Das internationale Endometriose Evaluations-Programm (IEEP) – eine Studie für Kliniker, Forscher und Patientinnen

The paper describes the design and implementation of the International Endometriosis Evaluation Program (IEEP), a multicenter, online documentation system linked to a biobank to enable prospective case-control research on endometriosis heterogeneity and the lack of standardized diagnostic approaches and predictive biomarkers. Between June 2013 and June 2015, the system collected anamnestic and clinical data from 696 women, including 202 with endometriosis already known preoperatively and 494 newly diagnosed, with biomaterials available for 353 (50.7%). The authors present that this setup allows standardized clinical data collection alongside stored samples to support biomarker and follow-up research, while also enabling certification-related data collection. This paper is centrally about endometriosis — specifically the development of a prospective international documentation and biobanking platform to study diagnosis, treatment, quality of life, and follow-up.

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