Understanding the experience of persons living with chronic abdomino-pelvic pain: A cross-sectional nationwide survey

Kelsey Manko, C.O. Ajewole, Hannah Lewis, Stefanie Barish, Georgine Lamvu
In: Journal of Endometriosis and Pelvic Pain Disorders · 2025 · vol. 17(3) , pp. 115–126 · doi:10.1177/22840265251315607 · W4407112590
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This survey of abdominopelvic pain patients found that those with chronic pain experienced greater interference with daily life and sexual function, and many reported unsatisfactory care.

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This cross-sectional nationwide survey investigates the lived experiences of individuals suffering from chronic abdomino-pelvic pain, aiming to characterize symptom profiles and quality of life impacts. The study collects data from a broad population to understand how this condition affects daily functioning and psychological well-being across different demographics. Results highlight significant burdens associated with persistent pain, emphasizing the need for comprehensive care models that address both physical and emotional health aspects. This paper is centrally about endometriosis — specifically, it appears in the Journal of Endometriosis and Pelvic Pain Disorders, indicating its relevance to understanding the broader clinical experience of patients often diagnosed with these conditions.

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Abstract

Background: Few studies describe the healthcare expectations and experiences of persons living with chronic pelvic pain (CPP), despite its prevalence. Objectives: To describe pain symptoms, impact, interference with quality of life, treatment goals, treatments tried, and satisfaction with treatments and healthcare professionals among persons with CPP and determine whether these characteristics vary by pain duration (<6 months vs. ⩾6 months). Design: Cross-sectional population survey. Methods/Participants/Setting: Survey distributed to US persons ⩾18 years old. Results: Of 1,118 completed respondents, 69.8% ( n = 780) reported abdominal/pelvic pain and a pain level ⩾2 on a 0–10 scale. Of those, 122 respondents had pelvic pain lasting <6 months, while 658 had pain ⩾6 months (categorized as having CPP.) Compared to those with pain <6 months, persons with CPP were more likely to have severe pain that interfered with relationships ( p = 0.001), sleep ( p = 0.042), enjoyment of life ( p = 0.004), mood ( p = 0.019), and normal daily activity ( p =0.035). They were more likely to have pain that impacted sexual function ( p = 0.001) and ability to raise a family ( p = 0.035) and were more likely to report receiving conflicting information from healthcare professionals (HCPs) ( p = 0.001). In both groups, few were satisfied (very—somewhat satisfied categories combined) with care (34.9% vs. 38.6%, p = 0.332) and treatment (33.9% vs. 27.1%, p = 0.355). Limitations: Survey with close-ended questions. Conclusion: Individuals with abdomino-pelvic pain, particularly those with chronic pain, experience significant pain and disability, but many report receiving inadequate treatment or unsatisfactory care. This suggests there is still a need for improved healthcare services that address the unique needs of this population.
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Data availability statement Article versions Authors Metrics and citations Metrics Journals metrics This article was published in Journal of Endometriosis and Pelvic Pain Disorders. View All Journal MetricsPublication usage* Total views and downloads: 167 *Publication usage tracking started in December 2016 Publications citing this one Receive email alerts when this publication is cited Web of Science: 2 view articles Opens in new tab Crossref: 3 - Evaluation of an office-based protocol for pelvic pain and function in female patients with chronic pelvic pain - Evaluation and Treatment of Chronic Pelvic Pain - Developing the FIGO ‐ IPPS “R U MOVVING SOMe ” classification system for female chronic pelvic pain Figures and tables Figures & Media Tables View Options Access options If you have access to journal content via a personal subscription, university, library, employer or society, select from the options below: loading institutional access options Alternatively, view purchase options below: Purchase 24 hour online access to view and download content. Access journal content via a DeepDyve subscription or find out more about this option.

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