u003c/span\u003e\u003c/sup\u003e, underscoring the need for greater collaboration across services, particularly with leadership from more established services, to support the delivery of effective specialist weight management services for CYP.\u003c/p\u003e \u003cp\u003eMultidisciplinary teams represent another component of CEW services that enable person-centred care. MDTs are well established in the management of other complex paediatric conditions such as diabetes \u003csup\u003e\u003cspan citationid=\"CR30\" class=\"CitationRef\"\u003e30\u003c/span\u003e\u003c/sup\u003e, cystic fibrosis \u003csup\u003e\u003cspan citationid=\"CR31\" class=\"CitationRef\"\u003e31\u003c/span\u003e\u003c/sup\u003e, and kidney disease \u003csup\u003e\u003cspan citationid=\"CR32\" class=\"CitationRef\"\u003e32\u003c/span\u003e,\u003cspan citationid=\"CR33\" class=\"CitationRef\"\u003e33\u003c/span\u003e\u003c/sup\u003e and more recently in the management of childhood obesity \u003csup\u003e\u003cspan citationid=\"CR34\" class=\"CitationRef\"\u003e34\u003c/span\u003e,\u003cspan citationid=\"CR35\" class=\"CitationRef\"\u003e35\u003c/span\u003e\u003c/sup\u003e. Our interviews revealed that the composition of professionals in the MDT was not homogenous across CEW services (aside from core clinical roles, i.e., medical consultant and nurse), but certain competencies were considered essential to the delivery, particularly in relation to safeguarding expertise, psychological support, and family support. This finding supports a shift towards competency-based MDTs, similar to those adopted in mental health services \u003csup\u003e\u003cspan citationid=\"CR36\" class=\"CitationRef\"\u003e36\u003c/span\u003e\u003c/sup\u003e, to better support the complex patient group, whilst also addressing role-specific recruitment challenges \u003csup\u003e\u003cspan citationid=\"CR36\" class=\"CitationRef\"\u003e36\u003c/span\u003e,\u003cspan citationid=\"CR37\" class=\"CitationRef\"\u003e37\u003c/span\u003e\u003c/sup\u003e. Importantly, our findings reiterate that effective MDT functioning depends on appropriate IT infrastructure, adequate workspace, and sufficient administrative support \u003csup\u003e\u003cspan citationid=\"CR38\" class=\"CitationRef\"\u003e38\u003c/span\u003e\u003c/sup\u003e.\u003c/p\u003e \u003cp\u003eWhile pilot programmes provide opportunities to develop innovative working practices \u003csup\u003e\u003cspan citationid=\"CR39\" class=\"CitationRef\"\u003e39\u003c/span\u003e\u003c/sup\u003e, our interviews highlighted perceived job insecurity and its impact on staff recruitment and retention. This was compounded by a national shortage of mental health professionals \u003csup\u003e\u003cspan citationid=\"CR40\" class=\"CitationRef\"\u003e40\u003c/span\u003e\u003c/sup\u003e, limiting some CEW services\u0026rsquo; ability to deliver the biopsychosocial model of care that underpins the CEW programme. Nevertheless, these challenges are not unique to CEW \u003csup\u003e\u003cspan citationid=\"CR41\" class=\"CitationRef\"\u003e41\u003c/span\u003e\u003c/sup\u003e, and broader efforts to improve staff retention in the NHS are ongoing \u003csup\u003e\u003cspan citationid=\"CR42\" class=\"CitationRef\"\u003e42\u003c/span\u003e\u003c/sup\u003e. Although the NHS Long Term Plan committed to treating 1,000 children per year living with severe obesity \u003csup\u003e\u003cspan citationid=\"CR15\" class=\"CitationRef\"\u003e15\u003c/span\u003e\u003c/sup\u003e, CEW services are experiencing a higher demand than commissioned capacity can support (Marwood et al. In prep; Matu et al. In prep). Our findings suggest that these demand and capacity constraints are further exacerbated by recruitment challenges, partly linked to the short-term nature of the CEW pilot programme. Adequate long-term funding and commissioning are therefore essential to establish a permanent and fully fledged MDT to ensure service sustainability and high standards of care.\u003c/p\u003e \u003cp\u003eThe CEW programme treats a cohort with high levels of complexity, including high levels of deprivation, neurodiversity (Matu et al., In prep), and safeguarding issues. Indeed, our data builds on this to suggest that CYP who use CEW services need long-term, flexible, holistic, person-centred support to address multiple clinical and social barriers to weight management, consistent with previous findings \u003csup\u003e\u003cspan citationid=\"CR24\" class=\"CitationRef\"\u003e24\u003c/span\u003e\u003c/sup\u003e. This flexibility includes the mode of delivery used, with both online and face-to-face remaining important components of care. As such, the NHS Long-Term Plan to reduce face-to-face outpatient appointments by a third \u003csup\u003e\u003cspan citationid=\"CR15\" class=\"CitationRef\"\u003e15\u003c/span\u003e\u003c/sup\u003e may be misaligned with the needs of the CEW patient cohort.