The impact of endometriosis on young females in New Zealand : a qualitative study.

This study explored the lived experiences of young people with endometriosis and their families in New Zealand, giving a voice to their unique perspectives. Using a qualitative descriptive approach, nine participants shared their stories in semi-structured interviews. The data was analysed using Braun and Clarke’s thematic analysis framework. The results revealed significant impacts on the lives of these young people. Key themes included substantial effects on education, work, social relationships, family dynamics, interactions with the healthcare system, and psychological wellbeing. The study highlighted the need for improved understanding and support from healthcare practitioners, increased advocacy, and the importance of family support. However, the research also identified several limitations, including a small cohort size, lack of Māori participants, and the effects of COVID-19. This research contributes to the existing literature by filling a significant gap in understanding the experiences of young people in New Zealand with endometriosis. Future research is suggested to further explore the impact that living with endometriosis has on education and work, and the effects on mental health that are unique to youth, and what strategies could be implemented to support them. This study highlights the importance of giving a voice to adolescents and addressing the unique factors that affect their lives.