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This qualitative study explored the perspectives of 42 English general practitioners regarding the management of patients presenting with symptoms suggestive of endometriosis in primary care. Through semi-structured telephone interviews, researchers found that GPs face significant diagnostic challenges due to the non-specific nature of symptoms and the need to exclude other serious conditions before considering endometriosis. The authors noted that while awareness is important, GPs also weigh the advantages and risks of assigning an endometriosis label, often utilizing treatment trials as diagnostic tools while navigating uncertainties about the disease's unpredictable spectrum. This paper is centrally about endometriosis — specifically focusing on primary care diagnostic pathways and GP decision-making processes for suspected cases.
Abstract
BACKGROUND: Endometriosis affects approximately 6-10% of women, with well documented delays between initial presentation with symptoms and diagnosis. In England, women typically seek help first in primary care, making this setting pivotal in women's pathways to diagnosis and treatment. English GP perspectives on managing possible endometriosis have not been previously reported. AIM: To explore what GPs identify as important considerations when caring for women with symptoms that raise the possibility of endometriosis. DESIGN AND SETTING: Qualitative study in English primary care. METHOD: Semi-structured scenario-based telephone interviews with 42 GPs from April 2019 to January 2020, based around a fictional scenario of a woman presenting to primary care with symptoms suggesting possible endometriosis. Interviews were thematically coded and analysed. RESULTS: Managing possible endometriosis in primary care brings challenges. While knowledge and awareness were prerequisites for considering endometriosis, other important considerations were raised. Symptoms suggestive of endometriosis are non-specific, making endometriosis one possible consideration of many. GPs move through a diagnostic hierarchy to exclude sinister causes and utilise trials of treatment as both therapeutic interventions and diagnostic tools; processes which take time. An endometriosis label or diagnosis has advantages and risks. GPs reported sharing decisions about investigation and referral while holding women's priorities as pivotal. These conversations were underpinned by their knowledge of uncertainties and unknowns, including the wide spectrum and unpredictability of endometriosis. CONCLUSION: GPs considerations are more complex than simply lacking awareness. The unknowns surrounding endometriosis matter to GPs. Further research and tailored resources for primary care, where women present with undifferentiated symptoms, are needed.
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Navigating possible endometriosis in primary care: a qualitative study of GP perspectives.
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Abstract
BACKGROUND: Endometriosis affects approximately 6-10% of women, with well documented delays between initial presentation with symptoms and diagnosis. In England, women typically seek help first in primary care, making this setting pivotal in women's pathways to diagnosis and treatment. English GP perspectives on managing possible endometriosis have not been previously reported. AIM: To explore what GPs identify as important considerations when caring for women with symptoms that raise the possibility of endometriosis. DESIGN AND SETTING: Qualitative study in English primary care. METHOD: Semi-structured scenario-based telephone interviews with 42 GPs from April 2019 to January 2020, based around a fictional scenario of a woman presenting to primary care with symptoms suggesting possible endometriosis. Interviews were thematically coded and analysed. RESULTS: Managing possible endometriosis in primary care brings challenges. While knowledge and awareness were prerequisites for considering endometriosis, other important considerations were raised. Symptoms suggestive of endometriosis are non-specific, making endometriosis one possible consideration of many. GPs move through a diagnostic hierarchy to exclude sinister causes and utilise trials of treatment as both therapeutic interventions and diagnostic tools; processes which take time. An endometriosis label or diagnosis has advantages and risks. GPs reported sharing decisions about investigation and referral while holding women's priorities as pivotal. These conversations were underpinned by their knowledge of uncertainties and unknowns, including the wide spectrum and unpredictability of endometriosis. CONCLUSION: GPs considerations are more complex than simply lacking awareness. The unknowns surrounding endometriosis matter to GPs. Further research and tailored resources for primary care, where women present with undifferentiated symptoms, are needed.
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1478-5242
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