\u003c/p\u003e \u003cp\u003eFurthermore, our data suggest that MDT workplans should include increased protected time dedicated to continuing professional development, to enable the continued development of skills needed to respond effectively to the complex patient needs in CEW, beyond what is offered currently. In addition, given the high emotional toll of working with clinically and socially complex groups evidenced within our data and other samples \u003csup\u003e\u003cspan citationid=\"CR43\" class=\"CitationRef\"\u003e43\u003c/span\u003e\u003c/sup\u003e, it is important that MDT members continue to receive appropriate supervision and wellbeing support. Overall, long-term commissioning of the CEW programme should account for the complexity of the patient cohort, as well as the time and workforce development required to equip MDT members to deliver appropriate and efficient care.\u003c/p\u003e \u003cp\u003eAnother key finding of this study related to the lack of appropriate long-term care for CYP accessing CEW services, including a dearth of services for CYP to transition to. This reflects both a national shortage of paediatric weight management services \u003csup\u003e\u003cspan citationid=\"CR44\" class=\"CitationRef\"\u003e44\u003c/span\u003e\u003c/sup\u003e and services to support transition into adult care. Those who are 16\u0026ndash;18-year-old are therefore often left devoid of weight management support, which mirrors the views of the ENHANCE Patient and Public Involvement group, the ARROWs (ENHANCE, 2024). Given the evidence showing significant weight regain after paediatric weight management interventions \u003csup\u003e\u003cspan citationid=\"CR46\" class=\"CitationRef\"\u003e46\u003c/span\u003e\u003c/sup\u003e and after the cessation of weight loss medications \u003csup\u003e\u003cspan citationid=\"CR47\" class=\"CitationRef\"\u003e47\u003c/span\u003e\u003c/sup\u003e, there is a need for long-term support for CYP and their families post-CEW, including appropriate wraparound and transitional services.\u003c/p\u003e \u003cp\u003e \u003cspan type=\"Underline\" class=\"Underline\" name=\"Emphasis\"\u003eRecommendations\u003c/span\u003e \u003c/p\u003e \u003cp\u003eThis study has several recommendations. Firstly, there should be greater consideration for wraparound step-down and appropriate transitional adult services post-CEW. Secondly, the level of patient complexity in CYP with severe obesity needs to be anticipated to ensure appropriate and efficient care, specifically through a dedicated specialised weight management service for this population group, as Tier 2 services are unlikely to be able to provide this level of support. Thirdly, a long-term, adequately funded commissioning plan to enable the recruitment of a permanent and \u0026lsquo;fully-fledged\u0026rsquo; MDT would be needed to ensure service sustainability. Fourthly, greater collaborative working between CEW services, led by those more established, would be necessary to support newer services during the design and implementation phase. This could include sharing best practice regarding logistics, workforce recruitment, and delivery models. Fifthly, to more effectively respond to the levels of patient complexity, services would need to prioritise the upskilling of the MDT in these areas, beyond what is currently provided, supported by adequate funding to do so. Finally, in parallel and recognising the demands of working with a complex and vulnerable patient group, staff wellbeing support should be strengthened and more clearly signposted.