EMPOWER Study (Endometriosis Management, Patient-centred Outcomes, Well-being, Economic burden and integrated long-term caRE): Protocol for a Nationwide Cross-Sectional Survey

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The EMPOWER Study will conduct a nationwide cross-sectional survey to gather evidence on the multidimensional burden of endometriosis and identify factors for improving patient-centered, long-term care.

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The EMPOWER Study protocol describes a nationwide cross-sectional survey in Germany intended to generate evidence on the multidimensional burden of endometriosis, including patient-centered outcomes, well-being, and economic burden, with the goal of informing an integrated, patient-centered, longitudinal care model. The study is outlined at the design level, including its survey aims, but the protocol text provided here does not report participant results or specific key findings yet. A major limitation explicitly inherent to a protocol-only publication is that it does not present outcomes, effect estimates, or conclusions from data collection. This paper is centrally about endometriosis—specifically, it is a protocol for a nationwide cross-sectional survey to characterize patient-centered, well-being, and economic burdens that can support integrated long-term endometriosis care.

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Abstract

The EMPOWER Study (Endometriosis Management, Patient-centered Outcomes, Well-being, Economic Burden and Long-term caRE) aims to generate comprehensive evidence regarding the multidimensional burden of endometriosis and to identify factors relevant for the development of an integrated, patient-centered, and longitudinal care model.
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Published June 14, 2026 | Version v1.0 Working paper Open EMPOWER Study (Endometriosis Management, Patient-centred Outcomes, Well-being, Economic burden and integrated long-term caRE): Protocol for a Nationwide Cross-Sectional Survey Authors/Creators - 1. Department of Obstetrics and Gynecology, University Medical Center of the Johannes Gutenberg University Mainz, 55131 Mainz, Germany Description The EMPOWER Study (Endometriosis Management, Patient-centered Outcomes, Well-being, Economic Burden and Long-term caRE) aims to generate comprehensive evidence regarding the multidimensional burden of endometriosis and to identify factors relevant for the development of an integrated, patient-centered, and longitudinal care model. Files Files (29.0 kB) | Name | Size | Download all | |---|---|---| | md5:d30b7d32230699a6a2a0daed0f7f8edb | 29.0 kB | Download |

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