\u003c/p\u003e \u003cp\u003e \u003cspan type=\"Underline\" class=\"Underline\" name=\"Emphasis\"\u003eStrengths and limitations\u003c/span\u003e \u003c/p\u003e \u003cp\u003eThe current study was co-produced with policy partners at NHSE, clinical co-investigators, and with the wider ENHANCE team, integrating expertise from policy, economics, and health, strengthening its methodological and contextual rigour. In addition, data were collected from a diverse range of professional roles within the MDT, ensuring multiple perspectives from a geographically diverse sample within England. That said, not all MDT roles were interviewed, potentially restricting the diversity of professional perspectives. Similarly, derived themes were drawn from seven of 38 CEW services and so may not fully reflect the practices or perspectives of the whole CEW programme. It should also be noted that services included in this study were purposively selected for their innovative approaches to delivering their CEW service. This potentially may have introduced sampling bias and thus limit the generalisability of findings to less-developed services. Therefore, it is important that future commissioning decisions be taken within the context of the broader findings of the ENHANCE evaluation.\u003c/p\u003e"},{"header":"5. Conclusion","content":"\u003cp\u003eThis study presents novel insights from MDT members on the delivery of the first NHS commissioned specialist weight management pilot for CYP in England. It highlights the distinct challenges and facilitators associated with designing and implementing a pilot programme, as well as the impact on service delivery. The findings also underscore the complexity within the CEW patient cohort, and the corresponding need for person-centred, holistic, and flexible models of care. Collectively, these findings suggest that the CEW programme represents a distinctive and innovative approach to specialist paediatric obesity service delivery, and that any future roll out could incorporate the ENHANCE evaluation recommendations to optimise models of care.\u003c/p\u003e"},{"header":"Declarations","content":" \u003cp\u003e \u003cstrong\u003eEthics approval and consent to participate\u003c/strong\u003e \u003cp\u003eEthical approval was granted from Leeds Beckett University Ethics Committee (Ref: 128404) and Sheffield Hallam University Ethics Committee (Ref: 79269135) and is in accordance with the Declaration of Helsinki.\u003c/p\u003e \u003c/p\u003e \u003cp\u003e \u003cstrong\u003eConsent for publication\u003c/strong\u003e \u003cp\u003eNot applicable\u003c/p\u003e \u003c/p\u003e\u003cp\u003e\u003cstrong\u003eCompeting Interests\u003c/strong\u003e\u003cp\u003eRAS, JM, PD, EI, AM, LN and VS declare no conflicts of interest. JN has received funding from the NIHR and Sport England, and has had travel expenses paid for by the Novo Nordisk Foundation to attend the Childhood Obesity cluster in Denmark. LE receives funding from the NIHR, MRC and Oliver Bird Foundation. She is also an unpaid author of the ACTION Teens study and has delivered a workshop to clinical pharmacists that was sponsored by Eli Lilly \u0026ndash; payment was received by Leeds Beckett University. CH receives funding from NIHR. KC has previously undertaken research consultancy for Oviva, Manual and Oxford Medical Products through University research consultancy agreements.\u003c/p\u003e\u003c/p\u003e\u003ch2\u003eFunding\u003c/h2\u003e \u003cp\u003eThis study is funded by the NIHR Health and Social Care Delivery Research programme (NIHR 158453). The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care.\u003c/p\u003e\u003ch2\u003eAuthor Contribution\u003c/h2\u003e\u003cp\u003e**RAS:** Writing \u0026ndash; original draft, Visualization, Methodology, Investigation, Formal analysis, Conceptualization, Project administration. **JM:** Writing \u0026ndash; original draft, Visualization, Formal analysis. **PD:** Writing \u0026ndash; review \u0026amp; editing, Investigation. **JN:** Writing \u0026ndash; review \u0026amp; editing, Supervision, Methodology, Investigation, Formal analysis, Conceptualization, Funding acquisition. **KC:** Writing \u0026ndash; review \u0026amp; editing, Funding acquisition. **EI:** Writing \u0026ndash; review \u0026amp; editing, Validation. **AM:** Writing \u0026ndash; review \u0026amp; editing, Funding acquisition. **VS:** Writing \u0026ndash; review \u0026amp; editing, Funding acquisition. **LN** : Writing \u0026ndash; review \u0026amp; editing, Validation. Funding acquisition. **LE** : Writing \u0026ndash; review \u0026amp; editing, Methodology, Conceptualization, Funding acquisition. **CH** : Writing \u0026ndash; review \u0026amp; editing, Methodology, Conceptualization, Funding acquisition.\u003c/p\u003e\u003ch2\u003eAcknowledgement\u003c/h2\u003e\u003cp\u003e The authors would like to acknowledge Jaffer Ismail, Sally Abbott, and Helen Benn from NHS England, who has worked on the co-production of this study and identification of study aims and who provided feedback on an earlier draft of this manuscript. The authors would also like to acknowledge the Patient and Public Involvement team 'ARROWS' that have worked on the co-production of the ENHANCE study. ENHANCE includes a multidisciplinary team of academics and clinicians. The authors would like to acknowledge the team, including The ENHANCE project includes a multidisciplinary team of academics and clinicians. The authors would like to acknowledge the team, including Dr Martin Lamb, Professor Claire Griffiths, Kath Sharman, Karina Kinsella, Rhiannon Day, Dr Jamie Matu, Dr Megan Garside, Dr Richard Mattock, Dr Charlotte Benkowitz, Dr Chris Brown, Dr Taya Zabula, Professor Julian Hamilton-Shield, Dr Dita Aswani, Dr Neil Wright, Dr Caroline Steele, Claire, Woodward, Tahira Amin, Daisy Forman and Kaydee Shepherd.\u003c/p\u003e\u003ch2\u003eData Availability\u003c/h2\u003e\u003cp\u003eThe data that support the findings of this study are not openly available due to reasons of sensitivity and are available from the corresponding author upon reasonable request.\u003c/p\u003e"},{"header":"References","content":"\u003col\u003e\u003cli\u003e\u003cspan\u003eWorld Health Organization. Obesity and Overweight. 2025. 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Weight regain after cessation of medication for weight management: systematic review and meta-analysis. BMJ. 2026;392:e085304. \u003cspan class=\"ExternalRef\"\u003e\u003cspan class=\"RefSource\"\u003e10.1136/bmj-2025-085304\u003c/span\u003e\u003cspan address=\"10.1136/bmj-2025-085304\" targettype=\"DOI\" class=\"RefTarget\"\u003e\u003c/span\u003e\u003c/span\u003e.\u003c/span\u003e\u003c/li\u003e\u003c/ol\u003e"}],"fulltextSource":"","fullText":"","funders":[],"hasAdminPriorityOnWorkflow":true,"hasManuscriptDocX":true,"hasOptedInToPreprint":true,"hasPassedJournalQc":"","hasAnyPriority":false,"hideJournal":false,"highlight":"","institution":"","isAcceptedByJournal":false,"isAuthorSuppliedPdf":false,"isDeskRejected":"","isHiddenFromSearch":false,"isInQc":false,"isInWorkflow":false,"isPdf":false,"isPdfUpToDate":true,"isWithdrawnOrRetracted":false,"journal":{"display":true,"email":"
[email protected]","identity":"bmc-health-services-research","isNatureJournal":false,"hasQc":true,"allowDirectSubmit":false,"externalIdentity":"bhsr","sideBox":"Learn more about [BMC Health Services Research](http://bmchealthservres.biomedcentral.com/)","snPcode":"","submissionUrl":"https://www.editorialmanager.com/BHSR/default.aspx","title":"BMC Health Services Research","twitterHandle":"BMC_series","acdcEnabled":true,"dfaEnabled":false,"editorialSystem":"em","reportingPortfolio":"BMC Series","inReviewEnabled":true,"inReviewRevisionsEnabled":true},"keywords":"childhood, children and young people, obesity, severe obesity, weight management, complications of excess weight, healthcare, patient centred care, multidisciplinary teams, qualitative","lastPublishedDoi":"10.21203/rs.3.rs-9247438/v1","lastPublishedDoiUrl":"https://doi.org/10.21203/rs.3.rs-9247438/v1","license":{"name":"CC BY 4.0","url":"https://creativecommons.org/licenses/by/4.0/"},"manuscriptAbstract":"\u003ch2\u003eBackground\u003c/h2\u003e \u003cp\u003eThirty-eight specialist weight management services for children and young people (CYP) living with severe obesity are being piloted across England. These \u0026lsquo;Complications of Excess Weight\u0026rsquo; (CEW) services aim to provide holistic, person-centred care to CYP, delivered by a multi-disciplinary team (MDT). A national evaluation (ENHANCE; NIHR 158453) of the CEW programme sought to develop the evidence base and understanding of optimal models of care. This qualitative study aimed to explore the realities of delivering a CEW service from the perspective of MDT members.\u003c/p\u003e\u003ch2\u003eMethods\u003c/h2\u003e \u003cp\u003eOnline semi-structured one-to-one interviews (N\u0026thinsp;=\u0026thinsp;28 MDT members) were conducted across seven purposefully sampled CEW services between April-June 2025. Interviews explored barriers and facilitators to delivery, perceptions of patient cohort, service demand, and how CEW fits within wider weight management systems. Data were transcribed and analysed using Framework Analysis.\u003c/p\u003e\u003ch2\u003eResults\u003c/h2\u003e \u003cp\u003eThree overarching themes were identified: 1) \u003cem\u003eAchieving person-centred care in CEW services;\u003c/em\u003e 2) \u003cem\u003eNavigating complexity in the CEW patient journey; and\u003c/em\u003e 3) \u003cem\u003eThe challenges of designing and delivering a pilot\u003c/em\u003e. Participants described a complex patient group who required holistic, innovative approaches to care. Challenges included high service demand, a lack of appropriate transitional care pathways into adult weight management for 16-18-year-olds, and uncertainty about sustainable long-term funding and staffing in the context of a pilot programme.\u003c/p\u003e\u003ch2\u003eConclusions\u003c/h2\u003e \u003cp\u003eA long-term commissioning plan would be needed to ensure stability and appropriate care for CEW services and the families they support. MDTs must be equipped with the skills to respond effectively to high levels of patient complexity, and gaps in the availability of less intensive services (step-down) and transitional care into adult weight management require urgent attention to ensure any positive medical and psychosocial improvements yielded from CEW are not lost.\u003c/p\u003e","manuscriptTitle":"“It’s the biggest not one-size-fits-all service I’ve ever worked in”: The realities of delivering a ‘Complications of Excess Weight’ service for children and young people in England from a multidisciplinary team perspective","msid":"","msnumber":"","nonDraftVersions":[{"code":1,"date":"2026-04-26 15:35:18","doi":"10.21203/rs.3.rs-9247438/v1","editorialEvents":[{"type":"communityComments","content":0},{"type":"decision","content":"Revision requested","date":"2026-05-11T07:58:10+00:00","index":"","fulltext":""},{"type":"reviewerAgreed","content":"1392185892100430023839757207961101042","date":"2026-05-10T21:00:59+00:00","index":"hide","fulltext":""},{"type":"editorInvitedReview","content":"","date":"2026-05-06T12:07:37+00:00","index":"hide","fulltext":""},{"type":"editorInvitedReview","content":"","date":"2026-05-05T16:27:15+00:00","index":"hide","fulltext":""},{"type":"reviewerAgreed","content":"112659133073323950668245654757091666589","date":"2026-04-22T17:08:51+00:00","index":"hide","fulltext":""},{"type":"reviewerAgreed","content":"265599901403194599864785518240926694976","date":"2026-04-16T13:09:28+00:00","index":"hide","fulltext":""},{"type":"reviewersInvited","content":"","date":"2026-04-16T10:53:04+00:00","index":"","fulltext":""},{"type":"editorInvited","content":"","date":"2026-04-02T19:45:33+00:00","index":"","fulltext":""},{"type":"editorAssigned","content":"","date":"2026-04-02T12:38:06+00:00","index":"","fulltext":""},{"type":"checksComplete","content":"","date":"2026-04-02T12:37:10+00:00","index":"","fulltext":""},{"type":"submitted","content":"BMC Health Services Research","date":"2026-03-27T17:49:16+00:00","index":"","fulltext":""}],"status":"published","journal":{"display":true,"email":"
[email protected]","identity":"bmc-health-services-research","isNatureJournal":false,"hasQc":true,"allowDirectSubmit":false,"externalIdentity":"bhsr","sideBox":"Learn more about [BMC Health Services Research](http://bmchealthservres.biomedcentral.com/)","snPcode":"","submissionUrl":"https://www.editorialmanager.com/BHSR/default.aspx","title":"BMC Health Services Research","twitterHandle":"BMC_series","acdcEnabled":true,"dfaEnabled":false,"editorialSystem":"em","reportingPortfolio":"BMC Series","inReviewEnabled":true,"inReviewRevisionsEnabled":true}}],"origin":"","ownerIdentity":"69280b20-c7df-4737-8315-2d4e6e502831","owner":[],"postedDate":"April 26th, 2026","published":true,"recentEditorialEvents":[{"type":"decision","content":"Revision requested","date":"2026-05-11T07:58:10+00:00","index":"","fulltext":""},{"type":"reviewerAgreed","content":"1392185892100430023839757207961101042","date":"2026-05-10T21:00:59+00:00","index":55,"fulltext":""},{"type":"editorInvitedReview","content":"","date":"2026-05-06T12:07:37+00:00","index":51,"fulltext":""},{"type":"editorInvitedReview","content":"","date":"2026-05-05T16:27:15+00:00","index":44,"fulltext":""}],"rejectedJournal":[],"revision":"","amendment":"","status":"under-review","subjectAreas":[],"tags":[],"updatedAt":"2026-05-19T14:23:31+00:00","versionOfRecord":[],"versionCreatedAt":"2026-04-26 15:35:18","video":"","vorDoi":"","vorDoiUrl":"","workflowStages":[]},"version":"v1","identity":"rs-9247438","journalConfig":"researchsquare"},"__N_SSP":true},"page":"/article/[identity]/[[...version]]","query":{"redirect":"/article/rs-9247438","identity":"rs-9247438","version":["v1"]},"buildId":"XKTyCvWXoU3ODBz1xrDgd","isFallback":false,"isExperimentalCompile":false,"dynamicIds":[84888],"gssp":true,"scriptLoader":[]}
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